Accessibility
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Accessibility is about making sure that things can be accessed and used by as many people as possible. This includes people with impaired vision, motor difficulties, cognitive impairments, learning disabilities and deafness or impaired hearing.
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ARC-funded or ARC-supported studies
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ARC-funded studies receive financial funding directly from ARC Wessex. Other studies are ‘ARC-supported’ – these studies do not receive any direct financial support from ARC but do receive other support, such as ARC staff providing support to the study.
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ARC or Applied Research Collaboration
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ARCs support applied health and care research that responds to, and meets, the needs of local populations and local health and care systems. They are funded by the NIHR. There are 15 funded across England.
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ARC Partnership Board
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This is a decision-making body for ARC Wessex. It meets quarterly to set priorities and directly contribute to, support delivery and monitor performance of our programme. The board membership has two public representatives.
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BRC or Biomedical Research Centre
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BRCs bring together academics and clinicians to translate lab-based scientific breakthroughs into potential new treatments, diagnostics and medical technologies. There are 20 NIHR funded BRCs in England. The ARC Lead for PPI/E also leads PPI/E for the Southampton BRC. Our researchers also work closely with staff in the BRC.
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CCF or Clinical Commissioning Facility
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They manage and administer the ARC funding scheme. We report to them annually and will have to report our progress against this strategy.
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CLAHRC or Collaborations for Leadership in Applied Health Research and Care
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This is the term for the organisations which preceded the ARCs. They were also funded by the NIHR and had a similar function. This funding scheme closed in Sept 2019 when the ARC scheme succeeded them.
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Communications and Partnership Manager
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This role has responsibility for shaping and delivering our communications, and supporting productive relationships across our partners. At the time of publishing, Jamie Stevenson fills this post.
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CRF or Clinical Research Facility
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CRFs are purpose built facilities in NHS hospitals where researchers can deliver early-phase and complex studies. There are 22 NIHR funded CRFs in England. The ARC Lead for PPI/E also leads PPI/E for the Southampton CRF.
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Engagement
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Where information and knowledge is provided and shared with the public.
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Equality impact assessments
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The equality impact assessment is a systematic and evidence-based tool, which enables us to consider the likely impact of work on different groups of people. They help ensure that activities do not discriminate against anyone and that, where possible, we promote equality of opportunity.
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Executive Leadership Group
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This group operationalises strategy, policy and the research programme. The group is led by the ARC Director; the Lead for PPI/E and Communications and the Partnership Manager are members.
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Higher Education Institutes
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This term describes any institution that provides education post-secondary education level, for example Universities.
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INCLUDE guidance
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This guidance provides a suggested framework of questions to guide the deliberations of funders, researchers and delivery teams as they design and assess clinical research proposals to improve inclusion of under-served groups in clinical research. Read more.
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INVOLVE
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INVOLVE was a national coordinating centre for public involvement in health and care. It was funded by the National Institute for Health Research between 1996-2020. A new Centre for Engagement and Dissemination aims to build on the work of INVOLVE.
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Lead for PPI/E
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This role has responsibility for shaping and delivering our PPI/E strategy. They also lead PPI/E for other NIHR organisations. At the time of publishing, Caroline Barker fills this post.
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Lifelab
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A unique, state-of-the-art teaching laboratory dedicated to improving adolescent health by giving school students opportunities to learn first-hand the science behind the health messages.
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Logic modelling and theory of change
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A theory of change is a description of why a particular way of working will be effective, showing how change happens in the short, medium and long term to achieve its intended impact. Logic models are a way to graphically represent this theory. Our Lead for PPI/E supervises a PhD student who has developed a PPI/E planning and impact tool, underpinned by the theory of change and a logic model. We aim to use this to capture impacts of the ARC PPI/E programme.
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Microsoft Accessibility Checker
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A free tool available in Office 365. It finds most accessibility issues and explains why each might be a potential problem for someone with a disability. It also offers suggestions on how to resolve each issue. Read more.
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NHS providers
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This term describes any organisation that provides NHS services. This includes hospitals, community trusts, GP services, pharmacies and clinical commissioning groups.
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NIHR or National Institute for Health Research
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The National Institute for Health Research is funded by the Department of Health and Social Care. It funds health and care research, providing the people, facilities and technology for research to thrive.
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Patient and public involvement
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Research carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. Members of the public can be involved at all stages of a research project and across all levels of research organisations.
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