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Mental Health Hub We focused on addressing areas of mental ill health linked to our deprived rural and coastal communities: neurodevelopmental conditions (e.g. attention-deficit hyperactivity disorder), treatment resistant anxiety-depression, addiction (alcohol and gambling); as well as supporting front line workers (addressing knowledge gaps in paramedics, social prescribing framework for link workers). Building on our prior work we have: Increased involvement of public and people affected by mental health issues in mental health research. For example, we now have in excess of 300 public contributors per year who have joined our gambling research database via our digital tool and have established a gambling Lived Experience Advisory Group (LEAG) that has already contributed substantially to grant applications and informing service improvements. Increased our joint working with our Mental Health Public Advisor, into multiple extension research projects and regional grant submissions, contributing to a successful application for NIHR Advanced Fellowship and application to ARC competition. Expanded PPIE activities via our partnership with Raising Voices in Research (RViR). For example, an innovative scheme has matched voluntary and charity organisations with researchers, covering marginalised groups such as older adults, military veterans, men with mental health conditions, and young neurodiverse people. Discovered new important findings for treatment of ADHD; notably the finding (paper submitted) that ADHD with co-morbid autism responds preferentially to a particular type of medication (atomoxetine). Secured additional funding to sustain research in areas of focus. For example, the AUD in Older Adults project has led to a Leverhulme/British Academy research grant (“Alcohol Research? No thanks”), a University of Southampton seed award (“Our Voice Matters: Older People, Stigma & Alcohol”), and Accelerated Knowledge Transfer (AKT-4) grant (“Evaluation of VCia’s Capital Card Scheme”). In addition, secured three UKRI rapid evidence review grants, and a Partnership grant, for research into gambling-related harms. Our research projects Developing Pathways for older adults who are also drinking at increased-risk levels: Hampshire Older adults Alcohol Pathway (HOAAP) Read more Gambling and Alcohol Use Addiction in Military Veterans Read more Comparative Effectiveness of Methylphenidate vs. Second‑ and Third‑Line Medications for Children with Attention- Deficit/Hyperactivity Disorder and Autism Read more Social Prescribing Link Workers framework: supporting complex needs of adults living with physical and mental health long term conditions Read more Identifying the knowledge gaps of paramedics managing patients with mental health issues Read more ADOPTED: Gambling in the UK: An analysis of data from individuals seeking treatment at the NHS Southern Gambling Service Read more Understanding psychosocial determinants of alcohol use disorder (AUD) in older adults: exploring the role of social networks and loneliness in living with AUD (OLA study 2). Read more Development of a core outcome set for nurse wellbeing: a Delphi study Read more Work lives and Wellbeing of Mental Health Nursing Workforce Read more Understanding, addressing, and meeting the complex needs of people living with long term physical and mental health conditions: a qualitative study Read more Pharmacological And Non-Pharmacological treatment of ADHD in Pre-schoolers: a systematic review and network meta-analysis: the PANPAP study Read more Adolescent Resilience to OVercome Adversity: EmpoweRment and intervention development – the ROVER study Read more Mental health Burden of Increased Living costs: Local Support (My BILLS) Read more Understanding the psychosocial needs and trajectories of older adults (>64 years) with alcohol use disorder (AUD) from hospital back into community Read more Mental health projects

Ageing & Dementia The Ageing and Dementia theme undertook a broad portfolio of research aimed at improving the health, care, and quality of life of older adults and people living with dementia across Wessex and beyond. The theme was led by Stephen Lim with Dr Kinda Ibrahim as deputy theme lead Our work spanned the development and evaluation of novel interventions, as well as the use of routinely collected data to understand how healthcare services can be organised more efficiently and deliver higher‑quality care. Neuro Digital and Neuro Online studies generated new insights into the factors that influence engagement with digital health technologies among people living with neurological conditions and dementia. This work is helping to shape more inclusive and accessible digital health solutions. We have also delivered innovative interventions that mobilise volunteers to support older adults in both community and hospital settings, helping them remain active and prevent functional decline. The ImPACt study successfully implemented an online intervention across seven community clubs in Hampshire and Dorset, which has since been adopted as routine practice by Brendoncare community clubs. The PIVOT study demonstrated the feasibility of volunteer‑led physical activity programmes across three NHS trusts in England, and plans are underway to secure further funding to expand this model nationally. The IDA study strengthened partnerships with NHS trusts and third‑sector organisations to disseminate the Active Lives digital intervention, designed to support older adults in increasing their physical activity. Through collaboration with six NHS trusts and four third‑sector organisations across the South of England, Active Lives reached 5,002 older adults, significantly extending its impact. Through the STOP-DEM project, we generated new evidence on how deprescribing can be undertaken safely and acceptably, with meaningful involvement of patients and carers. Findings have influenced clinical education, professional practice, and policy discussions locally and nationally. Research outputs have been embedded into undergraduate and postgraduate healthcare teaching through a co-produced short film, reached frontline clinicians through NHS and Royal College events, and informed national conversations on medicines optimisation via policy briefings and parliamentary roundtables. Widespread media coverage has further raised public and professional awareness of deprescribing in dementia. Research projects Adopted Project: ACCESS D: Advancing Community Collaboration and Engagement Strategies in Dementia Read more ARC Wessex programme of research on Medicines Optimisation (MODIFY SPiDeR STOP-DEM) Read more Refinement of an eFalls tool - a multivariable prediction model for the risk of ED attendance or in-hospital fall or fracture in individuals accessing mental health or learning disability services - eFalls Read more ADOPTED: Understanding how and why live-in care packages are arranged and sustained, when dementia is the primary support need: A mixed methods study. Read more Developing Pathways for older adults who are also drinking at increased-risk levels: Hampshire Older adults Alcohol Pathway (HOAAP) Read more ADOPTED PROJECT: Neuro LTC: Assessing Baseline Factors, Critical Events and Fatigue in Long Term Neurological Conditions Read more EnTech (Enabling Technology): Investigating the enabling and inhibiting factors to the use of internet-based support tools for caregivers of people with dementia, and how to promote engagement. Read more The feasibility and acceptability of a collaborative deprescribing intervention to reduce anticholinergic burden among hospitalised older patients. Digital Anticholinergic Reduction Tool (DART) Read more Understanding the Networks, Effects and Teams involved in Community Alternatives to ACute Hospitalisation for Older People in Hampshire and Isle of Wight Region – CAtCH-NET Read more ADOPTED: Mobility assessments in hospitalised older adults: study protocol for an e-survey of UK healthcare professionals Read more ADOPTED: An observational longitudinal cohort study to investigate Cortical Disarray Measurement in Mild Cognitive Impairment and Alzheimer’s disease (CONGA) Read more ADOPTED: (SIFT) Sensors in Fatigue Tracking in Parkinson’s. Exploring the relationship between perception of Fatigue and the performance of physical activities in people with Parkinson's with fatigue using wearable sensors Read more Development, evaluation and provision of an intervention for primary and community NHS staff to help carers and homecare workers supporting people living at home with dementia with their continence. Read more ADOPTED: FLOWS Planning for Frailty: Optimal Health and Social Care Workforce Organisation Using Demand-led Simulation Modelling Read more PIVOT: Promoting Increased physical actiVity in hospitalised Older adults with Trained volunteers Read more ADOPTED: SPLENDID Social Prescribing for people to Live ENjoyably with Dementia/memory problems In Daily life Read more ADOPTED: Community Alternatives to aCute Hospitalisation for Older People who have Fallen (CAtCH-Falls) Read more Wessex Frail2Fit – A feasibility and acceptability study of a virtual multi-modal intervention delivered by volunteers to improve functional outcomes of older adults with COVID-19 discharged from hospital Read more Developing training for person-centred care: adapting the Chat & Plan for use in domiciliary care Read more ADOPTED PROJECT: Geospatial mapping of emergency calls from older adults to ambulance services in the South Central region, with a focus on people living with dementia: a feasibility study. Read more Understanding psychosocial determinants of alcohol use disorder (AUD) in older adults: exploring the role of social networks and loneliness in living with AUD (OLA study 2). Read more ADOPTED PROJECT: Optimising Outpatients: Effective service transformation through face-to-face, remote and digital care delivery Read more Development of a structured deprescribing intervention for people with dementia or mild cognitive impairment in primary care (STOP-DEM) Read more Development, evaluation and provision of an intervention for primary and community NHS staff to help carers and homecare workers supporting people living at home with dementia with their continence. Read more ADOPTED: Incidental Interaction: Novel Technology to Support Elders-as-Athletes through Augmenting Everyday Interactions Read more Wessex NHS Insights Prioritisation Programme Project (NIPP) Read more ADOPTED: Investigating Quality of Care for People with Dementia Undergoing Cancer Treatment in Ambulatory Care (ImPaCT) Read more Creating Learning Environments for Compassionate Care (CLECC) in mental health settings: an implementation study Read more Promoting person-centred care using the CHAT&PLAN conversation guide Read more INVOLVing pEople with cognitive impaiRment in decisions about their hospital nursing care (INVOLVER): a pilot study Read more Neuro Digital: From Attitudes to Strategies Read more Neuro Online (Formerly From Clinic to E-Clinic): Evaluating the Implementation of the My Medical Record Platform in Young-Onset Dementia and Huntington’s Disease. Read more IDA: Implementing a Digital physical Activity intervention for older adults Read more The ImPACt study - Improving physical activity of older people in the community Read more CLECC Toolkit and background: Creating Learning Environments for Compassionate Care (CLECC) Read more StOP UTI project: Strategies in older people's care settings to prevent infection Read more Understanding the psychosocial needs and trajectories of older adults (>64 years) with alcohol use disorder (AUD) from hospital back into community Read more The PD Life Study: Exploring the treatment burden and capacity of people with Parkinson’s and their caregivers Read more DIALOR: DIgitAL cOaching for fRailty (DIALOR) Read more Material Citizenship Framework Project Read more Mental health hub projects Understanding the psychosocial needs and trajectories of older adults (>64 years) with alcohol use disorder (AUD) from hospital back into community Read more Publications Read our publications here. 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Healthy Communities Healthy Communities Theme The health of people across our communities faces a number of challenges from the start of someone’s life until the end – our research teams are addressing inequalities, diet, domestic violence and a wide range of issues that touch on everyone’s lives in particular those in more vulnerable and underserved populations. Research projects ARC Wessex programme of research on Medicines Optimisation (MODIFY SPiDeR STOP-DEM) Read more ADOPTED PROJECT: Exploratory research to examine the health impact of scams and fraud and the current knowledge and systems in the police and partner agencies for targeting and delivering victim support services Read more ADOPTED: DASA - Domestic abuse and housing: local authorities' provision of safe accommodation for adults living with disabilities and/or long-term/life-limiting illness: a mixed-methods study Read more ADOPTED: CEDA ‘Making the invisible visible’: identifying and responding to unpaid carers who experience domestic abuse from end-of-life care recipients Read more ADOPTED PROJECT: Evaluating the Operation Encompass Scheme: A Qualitative Scoping Study Read more ADOPTED: IneQUIty in end of life care for children: Investigating experiences and families’ Needs after sudden and unexpecTEd deaTh in children and young people – the QUINTET study Read more Determining the effectiveness and outcomes of innovative interventions for people who have used stalking behaviours: An extension of the exploration of the Hampshire & Isle of Wight Multi-Agency Stalking Partnership (MASP) Read more A qualitative case study to understand Young people’s food purchasing patterns in CONvenience stores in the school neighbourhood environment (Y-CON) Read more ENRICHER-C: Involvement in the criminal justice system & the impact on women's health in Dorset & Hampshire – Community comparison Read more Developing a core cohort of community researchers in Wessex: towards a sustainable Wessex Community of Practice for public health research co-production Read more WADE. Women and Desistence Engagement : An evaluation of a community-based, conditional caution pilot programme for women in the criminal justice system Read more Motivating and sustaining engagement of young people in improving their health and that of their communities Read more ADOPTED: Investigating the impact of food vouchers on diet composition and the prevention of childhood obesity Read more ADOPTED: Community pharmacy alcohol-related liver disease risk identification and linkage to care through development of a complex intervention (CIP-LINC) Read more Qualitative Data Preservation and Sharing (Q-DaPS) Read more ADOPTED: Exploratory research to examine the health impact of scams and fraud and the current knowledge and systems in the police and partner agencies for targeting and delivering victim support services Read more Co-POWeR - Consortium on Practices of Wellbeing and Resilience in BAME Families and Communities Read more Testing the effects of food product placement on customers’ visual attention and intended product purchases: a randomised trial in a virtual supermarket setting (Phase II) Read more Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways (STIMULATE) Read more ADOPTED: Mapping pathways of response for adult and child victim-survivors of domestic abuse in Southampton City Read more ENRICHER – involvEment iN the cRiminal justice system & the ImpaCt on women’s Health dorsEt & hampshiRe Read more CHAMPION: Children whose mothers are involved in the criminal justice system in Dorset & Hampshire: developing health and social care outcome indicators Read more How to Support children with cancer, or another serious condition, and their parents during the COVID-19 outbreak Read more Developing a web resource to support families bereaved during COVID-19 Read more Mental health Burden of Increased Living costs: Local Support (My BILLS) Read more ADOPTED PROJECT: Young people’s barriers to mental health services Read more POST DOCTORAL PROJECT: Early detection of chronic liver disease in community settings Read more ADOPTED PROJECT: Comparing pharmacological and non-pharmacological interventions for adults with Attention-Deficit/Hyperactivity Disorder (ADHD): systematic review and network meta-analysis Read more ADOPTED PROJECT: ADAPT: The cross-sector implementation of NICE-recommended CBT-based interventions for young people in care: Framework Read more ADOPTED PROJECT: DIGNIFIE Gender-seNsitive evaluatIon oF a prIson alternativE Read more ADOPTED PROJECT: High Harm Domestic Violence Perpetrator Pilot Evaluation Read more ADOPTED PROJECT: The Gateway Study a randomised controlled trial, economic and qualitative evaluation to examine the effectiveness of an out-of-court community-based Gateway intervention programme aimed at improving health and well-being for young adult offenders; victim satisfaction and reducing recidivism Read more Social network facilitated engagement in people who are Homeless to address InEqualities in alcohol related Liver Disease - The SHIELD feasibility study Read more A national evaluation of Project Cautioning And Relationship Abuse (‘CARA’) awareness raising workshops for first time offenders of domestic violence and abuse Read more Wessex DIET: Determining the Impact of covid-19 on food sEcurity in young families and Testing interventions Read more Domestic Abuse and Life-Limiting Illness: identifying and supporting adults at risk (DALLI Study) Read more Prevention schemes for female vicitms and offenders in Hampshire and Dorset Read more GOODNIGHT Covid-19 to care-home-based vulnerable individuals Read more The feasibility of community pharmacies testing for Hepatitis C in people who inject image and performance enhancing drugs Read more Testing the effects of food product placement on customers’ visual attention and intended product purchases: a randomised trial in a virtual supermarket setting (Phase I) Read more The Wessex FRIEND Toolbox (Family Risk IdEntificatioN and Decision) Read more Mental health hub projects Adolescent Resilience to OVercome Adversity: EmpoweRment and intervention development – the ROVER study Read more Pharmacological And Non-Pharmacological treatment of ADHD in Pre-schoolers: a systematic review and network meta-analysis: the PANPAP study Read more Read our publications here Read more Publications

596abb82-50f3-40e1-8d8d-a89073038260 ADOPTED: DASA - Domestic abuse and housing: local authorities' provision of safe accommodation for adults living with disabilities and/or long-term/life-limiting illness: a mixed-methods study Principal Investigator: Dr Michelle Myall , School of Health Sciences, University of Southampton. Team: Dr Sophia Taylor and Dr Susi Lund , School of Health Sciences, University of Southampton. Professor Parveen Ali University of Sheffield. Professor Lee-Ann Fenge Bournemouth University Mrs Samantha Dawson, Body Positive Dorset - Public and Patient Contributor Summary In 2025 an estimated 3.8 million adults experienced domestic abuse in England and Wales. Some people are at increased risk because of additional inequalities, vulnerabilities, and other factors. This includes adults with complex health and social care needs such as those living with physical disabilities and long-term/life-limiting illnesses. In April 2021 the Domestic Abuse Act was introduced in England. This created a new definition of domestic abuse to include any incidents of controlling, coercive, or threatening behaviour, violence or abuse between those aged 16 or over, who are or have been, intimate partners or family members regardless of gender or sexuality. Domestic abuse also includes psychological, physical, sexual, financial and emotional abuse. Domestic abuse can happen to anyone and is a leading cause of homelessness. Under Part 4 of the Domestic Abuse Act 2021, housing law in England has been strengthened to ensure that individuals who are made homeless as a result of domestic abuse are automatically granted priority need for accommodation. The Act also places a duty on Local Authorities to provide support within safe accommodation and alternatives to refuge provision. Refuges are not suitable for all victim-survivors, particularly those who have additional and specific health and care needs. There is little research on the housing needs of domestic abuse victim-survivors with physical disabilities, long-term conditions or life-limiting illnesses. Understanding the requirements of these groups and how local authorities are meeting their responsibilities under the Domestic Abuse Act is important and timely. What are the study aims? Working with people with lived experience, local authorities, and domestic abuse organisations we aim to: 1) identify and explore the experiences of victim-survivors living with a physical disability and/or long-term/life-limiting illness affected by domestic abuse and 2) understand how local authorities are meeting their responsibilities in providing safe accommodation and prioritising those made homeless because of domestic abuse. We will explore what local authorities already provide and how they are responding to the requirements of The Domestic Abuse Act. We will review published research and policies, map existing housing provision, and undertake interviews with key stakeholders. To ensure the voices of people with lived experience are included and listened to, we will hold creative workshops, using art, poetry or stories to explore their experiences. Findings will be used to develop a toolkit for local authorities and their partners to inform practice and improve user experience. What will happen to the study findings? We will work with our project partners and people with lived experience to identify who we need to engage and how to reach them. We will hold an event at the end of the study to share findings with stakeholders. Findings will be reported on social media for the wider public, and attendance at conferences and publications in academic and professional journals.

Workforce & Health Systems Theme lead Professor Michael Boniface Theme lead Deputy theme leads Dr Dan Burns Health Systems Dr Chiara Dall'ora Workforce Workforce & Health Systems Theme We know that the health workforce are an asset and in short supply. As part of our ARC research we are planning a series of studies. We will look at the best ways for staff to work - for example where and when. We also want to improve conditions - in part by ensuring they have time to do the jobs we are asking them to do. Cultivating a flow of pioneering ideas that offer the potential to transform people's lives and the economy using information technology is a motivating force that drives us. Our capacity to rapidly turn these ideas into benefits for partners through collaborative, applied research and innovation makes Southampton a truly exciting place to be. Research projects ADOPTED ActMed-VW - Healthcare professional's experiences of Access to Medication for people on Virtual Wards who are in their last year of life Read more ADOPTED PROJECT - PREMAC 2 STUDY Development and application of Patient Report Experience Measure for patients accessing ACute oncology services: Read more Implementation and Evaluation of the Advanced Practice Research Toolkit Read more Adopted Project: Paramedic delivery of end-of-life care (PARAID) Study Read more PROCED-DST: PROactive, Collaborative and Efficient complex Discharge – Decision Support Tool Read more FORTH – FORecasting Turbulence in Hospitals Read more Predicting nurse staffing requirements -validation and scoping extension study (PREDICT-NURSE validation and extension) Read more Identifying the knowledge gaps of paramedics managing patients with mental health issues Read more Wessex SNSDE Study (SETT Centre) Read more ADOPTED (PhD): PREPARE-to-ACT study: Preparing for and Responding to Emergencies – A multi-phased qualitative investigation of Patients’ And members of their RElational networks’ decisions to use urgent and emergency care during Anti-Cancer Treatment Read more PUNDIT – Predicting hospital Usage Numbers via a DIgital Twin Read more ADOPTED: A Study to Evaluate the Introduction of new Staffing Models in Intensive Care: a Realist evaluation (SEISMIC-R) Read more PREDICT-NURSE – feasibility: Predicting Patient Acuity/Dependency-Based Workload from Routinely Collected Data to Assist with Nursing Staff Planning – feasibility study Read more ADOPTED: Nurture-U (Southampton): A longitudinal survey for student metal health and wellbeing Read more ADOPTED: FLOWS Planning for Frailty: Optimal Health and Social Care Workforce Organisation Using Demand-led Simulation Modelling Read more ADOPTED: SORT-IT (Salisbury Operational Research Track – Improving Together) Read more Workforce Evaluation Toolkit project (WET) Read more ADOPTED: Social Prescribers In Deprescribing Role (SPiDeR) Read more ADOPTED: Improving patient safety, workforce wellbeing and NHS efficiency through improved shift patterns for nursing staff: study protocol Read more PARIEDA - Prediction of Acute Respiratory Infection outcomes prior to Emergency Department Attendance Read more ADOPTED PROJECT: Geospatial mapping of emergency calls from older adults to ambulance services in the South Central region, with a focus on people living with dementia: a feasibility study. Read more Predicting Patient Deterioration Risks in COMMunities Read more ADOPTED PROJECT: Developing and testing a Patient Report Experience Measure for patients accessing Acute OnCology services: The PREMAC study Read more ADOPTED: Consequences, costs and cost-effectiveness of different workforce configurations in English acute hospitals: a longitudinal retrospective study using routinely collected data Read more POST DOCTORAL PROJECT: The career aspirations of nurses working in the research delivery workforce: a cross-sectional survey Read more ADOPTED PROJECT: Magnet4Europe: Improving mental health and wellbeing in the health care workplace Read more PROCED: PROactive, Collaborative and Efficient complex Discharge Read more Mental Health, Workforce and Well-being Research Framework - ARC Collaboration Read more Safer Nursing Care Tool and nurse staffing requirements Read more Shift Pattern Feasibility Read more Improving community health care planning Read more CLECC Toolkit and background: Creating Learning Environments for Compassionate Care (CLECC) Read more COVID-19 Emergency Department Project Read more Mental health hub projects Work lives and Wellbeing of Mental Health Nursing Workforce Read more Development of a core outcome set for mental health nurse wellbeing: a Delphi study Read more Read our publications here Read more Publications Access our evidence brief here Read more Evidence briefs Reports, toolkits and support Find the information and tools to improve your work here Read more

Growing social care research capacity Professor Lee-Ann Fenge Social Care lead Social care touches every family in Britain, yet there is a paucity of social care research and historically limited access to the research infrastructure that shapes NHS and social care practice. The NIHR Applied Research Collaboration (ARC) Wessex Social Care Programme was created to change this. Our overarching aim was to build the skills, confidence and partnerships that allow social-care staff, carers and local organisations to use research to improve people’s lives. Working with local authorities, voluntary groups and unpaid carers across Wessex, the programme supports the DHSC vision for a fairer, more integrated system that helps people to live well at home for longer. Research champions funded within three local authorities (BCP, Dorset and Portsmouth City Council) and with voluntary sector organisations including MYTIME , and Help and Care have supported a culture of research engagement across the workforce in these organisations, including through facilitation of journal clubs, joint publications with academics and involvement in research projects. Adults Services within BCP Council have now adopted the research champion model across all of their adults teams as part of their workforce development strategy. Driving Improvement in Services and Local Policy The programme’s practical studies have directly improved service; from staff training on inclusive communication to the redesign of community engagement and recruitment practices. Co-produced publications in leading social-work journals and presentations to professional conferences are spreading these lessons nationally. We have also contributed to national ARC Social Care events to share learning. Building Skills and Confidence in the Workforce - More than 40 social care professionals have received structured research training through internships, fellowships and the new REAL (Research, Evaluation, Audit and Literature) Course co-designed with Hampshire County Council, and participants are already leading improvement projects - evaluating recruitment practices, developing databases of community activities and strengthening induction and mentoring for new staff. Feedback shows greater confidence, better use of evidence in daily decision-making and stronger retention through professional pride. Joint projects between universities and councils have changed how services are planned and delivered for example: Day Services for Adults with Learning Disabilities research informed Hampshire County Council’s strategic plan. In Portsmouth the Single-Handed Care Review enabled efficiency savings while maintaining safety and quality. Research Champions and a Researcher in Residence worked with voluntary organisations including Help and Care and MYTIME to explore the needs of unpaid carers, including young carers and those supporting a loved one waiting for a dementia diagnosis known as the Waiting Well Project which included an exhibition at Poole Arts Centre in January -February 2026 highlighting the challenges carers face. Our research projects SOCIAL CARE: Building Bridges: Elevating Research Culture in Social Care through Collaboration, Qualitative Insight and Relationship-Driven Impact Read more ADOPTED: FLOWS Planning for Frailty: Optimal Health and Social Care Workforce Organisation Using Demand-led Simulation Modelling Read more SOCIAL CARE: Evaluation of Southampton City Council’s Male Engagement Worker (MEW) Project Read more SOCIAL CARE: Building capacity in social care through co-produced research and a research learning partnership between University of Portsmouth and Portsmouth City Council Read more SOCIAL CARE: Local Authority Adult Social Care Recruitment and Retention research project (BCP/Dorset) Read more Dorset projecr

Long Term Conditions Long Term Conditions Theme The Long Term Conditions (LTC) Theme, led by Professor Mari Carmen Portillo with Deputy Lead Dr Dorit Kunkel, delivered a broad programme of research and implementation designed to improve the lives of people living with long‑term conditions and multiple long‑term conditions. The theme’s work spanned deprescribing, medicines optimisation, treatment burden, physical activity, service improvement, co‑production, and person‑centred care. A major area of impact is medication deprescribing and optimisation. The MODIFY project has significantly enhanced safety and quality of life for frail older adults by adopting a structured, multidisciplinary approach to medication reviews. It supports clinicians through training, tools, and collaborative working models, and is now embedded within wider system initiatives such as the Wessex Health Innovation Network’s Polypharmacy Action Learning Sets . Public engagement activities—including creative outputs like a deprescribing song—have helped raise awareness and encouraged culture change in medicines optimisation. Further medicines‑related research has identified ongoing risks related to inappropriate prescribing of anti-inflammatory painkillers for older adults and those with conditions such as kidney or heart disease. A GP‑focused risk‑identification tool was developed to address this. Another study highlighted that many people on disease‑modifying drugs undergo high‑frequency monitoring despite long‑term normal results, suggesting opportunities to reduce unnecessary burden and NHS workload. The Treatment Burden Study , involving more than 800 Dorset adults, showed that high burden is common and often driven by lifestyle challenges, appointment access, financial pressure, and complex medication regimens. Its follow‑on project, SPELL, produced short, practical measures for clinical use. The findings also informed improvements for Care Coordinators in Southampton, enabling them to better identify and support individuals struggling with their conditions while reducing demand on GP time. The theme optimised community‑based support systems, developing a Link Worker framework for social prescribing and piloting the LifeBoost app to guide people with LTCs to personalised resources. The European Optim Park project expanded access to Parkinson’s support via the REPISALUD directory, now used internationally. Policy influence is another key outcome. Research on COVID‑19, physical activity, and mental health has shaped recommendations adopted by bodies including Sweden's Health Technology Assessment Agency and the European Commission. Findings from Optim Park have informed NICE guideline NG252. Additional impacts include shaping national and international understanding of Huntington’s disease care needs, advancing person‑centred assessment tools such as the Living with Long Term Conditions Scale, and contributing to workforce development through the Wessex Academy of Skills in Personalised Care , which has trained more than 1,500 professionals. Finally, work on physical activity maintenance has expanded understanding of the barriers and enablers affecting digital health engagement among NHS staff, strengthening regional partnerships. Research projects ARC Wessex programme of research on Medicines Optimisation (MODIFY SPiDeR STOP-DEM) Read more ADOPTED: Personalised social and self-management support for better living with multiple long-term conditions in the community (CO-ACTION) Read more Social Prescribing Link Workers framework: supporting complex needs of adults living with physical and mental health long term conditions Read more Evaluating impact of personalised care at service at service and system levels: Learning from the Wessex Academy for Skills in Personalised Care (WASP) programme. Read more Understanding barriers and enablers of using the Living with Long Term Conditions scale as part of routine care for people from under-served groups living with type 2 diabetes Read more PARTNERS II: Testing implementation and evaluation of a digital tool for multisectoral support and management of people living with Parkinson’s disease and/or arthritis. Read more Avoiding care escalations through targeted care coordination for people with multiple long-term conditions – a knowledge mobilisation project Read more Deprescribing and Optimisation of Medicines IN Older people with Heart Failure and Frailty (DOMINO-HFF) Read more Change in treatment burden among people with multimorbidity: Protocol of a follow up survey and development of efficient measurement tools for primary care Read more ADOPTED: Treatment burden in people below the age of 65 with multimorbidity in primary care: A mixed methods (SPELL) Read more ADOPTED: (SIFT) Sensors in Fatigue Tracking in Parkinson’s. Exploring the relationship between perception of Fatigue and the performance of physical activities in people with Parkinson's with fatigue using wearable sensors Read more Reframing responsibility through public empowerment: examining environmental cues influencing poor diet Read more Non-digital support for maintaining physical activity in people with long-term conditions – within Maintenance Of physical acTivity beHaviour (MOTH) programme Read more Digital support for maintaining physical activity in people with long-term conditions Read more Development of policy recommendations to reduce the impact of COVID-19 on physical activity and mental health in individuals with multimorbidity: a mixed method study. Read more ADOPTED PROJECT: Understanding risk stratification of patients with chronic kidney disease (CKD) in primary care Read more ADOPTED PROJECT: Development of a decision aid for offloading device selection for people with diabetic foot ulceratio Read more ADOPTED PROJECT: Breast Cancer Choices: Evaluation and implementation of a digital patient-centred decision aid to support genetic testing in mainstream care. Read more ADOPTED PROJECT: Multidisciplinary Ecosystem to study Lifecourse Determinants and Prevention of Early-onset Burdensome Multimorbidity (MELD-B) Read more ADOPTED PROJECT: MELD Read more POST DOCTORAL PROJECT: Understanding, addressing, and meeting the complex needs of people living with long term physical and mental health conditions: a qualitative study Read more Testing the living with chronic illness scale Read more Medicines optimisation Read more Interventions to support physical activity for adults (MOTH) Read more MODIFY: The development and iMplementation Of a multidisciplinary medication review and Deprescribing Intervention among Frail older people in primarY care Read more PARTNERS Project: Development and implementation of a digital tool for multisectoral support and management of long-term condition Read more ADOPTED PROJECT: EnablExercise in Crohns: A qualitativE study to uNderstAnd the Barriers and faciLitators to physical activity and Exercise IN children and adolescents with CROHN’S disease Read more ADOPTED PROJECT: ExACT-CF: Exercise as an Airway Clearance Technique in people with Cystic Fibrosis – A randomised pilot trial Read more ADOPTED PROJECT: Happier Feet Read more OPTIM Park - Optimization of community resources and systems of support to enhance the process of living with Parkinson’s Disease: a multisectoral intervention Read more Improving support for self-management (WASP) Read more Mental health hub projects Understanding, addressing, and meeting the complex needs of people living with long term physical and mental health conditions: a qualitative study Read more Role of patient-assessed functioning as a predictor of health service use in patients with long term mental health conditions Read more Read our publications here Read more Publications Collaborative project: Improving review appointments for people with long-term conditions

Research Fellow < Back Francesca Zecchinato Research Fellow Workforce & Health Systems Francesca Zecchinato is a recently appointed Research Fellow within the NIHR ARC Wessex Mental Health Hub at the University of Southampton. In her current role, she is working on a mixed-methods project to identify knowledge gaps among paramedics in managing patients presenting mental health conditions. This work aims to enhance the quality of mental health care provided to patients, improve patient experiences, and offer better support for paramedics. Francesca holds a BSc in Cognitive Psychology and Psychobiology (cum laude) and a MSc in Clinical Psychology (cum laude) from the University of Padova (Italy). She has completed her PhD at the Centre for Innovation in Mental Health, School of Psychology, University of Southampton, funded by the ESRC South Coast DTP and focused on the risk posed by parental anxiety to their children and on strategies to promote the mental health of children with anxious parents. Building on her previous research exploring the needs of parents with mental illness and how services can support their children’s mental health, Francesca’s work continues to focus on understanding the needs of individuals experiencing mental health difficulties and identifying evidence-based strategies to improve care delivery. Francesca uses both quantitative and qualitative methods in her research and poses great value in the involvement of experts by experience (via Patient and Public Involvement and Engagement) throughout the research process. Previous Next

74e67d37-7f00-423e-b571-0f47e11e3dca ADOPTED: Investigating the impact of food vouchers on diet composition and the prevention of childhood obesity Principal Investigator: Grace Grove Start Date: 10 May 2021 End Date: 9 May 2023 Background: Childhood obesity is increasing in the UK, and children from disadvantaged backgrounds are more likely to live with obesity. Obesity in childhood is linked to obesity in adulthood and poor health outcomes. It is therefore vital that we work to prevent and reduce inequalities in childhood obesity. We know that children from disadvantaged backgrounds are more likely to have poor diets, and children who have poor diets are more likely to be obese. Therefore, improving diet quality of young families may contribute to preventing the development of childhood obesity. Healthy Start is a scheme in England that aims to improve diet quality by providing vouchers to spend on milk, fruit and vegetables to disadvantaged families. However, the voucher value is modest and has not changed for a decade, despite increasing food prices. The scheme needs assessing to consider how it can best support families, as uptake among eligible families is very low, at 54% nationally. Health visitors support young families, and give extra support to those with increased needs, including those from deprived groups. This provides a unique opportunity to support young families who are at risk of childhood obesity and eligible for Healthy Start. The aim of this research is to understand if voucher schemes can have a positive effect on diet quality of disadvantaged families. This research will contain several elements, including reviewing the literature for evidence on the effectiveness of voucher schemes, speaking to families and health visitors, collecting diet and shopping information from families, and modelling the best approach to a modified Healthy Start scheme. Publications Systematic review of fruit and vegetable voucher interventions for pregnant women and families with young children | Public Health Nutrition | Cambridge Core

af50ff28-5b02-41fa-bc1f-f9689464860e EnTech (Enabling Technology): Investigating the enabling and inhibiting factors to the use of internet-based support tools for caregivers of people with dementia, and how to promote engagement. Chief investigator: Prof Chris Kipps Neurologist, Clinical Director R&D University Hospital Southampton Dr Sarah Fearn Senior Research Fellow NIHR ARC Wessex (Ageing & Dementia) University of Southampton Team: Prof Cathy Murphy, Professorial Fellow Research, School of Health Sciences University of Southampton Prof Eneida Mioshi Professor in Dementia Care Research University of East Anglia NIHR ARC East of England Jane Ward Dementia Friendly Hampshire Amanda Wollam Public contributor with personal and professional (social care) experience of caregiving to people with dementia Start: 1 October 2024 End: 31 March 2026 Partners: Do rset HealthCare University NHS Foundation Trust, University Hospital Southampton NHS Foundation Trust, University of Southampton, University of East Anglia / NIHR ARC East of England, Dementia Friendly Hampshire, My Dementia Support. Our research This research aims to identify the factors that help or hinder caregivers of people with dementia to use online support tools. It also aims to create strategies to support caregivers to use them. We will use two internet-based resources as examples in our work: the DemCon website, which provides advice on dementia and continence, and FTDToolkit, which will be a psychoeducational intervention to support management of behavioural symptoms in people with frontotemporal dementia (FTD) and FTD with Motor Neurone Disease (FTDMND). Whilst some previous research in this area exists, it has been based mostly on surveys and has not included caregivers who do not go online. We will use interviews and focus groups so that caregivers can discuss all of the factors that affect their use of online support tools. This could include their personal situation and attitude towards online support tools, as well as thoughts about the tool itself. We will ensure that caregivers who are less confident or less able to use online websites are also included. We will also investigate the factors that help or hinder caregivers of people with a specific type of dementia – young onset dementia or frontotemporal lobar degeneration, which includes, but is not limited to, FTD. These sub-types of dementia often affect people at a younger age and can have different symptoms to other, more common types of dementia. This specific group of caregivers has not previously been discussed in existing research on this topic. We will use our findings on the factors that help or hinder caregivers of people with dementia to use online support tools to create strategies to support them. We will do this in workshops with caregivers so that we create them together. Managing continence issues and behavioural changes can be difficult topics for caregivers to discuss. This project will provide insight into how online support tools can help support conversations about challenging topics. Public involvement We are working with caregivers of people with dementia and local dementia charities in this project. On our team, we have two public contributors who both have lived experience of caring for someone with dementia. They will help us to design and carry out the research, to make sure it is relevant to caregivers and benefits them. 60 caregivers will participate in the research in interviews, focus groups or workshops. Outcomes This research will inform the roll-out of DemCon and development of FTDToolKit, to promote their successful adoption by caregivers. Our findings will also be relevant to the development and roll-out of other online support tools for caregivers of people with dementia. We will share our findings with caregivers, academics, support tool developers and others involved in the care of people with dementia. We will produce reports, write scientific articles, present at conferences, and work with national and local dementia organisations to share our findings. Email lead researcher

016c507b-e112-4be0-a796-8f4c4a8cdbe0 DIALOR: DIgitAL cOaching for fRailty (DIALOR) Principle Investigator: Professor Jane Murphy Team members : Dr Euan Sadler , Dr Michele Board , Dr Kat Bradbury , Professor Mike Vassallo , Dr Simone Yule , Dr Dawn-Marie Walker , Crystal Dennis, Matt Sait, Jim McMahon (Patient and Public Involvement Lead) Partners: Bournemouth University, University of Southampton, University Hospitals Dorset NHS Foundation Trust, The Adam Practice, Dorset CCG, Wessex AHSN, Southern Health NHS Foundation Trust Start Date: 1/4/2022 End Date: 30/9/2024 Bournemouth University web page Lay Summary Frailty is a condition that affects one in ten people over the age of 65. It means people are at higher risk of falls, disability and poorer quality of life. Some may struggle with decreased energy levels, poor appetite, lower strength and having difficulty with household tasks such as shopping and cooking. As the population ages, frailty also impacts on health and social care services because of more GP appointments and increased hospital and care homes admissions. More people own a smartphone with applications (apps) and have access to the internet. This technology can help people to live well by enabling access to person-centred advice and care. It can help share in decision making to meet well-being and health needs and reduce the burden on health and social care systems. However little research has been done, particularly for people with frailty, living at home. Aims This study aims to explore whether a digital approach could be used alongside support from health coaches to help the lifestyle management of frailty (in its early stages). The approach has been used across the NHS in people with long term conditions which we think will transfer to people with frailty. We will work together with people living with frailty, their carers, health coaches and health care professionals (key stakeholders). Design and methods We will do this through two work-packages (WPs) with people from 2 areas in Wessex (Dorset and Hampshire). WP1 will develop and test a new digital approach. It will include interviews with 10 people with frailty and family carers, 20 health care professionals and health coaches. In WP2, we will train health coaches to use the digital approach and measure how well it works in people with frailty. We will collect data including physical activity, eating and drinking, social engagement, quality of life, frailty status, costs of the approach. We will also ask people about their experiences of using it. We aim to recruit 20 people with frailty and their carers, 20 health coaches, 20 health care professionals and commissioners of care services from both areas to do this. This information will help us plan for carrying out a larger study to implement the approach wider across Wessex. We will regularly seek advice from doctors, nurses, commissioners of services during the project. Patient and public involvement (PPI) A group of family carers and health coaches will support the project by membership of a group to support project design, delivery, analysis and reporting and advise on how we share the findings. NOTE: DIALOR was previously known as DONOR and the name changed in consultation with Public contributors Dissemination We aim to share the findings in academic and professional publications, social media, a website, conferences as well as deliver an end of project stakeholder event. What did we find out? As the population ages frailty is increasing, affecting one in ten people over 65 in the UK. Frailty increases the risk of disabilities, falls, and hospital stays, leading to a greater need for long-term care. Early actions like improving physical activity, nutrition, mental health, and social interaction can help reduce or reverse frailty and lower healthcare costs. NIHR Applied Research Collaboration Wessex funded a study to test a new digital health coaching programme called 'DIALOR' for people with frailty. This programme, developed with input from healthcare professionals and patients, provides a digital app and a health coach to help users with exercises, nutrition, and wellbeing plans. Older people using the digital health coaching programme saw improvements in frailty, physical activity, diet, quality of life, social engagement, and mental wellbeing. Most found the experience positive and helpful in meeting their health goals, although some found the digital component difficult and did not like the term frail. Healthcare professionals said this approach could help older people manage their health better and reduce pressure on primary care services. DIALOR helps older people with frailty manage their health independently, reducing frailty progression and easing the burden on NHS healthcare by drawing on existing allied services such as health coaching. What Next? A meeting was held on 25th June 2025 with attendees from the healthcare professions, academia, digital healthcare and healthcare charities to learn about the outcomes from DIALOR and discuss the way forward. They concluded that DIALOR has a strong alignment with NHS health priorities as it supports preventative care goals and a shift into more community-based care. There is potential to scale up and roll out regionally and nationally, with support from organisations like Health Innovation Wessex, Help & Care and alignment with the NHS 10-year plan. Report from DIALOR Showcase held on 25th June 2025 .pdf Download PDF • 8.24MB More research needs to be done to discover how DIALOR can work across different regional systems, technology platforms, and wider social contexts to discover how it can be effective and cost-efficient for a wider range of people, especially those from ethnic and socially deprived communities. This will support its broader use across the UK. Publications DIALOR (DIgitAL cOaching for fRailty): protocol for a single-arm mixed-methods feasibility study of a digital health coaching intervention for older people with frailty in primary care https://doi.org/10.1136/bmjopen-2023-080480 Digital empowerment in long-term condition management: A systematic review and narrative synthesis of the experiences and perceptions of home-based digital health coaching interventions https://doi.org/10.1177/20552076241302230