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Glossary of terms

 
Accessibility
Accessibility is about making sure that things can be accessed and used by as many people as possible. This includes people with impaired vision, motor difficulties, cognitive impairments, learning disabilities and deafness or impaired hearing.
ARC-funded or ARC-supported studies
ARC-funded studies receive financial funding directly from ARC Wessex. Other studies are ‘ARC-supported’ – these studies do not receive any direct financial support from ARC but do receive other support, such as ARC staff providing support to the study.
ARC or Applied Research Collaboration
ARCs support applied health and care research that responds to, and meets, the needs of local populations and local health and care systems. They are funded by the NIHR. There are 15 funded across England.
ARC Partnership Board
This is a decision-making body for ARC Wessex. It meets quarterly to set priorities and directly contribute to, support delivery and monitor performance of our programme. The board membership has two public representatives.
BRC or Biomedical Research Centre
BRCs bring together academics and clinicians to translate lab-based scientific breakthroughs into potential new treatments, diagnostics and medical technologies. There are 20 NIHR funded BRCs in England. The ARC Lead for PPI/E also leads PPI/E for the Southampton BRC. Our researchers also work closely with staff in the BRC.
CCF or Clinical Commissioning Facility
They manage and administer the ARC funding scheme. We report to them annually and will have to report our progress against this strategy.
CLAHRC or Collaborations for Leadership in Applied Health Research and Care
This is the term for the organisations which preceded the ARCs. They were also funded by the NIHR and had a similar function. This funding scheme closed in Sept 2019 when the ARC scheme succeeded them.
Communications and Partnership Manager
This role has responsibility for shaping and delivering our communications, and supporting productive relationships across our partners. At the time of publishing, Jamie Stevenson fills this post.
CRF or Clinical Research Facility
CRFs are purpose built facilities in NHS hospitals where researchers can deliver early-phase and complex studies. There are 22 NIHR funded CRFs in England. The ARC Lead for PPI/E also leads PPI/E for the Southampton CRF.
Engagement
Where information and knowledge is provided and shared with the public.
Equality impact assessments
The equality impact assessment is a systematic and evidence-based tool, which enables us to consider the likely impact of work on different groups of people. They help ensure that activities do not discriminate against anyone and that, where possible, we promote equality of opportunity.
Executive Leadership Group
This group operationalises strategy, policy and the research programme. The group is led by the ARC Director; the Lead for PPI/E and Communications and the Partnership Manager are members.
Higher Education Institutes
This term describes any institution that provides education post-secondary education level, for example Universities.
INCLUDE guidance
This guidance provides a suggested framework of questions to guide the deliberations of funders, researchers and delivery teams as they design and assess clinical research proposals to improve inclusion of under-served groups in clinical research. Read more.
INVOLVE
INVOLVE was a national coordinating centre for public involvement in health and care. It was funded by the National Institute for Health Research between 1996-2020. A new Centre for Engagement and Dissemination aims to build on the work of INVOLVE.
Lead for PPI/E
This role has responsibility for shaping and delivering our PPI/E strategy. They also lead PPI/E for other NIHR organisations. At the time of publishing, Caroline Barker fills this post.
Lifelab
A unique, state-of-the-art teaching laboratory dedicated to improving adolescent health by giving school students opportunities to learn first-hand the science behind the health messages.
Logic modelling and theory of change
A theory of change is a description of why a particular way of working will be effective, showing how change happens in the short, medium and long term to achieve its intended impact. Logic models are a way to graphically represent this theory. Our Lead for PPI/E supervises a PhD student who has developed a PPI/E planning and impact tool, underpinned by the theory of change and a logic model. We aim to use this to capture impacts of the ARC PPI/E programme.
Microsoft Accessibility Checker
A free tool available in Office 365. It finds most accessibility issues and explains why each might be a potential problem for someone with a disability. It also offers suggestions on how to resolve each issue. Read more.
NHS providers
This term describes any organisation that provides NHS services. This includes hospitals, community trusts, GP services, pharmacies and clinical commissioning groups.
NIHR or National Institute for Health Research
The National Institute for Health Research is funded by the Department of Health and Social Care. It funds health and care research, providing the people, facilities and technology for research to thrive.
Patient and public involvement
Research carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. Members of the public can be involved at all stages of a research project and across all levels of research organisations.
PPI Champions
Our PPI Champions are members of the public. They have a strategic role in our organisation. This includes working closely with the leadership of one of our research themes and with our PPI/E team. We try to have two PPI Champions per research theme.
PPI Officer
Our PPI Officer is a member of staff dedicated to supporting good PPI/E. At the time of publishing, Katherine Baker fills this post.
PPI/E
An acronym for patient and public involvement and engagement. Used to describe work and projects which connect or encompass both activities.
Population risk stratification and intervention to prevent childhood obesity
This project aims to test the feasibility and acceptability of a childhood obesity prediction tool and online platform for health visitors to use when supporting families to lead healthier life styles. The involvement work will focus on working with the underserved, such as those from deprived or ethnic minority groups, who are most at risk of childhood obesity.
Public Engagement in Research Unit
This unit exists to inspire and support high quality public engagement with research across all disciplines at the University of Southampton.
Public Policy Unit
This unit, at the University of Southampton, helps researchers connect with policymakers to better support evidence-based policymaking.
Socioeconomic status
This term describes an individual's or family's economic and social position. It is a predictor of outcomes across the life span.
Staff links
Each theme has a nominated PPI/E staff link. This is a member of their research team. They are members of our strategic PPI/E group, WISeRD.
Sure Start
Sure Start is a government area-based initiative that was founded with the aim of 'giving children the best possible start in life' through improvement of childcare, early education, health and family support.
Training Needs Analysis
This is a process to determine all the training that needs to be completed (and when) to allow someone to complete their job as effectively as possible, as well as progress and grow.
UK Standards for Public Involvement
The standards are a framework for what good public involvement in research looks like. They provide clear, concise statements of effective public involvement against which improvement can be assessed. They were developed as a partnership of organisations across the UK, including the NIHR. Read more.
Underserved
Underserved is the term we have chosen to use to describe people who are less well included in research. We prefer this term because it highlights that the research community needs to provide a better service for these individuals. It is important to recognise that underserved groups are context-specific. There is no single, simple definition to describe all underserved groups. The INCLUDE guidance provides more information about what an underserved group is – read here.
Wessex
Wessex is the region covering Dorset, Hampshire, the Isle of Wight and South Wiltshire.
Wessex PIN or Wessex Public Involvement Network
A network of staff and public working within NIHR all committed to improving public involvement in research. We share our knowledge and support and develop each other. We work together on a number of priority projects that wouldn’t be possible if we didn’t share the workload between us. Read more.
WISeRD or Wessex Inclusion in Service Research and Design Group
WISeRD is our strategic PPI/E group. Its membership includes our PPI Champions, staff links and PPI/E staff.