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Other resources The ARC Wessex Implementation Team have developed a process to assess the implementation factors of ARC projects outputs. Our Implementation Checklist assesses how far research teams have considered implementation and enables us to determine the level of input we need to provide to support the implementation process. The checklist comprises six domains representing key elements in the process leading to implementation. Within each domain there are a set of statements addressing different aspects of this process and the conditions required for implementation. In addition, there are several questions which are intended as prompts to help make the assessment. To complete the checklist, think about your project and consider each statement within the domain and its accompanying question(s). Decide if you agree or disagree with the statement by placing a tick in the relevant column. You should also think about the evidence you have to support your response and details of this should be provided in the last column. If you have questions about the checklist email, please send these to arcwessex@soton.ac.uk addressed to the “Implementation Team” Complete the evaluation survey implementation checklist Implementation Checklist The ARC Wessex Implementation Team have developed a process to assess the implementation factors of ARC projects outputs. Our Implementation Checklist assesses how far research teams have considered implementation and enables us to determine the level of input we need to provide to support the implementation process. The checklist comprises six domains representing key elements in the process leading to implementation. Within each domain there are a set of statements addressing different aspects of this process and the conditions required for implementation. In addition, there are several questions which are intended as prompts to help make the assessment. To complete the checklist, think about your project and consider each statement within the domain and its accompanying question(s). Decide if you agree or disagree with the statement by placing a tick in the relevant column. You should also think about the evidence you have to support your response and details of this should be provided in the last column. If you have questions about the checklist email, please send these to arcwessex@soton.ac.uk addressed to the “Implementation Team” Download implementation checklist Learn more about implementation checklist Download implementation checklist Download the poster Introduction to Implementation - Dr David Kryl (video) Virtual workshop recorded in October 2020 (video) Use the Web-based Implementation Toolkit Video gallery Video gallery Implementation resources Bitesize guides to Implementation Bitesize guides to Implementation Play Video Play Video 10:12 Implementation Bitesize session 1- Dr David Kryl Implementation bitesize 1 - An introduction to Implementation by Dr David Kryl (10 minutes) Play Video Play Video 15:29 Implementation presentation Session 2 Dr Michelle Myall Implementation bitesize 2 - Implementation Science and Frameworks by Dr Michelle Myall Play Video Play Video 09:51 Implementation bitesize 3 - Checklist by Cindy Brooks Implementation bitesize 3 - Checklist by Cindy Brooks (10 minutes) Play Video Play Video 13:48 Implementation Bite size 4 Q & A.mp4 The ARC Wessex Implementation team answers your questions Implementation Checklist Play Video Play Video 10:54 Introduction to Implementation - Dr David Kryl Introduction to Implementation - Dr David Kryl (video) Play Video Play Video 01:15:22 Virtual workshop recorded in October 2020 Virtual workshop recorded in October 2020 (video) Summer Series 2021 Summer series 2021 Play Video Play Video 19:54 Summer Series Session 1: Study Outputs, Buy in & Engagement Cindy Brooks and Dr Michelle Myall explain Implementation in a series of summer sessions Live Q & A session Thursday 7th October 12.00pm Play Video Play Video 15:31 Summer Series Session 2: Fit and alignment with health and social care systems & priorities Summer Series Session 2: Fit and alignment with health and social care systems & priorities by Dr Michelle Myall and Cindy Brooks Play Video Play Video 11:12 Summer Series Session 3: Outcomes and Impact and Adoption and Spread Cindy Brooks and Dr Michelle Myall explain Implementation in a series of summer sessions Live Q & A session Thursday 7th October 12.00pm

Glossary of Terms Accessibility Accessibility is about making sure that things can be accessed and used by as many people as possible. This includes people with impaired vision, motor difficulties, cognitive impairments, learning disabilities and deafness or impaired hearing. APIF The ARC Public Involvement Forum - this is our strategic PPIEP group. It is composed of Theme Public Advisors, the PPIEP team and staff links for each research theme. ARC funded or ARC supported studies Our research may be directly financed by our ARC ('ARC funded') or we may provide support, such as by providing staff resource ('ARC supported'). ARC or Applied Research Collaboration ARCs support applied health and care research that responds to, and meets, the needs of local populations and local health and care systems. They are funded by the NIHR. There are 15 funded across England. ARC Partnership Board This is a decision-making body for ARC Wessex. It meets quarterly to set priorities and directly contribute to, support delivery and monitor performance of our programme. The board membership has two public representatives. BRC or Biomedical Research Centre BRCs bring together academics and clinicians to translate lab-based scientific breakthroughs into potential new treatments, diagnostics and medical technologies. There are 20 NIHR funded BRCs in England. Our Strategic Lead for PPI/E also leads PPI for the Southampton BRC. Our researchers also work closely with staff in the BRC. CCF or Clinical Commissioning Facility They manage and administer the ARC funding scheme. We report to them annually and will have to report our progress against this strategy. CLAHRC or Collaborations for Leadership in Applied Health Research and Care This is the term for the organisations which preceded the ARCs. They were also funded by the NIHR and had a similar function. This funding scheme closed in Sept 2019 when the ARC scheme succeeded them. Communications and Partnership Manager This role has responsibility for shaping and delivering our communications, and supporting productive relationships across our partners. This post is currently filled by Jamie Stevenson. CRF or Clinical Research Facility CRFs are purpose built facilities in NHS hospitals where researchers can deliver early-phase and complex studies. There are 22 NIHR funded CRFs in England. Our Strategic Lead for PPI/E also leads PPI for the Southampton CRF. Engagement Where information and knowledge is provided and shared with the public. Equality impact assessments The equality impact assessment is a systematic and evidence-based tool, which enables us to consider the likely impact of work on different groups of people. They help ensure that activities do not discriminate against anyone and that, where possible, we promote equality of opportunity. Executive Leadership Group This group operationalises strategy, policy and the research programme. The group is led by the ARC Director; the Strategic Lead for PPI/E and Communications and the Partnership Manager are members. Fellowship Fellowships are a type of research funding which are awarded to individuals. For example, a fellowship may enable a person to complete the next stage of their academic career training. Higher Education Institutes This term describes any institution that provides education post-secondary education level, for example Universities. INCLUDE This guidance provides a suggested framework of questions to guide the deliberations of funders, researchers and delivery teams as they design and assess clinical research proposals to improve inclusion of under-served groups in clinical research. Read more . INVOLVE INVOLVE was a national coordinating centre for public involvement in health and care. It was funded by the National Institute for Health Research between 1996-2020. A new Centre for Engagement and Dissemination aims to build on the work of INVOLVE. Lifelab A unique, state-of-the-art teaching laboratory dedicated to improving adolescent health by giving school students opportunities to learn first-hand the science behind the health messages. Logic modelling and theory of change A theory of change is a description of why a particular way of working will be effective, showing how change happens in the short, medium and long term to achieve its intended impact. Logic models are a way to graphically represent this theory. Our Strategic Lead for PPI/E supervises a PhD student who has developed a PPI/E planning and impact tool, underpinned by the theory of change and a logic model. We aim to use this to capture impacts of the ARC PPI/E programme. Manager for PPI/E This role has responsibility for shaping and delivering our PPI/E strategy. They also lead PPI/E for other NIHR organisations. The post is currently filled by Annemarie Henkinson. Microsoft Accessibility Checker A free tool available in Office 365. It finds most accessibility issues and explains why each might be a potential problem for someone with a disability. It also offers suggestions on how to resolve each issue. Read more . NHS providers This term describes any organisation that provides NHS services. This includes hospitals, community trusts, GP services, pharmacies and clinical commissioning groups. NIHR or National Institute for Health and Care Research The National Institute for Health Research is funded by the Department of Health and Social Care. It funds health and care research, providing the people, facilities and technology for research to thrive. Patient and public involvement Research carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. Members of the public can be involved at all stages of a research project and across all levels of research organisations. PhD award A PhD award is a research award which supports an individual to study for their doctorate. PPI Champions Our PPI Champions are members of the public. They have a strategic role in our organisation. This includes working closely with the leadership of one of our research themes and with our PPI/E team. We try to have two PPI Champions per research theme. PPI Officer Our PPI Officer is a member of staff dedicated to supporting good PPI/EP. PPI/EP An acronym for patient and public involvement engagement and participation. Used to describe work and projects which connect or encompass both activities. Population risk stratification and intervention to prevent childhood obesity This project aims to test the feasibility and acceptability of a childhood obesity prediction tool and online platform for health visitors to use when supporting families to lead healthier life styles. The involvement work will focus on working with the underserved, such as those from deprived or ethnic minority groups, who are most at risk of childhood obesity. Principal Investigator In studies or trials, this term is often used to describe the person who holds the research grant. They are the lead researcher for the project, Public Engagement in Research Unit This unit exists to inspire and support high quality public engagement with research across all disciplines at the University of Southampton. Public Policy Unit This unit, at the University of Southampton, helps researchers connect with policymakers to better support evidence-based policymaking. Socio economic status This term describes an individual's or family's economic and social position. It is a predictor of outcomes across the life span. Staff links Each theme has a nominated PPI/E staff link. This is a member of their research team. They are members of our strategic PPI/E group, APIF. Sure Start Sure Start is a government area-based initiative that was founded with the aim of 'giving children the best possible start in life' through improvement of childcare, early education, health and family support. Theme Public Advisors OurTheme Public Advisors are members of the public. They have a strategic role in our organisation. This includes working closely with the leadership of one of our research themes and with our PPIEP team. We try to have twoTheme Public Advisors per research theme. PPIOfficer Our PPIOfficer is a member of staff dedicated to supporting good PPIEP. Training Needs Analysis This is a process to determine all the training that needs to be completed (and when) to allow someone to complete their job as effectively as possible, as well as progress and grow. UK Standards for Public Involvement The standards are a framework for what good public involvement in research looks like. They provide clear, concise statements of effective public involvement against which improvement can be assessed. They were developed as a partnership of organisations across the UK, including the NIHR. Underserved Underserved is the term we have chosen to use to describe people who are less well included in research. We prefer this term because it highlights that the research community needs to provide a better service for these individuals. Wessex Wessex is the region covering Dorset, Hampshire, the Isle of Wight and South Wiltshire.

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< Back Brad Grecco Marketing Associate This is placeholder text. To change this content, double-click on the element and click Change Content. Want to view and manage all your collections? Click on the Content Manager button in the Add panel on the left. Here, you can make changes to your content, add new fields, create dynamic pages and more. Your collection is already set up for you with fields and content. Add your own content or import it from a CSV file. Add fields for any type of content you want to display, such as rich text, images, and videos. Be sure to click Sync after making changes in a collection, so visitors can see your newest content on your live site. info@mysite.com 123-456-7890

< Back Brian Chung VP Product This is placeholder text. To change this content, double-click on the element and click Change Content. Want to view and manage all your collections? Click on the Content Manager button in the Add panel on the left. Here, you can make changes to your content, add new fields, create dynamic pages and more. Your collection is already set up for you with fields and content. Add your own content or import it from a CSV file. Add fields for any type of content you want to display, such as rich text, images, and videos. Be sure to click Sync after making changes in a collection, so visitors can see your newest content on your live site. info@mysite.com 123-456-7890

< Back Kelly Parker HR Representative This is placeholder text. To change this content, double-click on the element and click Change Content. Want to view and manage all your collections? Click on the Content Manager button in the Add panel on the left. Here, you can make changes to your content, add new fields, create dynamic pages and more. Your collection is already set up for you with fields and content. Add your own content or import it from a CSV file. Add fields for any type of content you want to display, such as rich text, images, and videos. Be sure to click Sync after making changes in a collection, so visitors can see your newest content on your live site. info@mysite.com 123-456-7890

< Back Ashley Amerson Product Manager This is placeholder text. To change this content, double-click on the element and click Change Content. Want to view and manage all your collections? Click on the Content Manager button in the Add panel on the left. Here, you can make changes to your content, add new fields, create dynamic pages and more. Your collection is already set up for you with fields and content. Add your own content or import it from a CSV file. Add fields for any type of content you want to display, such as rich text, images, and videos. Be sure to click Sync after making changes in a collection, so visitors can see your newest content on your live site. info@mysite.com 123-456-7890

< Back Camilla Jones Content Manager This is placeholder text. To change this content, double-click on the element and click Change Content. Want to view and manage all your collections? Click on the Content Manager button in the Add panel on the left. Here, you can make changes to your content, add new fields, create dynamic pages and more. Your collection is already set up for you with fields and content. Add your own content or import it from a CSV file. Add fields for any type of content you want to display, such as rich text, images, and videos. Be sure to click Sync after making changes in a collection, so visitors can see your newest content on your live site. info@mysite.com 123-456-7890

< Back Marcus Harris Account Director This is placeholder text. To change this content, double-click on the element and click Change Content. Want to view and manage all your collections? Click on the Content Manager button in the Add panel on the left. Here, you can make changes to your content, add new fields, create dynamic pages and more. Your collection is already set up for you with fields and content. Add your own content or import it from a CSV file. Add fields for any type of content you want to display, such as rich text, images, and videos. Be sure to click Sync after making changes in a collection, so visitors can see your newest content on your live site. info@mysite.com 123-456-7890

ADOPTED PROJECT: How to Support children with cancer, or another serious condition, and their parents during the COVID-19 outbreak How to Support cHildren with cAncer, or another serious condition, and theiR parents during the COVID-19 outbreak?: understanding Experiences, information and support needs, and decision-making – the SHARE study Chief Investigators: Professor Anne-Sophie Darlington Professor of Child and Family Psychological Health, School of Health Sciences, University of Southampton, SO17 1BJ, UK Email: a.darlington@soton.ac.uk Dr Bob PhillipsHonorary Consultant in Paediatric and Teenage and Young Adult Oncology,The Leeds Teaching Hospitals NHS Trust, Leeds Dr Jess Morgan NIHR Clinical Lecturer in Paediatric Oncology, Centre for Reviews and Dissemination, University of York, York Mr Ashley Ball-Gamble Children’s Cancer andLeukaemia Group Project team: Dr Nicole Collaço – University of SouthamptonDr Arvind Nagra – University Hospital Southampton NHS Foundation TrustDr Luise Marino – University Hospital Southampton NHS Foundation Trust Organisations involved: University of York, Children’s Cancer and Leukaemia Group, University of Southampton, University Hospital Southampton NHS Foundation Trust, The Leeds Teaching Hospitals NHS Trust, Kidney Research UK, Kidney Care UK, British Heart Foundation, Children’s Heart Foundation, Cystic Fibrosis Trust, Harry’s Hat, Shine, Together for Short Lives, The Martin House Research Centre. Summary Children and young people with cancer may be particularly vulnerable. Those undergoing treatment have a weakened immune system, meaning they will find it more difficult to fight infections. [1] Comprehensive advice for parents has been compiled by experts and disseminated through the UKs Children’s Cancer and Leukaemia Group (CCLG).[1] However, we urgently need to increase our understanding of evolving experiences, information needs and decision-making of these families under these extraordinarily stressful circumstances. Only through investigating parents’/main carers’ experiences and needs will we be able to tailor and provide the right support, in terms of guidance, information updates, and online interventions to reduce distress and anxiety. Supporting decision-making Children and young people undergoing treatment face ongoing compromises to their immune system, which forces families to manage infection risks regularly. Decision-making under these threatening circumstances needs to be well understood. Furthermore, we know that parents and health professionals differ in terms of what underpins their decision-making. For example, when making decisions related to treatment for febrile neutropenia (with an increased risk of infection) parents value and assess quality of life, fear, and comfort differently to health professionals.[2] During the COVID-19 outbreak, children undergoing cancer treatment are perceived to be more at risk, and thus families will need to assess the information they receive and continue to make decisions in a changing environment. In addition, information provision through established media outlets and social media is constant and everchanging, and not always reliable. This illustrates the importance of investigating children’s and parents perspectives and experiences. Decision-making involves the uptake of information relating to benefits, risks, and uncertainties, but most importantly, this is guided by values and preferences.[3]Families have to construct them in the moment of decision making, based on the available information.[4] When information changes, choices change, producing inconsistencies and difficulties.[5] Again, congruence between families’ preferences, values and changing experiences need to be understood to allow them to make the best decisions in looking after their children. Without this data we will not be able to support them, nor advocate for them on a broader level. Reducing anxiety and stress Families across the country are worried; a rapid systematic review of the experience of families under quarantine for recent severe respiratory viruses (SARS, MERS) shows very high levels of traumatic distress.[6] This has led to the development of support materials and interventions: a book for children ‘Dave the Dog is worried about coronavirus’ developed by clinicians,[7] guidance developed by the Universities of Reading and Oxford to support children and young people.[8], and general guidance to manage anxiety for young people, developed by psychologists.[9]. Children with cancer and their families are particularly worried as their child is particularly vulnerable. A 6-week online intervention, iHOPE, [10,11] providing psychoeducation targeted at the parents of children who have cancer has been piloted, and an evaluation of opening greater access to this programme is planned. Many other support services, generally delivered by face to face meetings and group sessions, are transitioning to an online delivery. These will not be strictly ‘programmatic’ and may be ongoing. During this period of implementation of this resource into the health service, there is a need to simply evaluate its effectiveness, by introducing a short assessment of anxiety and stress before and after the delivery of the intervention. The current study proposes to ask parents to complete a short (to minimise burden) validated questionnaire before and after the intervention. Research Aim and Objectives The study will consist of two work packages (WPs). The aims of WP 1 are 1) to explore experiences, information and support needs and decision-making, and 2) to explore how these change over time as the situation with COVID-19 evolves. The aim of WP 2 is to evaluate whether proposed online interventions to support families reduce anxiety and stress. Research publication: COVID-19: experiences of lockdown and support needs in children and young adults with kidney conditions Yincent Tse, Anne-Sophie E. Darlington, Kay Tyerman, Dean Wallace, Tanya Pankhurst, Sofia Chantziara, David Culliford, Alejandra Recio-Saucedo & Arvind Nagra COVID‐19 and children with cancer: Parents’ experiences, anxieties and support needs Anne‐Sophie E. Darlington, Jessica E. Morgan, Richard Wagland, Samantha C. Sodergren, David Culliford, Ashley Gamble, Bob Phillips

Latest news News heath research Search ARC Update newsletter Summer 2024 Welcome back Great to be back after the summer break for some. We have lots of exciting news to share, and plenty of... Temporary nurses don’t mitigate deaths linked to staff shortages A new study led by the University of Southampton has found that using temporary nursing staff to fill rotas only partially combats an... FoMo, Periods, Vaping and Vaccines – What do young people want Health researchers to look into? When it comes to research, particularly health research, people often imagine people in white coats in laboratories and test tubes. While... Research team awarded £2.4 million to help people with multiple long-term conditions stay well About 7 million people in the UK live with more than one health condition. It can often be difficult for those people to get the right... What do we know about frailty? Dr Carole Fogg a Senior Lecturer at the University of Portsmouth and Portsmouth Hospitals NHS Trust has been working with colleagues to... Our summer event - June 2024 In June we held our yearly ARC Wessex event, bringing together researchers from across the region and the people who support our health... Helen's story: Caring for someone with a dual diagnosis of dementia and paranoid schizophrenia Helen Sloan is a public contributor for the ARC Wessex Mental Health Research Hub and Social Care. She has written beautiful blogs about... ARC Wessex update - Spring 2024 More money, Long Covid and digital help, safety in numbers for nursing, cutting down on meds Alzheimer's Society give £370,000 to extend dementia research The Alzheimer’s Society and NIHR have come together to host a three-day event for existing DEM-COMM fellows. During the event, teams... Unique research collaboration highlights innovative approaches for post-pandemic healthcare A new report outlines the findings of 14 projects which identified and tested promising innovations to support post-pandemic ways of... ARC Wessex welcomes Implementation lead in joint role with Health Innovation Wessex Philippa Darnton has been appointed to the role of Director of Insight for Health Innovation Wessex, following a period leading the... Online tool for Long Covid support A website to support people living with Long Covid was launched in March on Long Covid Awareness Day by a research team led by a... Is it cost-effective to deploy more nurses on hospital wards? A new publication by researchers at NIHR ARC Wessex based at the University of Southampton has examined evidence from over five thousand... ARC Wessex given more than £3 million to extend work until 2026 The National Institute for Health and Care Research (NIHR) has extended the work of NIHR ARC Wessex for 18 months, allowing the ARC to... Award for ADHD Professor Samuel Cortese Professor Samuele Cortese, is based at the University of Southampton. His research topic with ARC Wessex is looking at personalising... £6million added to dementia research The ARCs have been successful in obtaining another £6million to help improve the lives of people living with dementia, their families and... We have a new Deputy Director - Professor Cathy Bowen Professor Catherine Bowen has been selected as the ARC Wessex Deputy Director to support our programme of research and capacity... Scientists want to know how the cost-of-living crisis effects you People have been feeling the pinch with higher interest rates, bills and food costs over the last year. In Hampshire, Dorset and the Isle... 1 2 3 4 5

Wed, Oct 09 | Chilworth DALLI toolkit launch - Domestic Abuse and Life Limiting Illness Enhancing the identification and response to domestic abuse for people living with a life-limiting illness: The DALLI Toolkit Time & Location Oct 09, 2024, 1:00 PM – 2:00 PM Chilworth, 3 Venture Rd, Chilworth, Southampton SO16 7NP, UK About the event OR via MS Teams Please click here for more details and to register You are invited to the launch event for the DALLI Toolkit – a resource developed by researchers at the University of Southampton and NIHR Applied Collaboration Wessex in partnership with health and social care professionals, victim-survivors, and specialist domestic abuse organisations - to provide information and practical suggestions for identifying and responding to domestic abuse experienced by people living with a life-limiting illness. The Toolkit is designed for those working in hospice and palliative care services, as well as local authorities, the third sector and anyone who provides care or support to those living with a terminal illness and approaching end of life. The event is an opportunity to find out more about the Toolkit, learn how it can support you in your practice and professional role and hear from a victim-survivor. It is also a chance to see the first screening of the DALLI Toolkit film. For further information please email: dalli@soton.ac.uk Please note : the event will contain content describing domestic abuse in the context of life-limiting illness. Hearing about this can be difficult, so please feel free to step away during at any time if you need to. If you are affected by abuse, you are not alone, and people are ready to listen and help. You can contact the National Domestic Abuse Helpline on 0808 2000 247 anytime. You can also webchat with an advisor Mon-Fri, 3-10pm on https://www.nationaldahelpline.org.uk/en/Chat-to-us-online . Show More Share this event