Search Results

ADOPTED: Young people’s barriers to mental health services Lead: Dr. Corine Driessens , Professor Peter W F Smith Team: Fiona Lacey, YoungMinds Start date: October 2022 Ends date: September 2024 Background For the past 2 decades, the prevalence of emotional mental health disorders, such as anxiety and mood disorders, has been growing among English children and adolescents. It is estimated that on any day 16% of young people in English society experience emotional mental health problems and the majority of young people have experienced some period with mental health problems by age 14. About 50% of the young people with mental health problems continue to experience these problems from age 14 into young adulthood and about 75% of the adults with mental health problems report their onset of these problems before age 24. These figures are still an underestimation of the growing public health crisis as estimation methodology was biased. There is proof that people experiencing mental health problems are more reluctant to participate in epidemiological surveys. For instance, it was found that attrition and sporadic non-response to the Avon Longitudinal Study of Parents and Children (ALSPAC) survey was dependent on presence of emotional mental health problems. The methodology used to estimate mental health parameters from existing cohort study data should therefore take this missing data dependent on mental health status (nonignorable missing data, Missing-Not-At-Random – MNAR data) into account. In the proposed study we will apply MNAR methodology to a currently active discussion on the need to expand mental health services to young people with mental health problems currently not receiving mental health services. On the one hand is the concern for medicalization of mental health problems that are experienced in the scope of normal development. The health care providers are concerned that young people will be disempowered if their sense of resilience is diminished (Foulkes, 2021). On the other hand, is the concern that there are serious inequalities in accessing mental health care services and service access needs to be facilitated for these underserved subpopulations. Currently 1 in 4 of the children and young people experiencing mental health problems receive mental health care services. Barriers to mental health service access has been explored among those currently receiving or trying to access mental health services. However, there is a lack of knowledge what happens to those young people not seeking mental health services. Reflections on Young People involvement with shaping analysis framework for mental health .docx Download DOCX • 2.37MB

Interventions to support physical activity for adults (MOTH) Maintenance Of physical aTivity beHaviour (MOTH) programme Also see Digital support for maintaining physical activity in people with long-term conditions and Non-digital support for maintaining physical activity in people with long-term conditions – within Maintenance Of physical acTivity beHaviour (MOTH) programme Principal Investigator: Professor Mary Barker Deputy Lead: Professor Mary Barker ( Professor of Psychology and Behavioural Science) Professor Maria Stokes (Professor of Musculoskeletal Rehabilitation, School of Health Sciences, University of Southampton, UK Head of Active Living Research Group) Team members: Dr James Gavin, Luisa Holt, Professor Jo Adams , Dr David Culliford , Professor Suzanne McDonough (Royal College of Surgeons in Ireland; Visiting Prof at UoS), Dr Aoife Stephenson (Royal College of Surgeons in Ireland), Dr James Faulkner (University of Winchester), Mr Ranj Parmar , Mr Jem Lawson (Public contributors), Dr Euan Sadler , Dr Dorit Kunkel , Dr Simon Fraser , Professor Sandy Jack , Professor James Bilzon (University of Bath), Dr Simon Jones (University of Bath), Dr Enhad Chowdhury (University of Bath), Mr Jem Lawson and Mr Ranj Parmer (public contributors) Start: October 2019 Ends: 31 December 2023 Project Partners: Royal College of Surgeons in Ireland, University of Winchester, Bournemouth University, University of Portsmouth, Wessex Clinical Research Network, University of Bath, NHS, AHSN Lay summary Physical activity is an important part of managing and preventing long-term conditions (LTC), through supporting people to remain active, improve symptoms and reduce future problems. A variety of digital and non-digital programmes and tools exist, such as exercise referral schemes and websites or mobile applications, to support people to start being active. However, these programmes/tools are often less effective at helping people to stay active in the longer term. The MOTH programme aims to identify existing digital tools and their components that help people with LTCs to stay active and understand the factors that support or inhibit their use in the NHS. The programme is also working with exercise referral schemes to evaluate and understand the needs of participants to support physical activity after the scheme has ended. Ultimately, the MOTH programme aims to develop digital and non-digital support that is usable, accessible and relevant to help people with LTCs to stay active. In doing so, the programme is aligned to many of the NHS long-term plan priorities, such as ‘responding to population needs’, ‘supporting people to age well’ and ‘increasing equitable provision of resources’

COMPLETED: Co-POWeR - Consortium on Practices of Wellbeing and Resilience in BAME Families and Communities Principal Investigator: Professor Iyiola Solanke, University of Leeds Team: Professor Maria Stokes, School of Health Sciences, University of Southampton; Professor Sabu Padmadas, School of Economic, Social & Political Sciences, University of Southampton; Professor Monica Lakhanpaul, Institute of Child Health, University College London; Professor Claudia Bernard, Professor of Social Work. Department Social, Therapeutic and Community Studies, Goldsmiths College; Professor Shirin Rai, Politics and International Studies, University of Warwick; Professor Raminder Kaur, School of Global Studies, University of Sussex; Professor Gargi Bhattacharyya, Law and Social Sciences, University of East London; Professor Florence Ayisi, Faculty of Creative Industries, University of South Wales; Professor Anna Gupta, Department of Social Work, Royal Holloway, University of London. Duration: 18 months Summary Two viruses - COVID-19 and discrimination - are currently killing in the UK (Solanke 2020), especially within BAMEFC who are hardest hit. Survivors face ongoing damage to wellbeing and resilience, in terms of physical and mental health as well as social, cultural and economic (non-medical) consequences. Psychosocial (ADCS 2020; The Children's Society 2020)/ physical trauma of those diseased and deceased, disproportionate job-loss (Hu 2020) multigenerational housing, disrupted care chains (Rai 2016) lack of access to culture, education and exercise, poor nutrition, 'over-policing' (BigBrotherWatch 2020) hit BAMEFC severely. Local 'lockdowns' illustrate how easily BAMEFC become subject to stigmatization and discrimination through 'mis-infodemics' (IOM 2020). The impact of these viruses cause long-term poor outcomes. While systemic deficiencies have stimulated BAMEFC agency, producing solidarity under emergency, BAMEFC vulnerability remains, requiring official support. The issues are complex thus we focus on the interlinked and 'intersectional nature of forms of exclusion and disadvantage', operationalised through the idea of a 'cycle of wellbeing and resilience' (CWAR) which recognises how COVID-19 places significant stress upon BAMEFC structures and the impact of COVID-19 and discrimination on different BAMEFC cohorts across the UK, in whose lives existing health inequalities are compounded by a myriad of structural inequalities. Given the prevalence of multi-generational households, BAMEFC are likely to experience these as a complex of jostling over-lapping stressors: over-policed unemployed young adults are more likely to live with keyworkers using public transport to attend jobs in the front line, serving elders as formal/informal carers, neglecting their health thus exacerbating co-morbidities and struggling to feed children who are unable to attend school, resulting in nutritional and digital deprivation. Historical research shows race/class dimensions to national emergencies (e.g. Hurricane Katrina) but most research focuses on the COVID-19 experience of white families/communities. Co-POWeR recommendations will emerge from culturally and racially sensitive social science research on wellbeing and resilience providing context as an essential strand for the success of biomedical and policy interventions (e.g. vaccines, mass testing). We will enhance official decision making through strengthening cultural competence in ongoing responses to COVID-19 thereby maximizing success of national strategy. Evidenced recommendations will enable official mitigation of disproportionate damage to wellbeing and resilience in BAMEFC. Empowerment is a core consortium value. Supporting UKRI goals for an inclusive research culture, we promote co-design and co-production to create a multi-disciplinary BAME research community spanning multi-cultural UK to inform policy. CO-POWeR investigates the synergistic effect on different age groups of challenges including policing, child welfare, caring and physical activity and nutrition. WP1 Emergency Powers investigates these vague powers to understand their impact on practices of wellbeing and resilience across BAMEFC. WP2 Children, Young People and their Families investigates implications for children/young people in BAMEFC who experience COVID-19 negatively due to disproportionate socio-economic and psychosocial impacts on their families and communities. WP3 Care, Caring and Carers investigates the interaction of care, caring and carers within BAMEFC to identify how to increase the wellbeing and resilience of older people, and paid and unpaid carers. WP4 Physical Activity and Nutrition investigates improving resilience and wellbeing by tackling vulnerability to underlying health conditions in BAMEFC. WP5 Empowering BAMEFC through Positive Narratives channels research from WP1-4 to coproduce fiction and non-fiction materials tackling the vulnerability of BAMEFC to 'misinfodemics'.

< Back This is a Title 02 This is placeholder text. To change this content, double-click on the element and click Change Content. This is placeholder text. To change this content, double-click on the element and click Change Content. Want to view and manage all your collections? Click on the Content Manager button in the Add panel on the left. Here, you can make changes to your content, add new fields, create dynamic pages and more. You can create as many collections as you need. Your collection is already set up for you with fields and content. Add your own, or import content from a CSV file. Add fields for any type of content you want to display, such as rich text, images, videos and more. You can also collect and store information from your site visitors using input elements like custom forms and fields. Be sure to click Sync after making changes in a collection, so visitors can see your newest content on your live site. Preview your site to check that all your elements are displaying content from the right collection fields. Previous Next

Non-digital support for maintaining physical activity in people with long-term conditions – within Maintenance Of physical acTivity beHaviour (MOTH) programme Start Date 02/10/21 End Date 30/09/23 Researchers: Lead - Professors Mary Barker and Maria Stokes Joint Lead - Professor Suzanne McDonough Co-Applicants - Professor Maria Stokes, Dr Paul Clarkson, Dr Chloe Grimmett, Dr Euan Sadler, Dr Nisreen Alwan, Dr Aoife Stephenson, Dr Katherine Bradbury, Dr James Faulkner, Mr Paul Muckelt, Dr Dorit Kunkel, Mrs Luisa Holt amd Dr James Gavin Summary Being active is important to prevent and help manage long-term conditions (LTC). Previous research shows that being active can help people to do the things that they want to do for longer, reduce pain and improve quality of life. There are many community and NHS programmes that help people with a LTC to start being active, however, these programmes only last for a short period of time. Staying active in the longer-term is more difficult and there is often a decrease in activity over time following the completion of a programme or service. Previous research has shown that programmes or interventions that help people to start being active may not necessarily have the right components to help people to stay active. This project will plan and develop a new intervention that will support people with one or more LTCs to stay active, after taking part in an NHS and/or third sector ERSsphysical activity referral scheme (PARS). Our current research explores factors that help people with LTCs to stay active to allow these to be integrated into plans for the new intervention. The intervention will be non-digital to ensure that it is available to as many people as possible, regardless of access to the internet or a digital device. We know from previous work that it is important that any new intervention fits in with healthcare systems and how people manage their condition. We are therefore currently working with people with LTCs and health and social care professionals to understand how such an intervention could be delivered in practice. In this project we will use previously gathered information to plan the new service. We will recruit people with LTCs from ERSs PARS to take part in interviews to understand their needs and expectations for the intervention. We will also undertake interviews with health and social care professionals and ERSPARS practitioners to develop the intervention’s content. This will allow us to develop the prototype of the intervention and then ask people with LTCs who have taken part in a programme to pilot it and provide feedback through interviews. Once developed, we will plan a larger study to test the intervention’s potential with groups of people who have come to the end of an ERS PARS in the NHS and/or the third sector. This study will help us to gain feedback from people with LTCs using the intervention in real life settings to make further changes. It will also help us to understand whether the approaches to the research, such as how to recruit people to take part, are successful. This information will be used to improve the intervention and to support a larger trial to assess the effectiveness and cost-effectiveness of the intervention.

Events Coming up Thu, May 16 Workforce and Health Systems Theme Meeting / Microsoft Teams Learn more May 16, 2024, 2:00 PM – 4:00 PM Microsoft Teams Thu, May 23 Social Care Lunchtime Seminar / Webinar Details May 23, 2024, 12:00 PM – 1:00 PM Webinar Views and Experiences of Parents of Adults with Intellectual Disabilities, Service Providers and People with Intellectual Disabilities Around Care and Social Networks in Times of Austerity with Dr Rachel Harrison. Tue, Jun 04 Healthy Communities Theme Meeting / Microsoft Teams Learn more Jun 04, 2024, 11:00 AM – 12:00 PM Microsoft Teams An opportunity to learn more about the work of the Healthy Communities Team Wed, Jun 05 Collaborating for Impact / West End Details Jun 05, 2024, 9:15 AM – 2:30 PM West End, Botley Rd, West End, Southampton SO30 3XH, UK How ARC Wessex research is improving our communites' health and care Thu, Jun 20 Long Term Conditions Theme Meeting / Microsoft Teams Learn more Jun 20, 2024, 11:00 AM – 12:30 PM Microsoft Teams An opportunity to learn more about the work of the Long-Term Conditions Theme Mon, Jun 24 ARC Wessex Webinar: Living Well / Microsoft Teams Webinar Learn more Jun 24, 2024, 12:30 PM – 1:30 PM Microsoft Teams Webinar ARC Wessex projects linked to continence Thu, Sep 19 Workforce and Health Systems Theme Meeting / Microsoft Teams Learn more Sep 19, 2024, 2:00 PM – 4:00 PM Microsoft Teams Wed, May 15 Qualitative Research Network Meeting: Photo Elicitation / Online MSteams Details May 15, 2024, 1:00 PM – 2:00 PM Online MSteams Photo Elicitation as a qualitative method Tue, May 14 Ageing & Dementia Theme Meeting / Microsoft Teams Learn more May 14, 2024, 2:00 PM – 3:30 PM Microsoft Teams An opportunity to learn more about the work of the Ageing & Dementia Team Thu, Apr 18 Social Care Lunchtime Seminar / Online Seminar Details Apr 18, 2024, 12:00 PM – 1:00 PM Online Seminar My journey from dementia care assistant to PhD and beyond by Leah Fullegar Thu, Mar 21 Social Care Lunchtime Seminar / Online seminar Details Mar 21, 2024, 12:00 PM – 1:00 PM Online seminar Participatory action research by Professor Lee-Ann Fenge Mon, Mar 18 Webinar: Healthy Communities and Care Homes / Microsoft Teams Webinar Learn more Mar 18, 2024, 12:00 PM – 1:00 PM Microsoft Teams Webinar Wed, Mar 13 CRED Talk: Working with care homes to help residents eat and drink well / Microsoft Teams Learn more Mar 13, 2024, 3:00 PM – 4:00 PM Microsoft Teams Tue, Mar 12 Qualitative Research Network / webinar Details Mar 12, 2024, 12:00 PM – 1:00 PM webinar An overview of co-production and experiences of using co-production in research Tue, Feb 27 Supporting Nursing, Midwifery & Allied Health Professionals Research Development / Chilworth Details Feb 27, 2024, 1:00 PM – 4:00 PM Chilworth, 3 Venture Rd, Chilworth, Southampton SO16 7NP, UK A cross network event held by ARC Wessex and CRN Wessex for managers & stakeholders Wed, Feb 14 Workforce and Health Systems Theme Meeting / Microsoft Teams Learn more Feb 14, 2024, 2:00 PM – 4:00 PM Microsoft Teams Mon, Feb 12 CRED Talk: Rebalancing Health and Social Care Experience in the Pre-Registration Nursing Curriculum / Microsoft Teams Learn more Feb 12, 2024, 3:00 PM – 4:00 PM Microsoft Teams Tue, Feb 06 Ageing & Dementia Theme Meeting / Microsoft Teams Learn more Feb 06, 2024, 2:00 PM – 3:30 PM Microsoft Teams An opportunity to learn more about the work of the Ageing & Dementia Team Mon, Jan 29 Webinar: What we continue to learn from COVID-19 / Microsoft Teams Learn more Jan 29, 2024, 12:30 PM – 1:30 PM Microsoft Teams Mon, Jan 22 Long Term Conditions Theme Meeting / Microsoft Teams Learn more Jan 22, 2024, 10:00 AM – 11:30 AM Microsoft Teams An opportunity to learn more about the work of the Long-Term Conditions Theme Thu, Jan 18 Local authority adult social care recruitment and retention research project presentation / Lunchtime Webinar Details Jan 18, 2024, 12:00 PM – 1:00 PM Lunchtime Webinar Mon, Jan 15 CRED Talk: Knowing how to support mouth care and health for older people living in care homes / Microsoft Teams Learn more Jan 15, 2024, 3:00 PM – 4:00 PM Microsoft Teams Fri, Dec 01 Understanding narratives through timeline drawings / Online Seminar via MSTeams Details Dec 01, 2023, 2:00 PM – 3:00 PM Online Seminar via MSTeams Part of the Qualitative Research Network Mon, Nov 20 Webinar: Modelling complex healthcare and social care needs / Microsoft Teams Learn more Nov 20, 2023, 12:30 PM – 1:30 PM Microsoft Teams Thu, Nov 16 Social Care Lunchtime Seminars / Online Seminar Details Nov 16, 2023, 12:00 PM – 1:00 PM Online Seminar Reflections on developing collaborative research projects’ by Dr David Raper Load More Previous events

COMPLETED: Improving community health care planning Improving community health care logistics using Operational Research Principal Investigator: Dr Carlos Lamas-Fernandez Team members: Dr Carlos Lamas-Fernandez, (Research Fellow in Operational Research, University of Southampton), Professor Peter Griffiths (Chair of Health Services Research. University of Southampton), Dr Antonio Martinez-Sykora (Associate Prof of Business Analytics. Southampton Business School, University of Southampton), Dr Tom Monks (Associate Professor of Health Data Science, University of Exeter) Start: 1 October 2019 Ended: 30 September 2021 Partners: University of Southampton, Solent NHS Trust and Abicare Lay summary Operational Research (OR) is the application of computer and mathematical modelling to support decision making. In health services research, OR aims to improve patient outcomes, increase efficiency and enhance health professionals and citizens understanding of how an NHS service achieves good performance. In this study, we will use OR to improve the quality of patient care by supporting community nursing teams organise how they visit people in their own home. What did we acheive? We found that it is possible to develop algorithms that create routes and schedules automatically for district nurses. These algorithms can incorporate many practical constraints that nurses encounter during planning, and produce solutions that are optimised to use their time efficiently. We found out that, with minor modifications, the algorithm can also support social care workers in a similar manner. What difference can this new knowledge make? These algorithms are a stepping stone that bring closer the academic research (typically on idealized problems that do not work on practice) to the reality of nurses that currently organise their workload on a laborious manual process. Both their planning time and the extra time spent on the road (e.g. by doing a route larger than it could have been) can be saved and utilized to care for patients. Why is this important? Patients will benefit from a more efficient workforce, who can as a result have more time to care for them. Further, they might also benefit from better planned visits which might include their preferences. Care providers can use these kind of tools to plan their workload more efficiently, save costs on their operations and reduce the burnout of the nurses in charge of doing manual planning. Policy makers can run these kind of tools to test hypothetical scenarios (e.g. how does service delivery change with an increase of the demand, when we hire more district nurses or if we train part of our staff?). Care providers can also assess What's next? We continue working to improve our algorithms and liaise with social care companies to explore how they can be used in practice. We are looking into integrating them as demand estimation tools in other relevant problems, such as complex discharge from hospital.

INVOLVing pEople with cognitive impaiRment in decisions about their hospital nursing care (INVOLVER): a pilot study Principal Investigator: Professor Jackie Bridges Team members: Professor Jackie Bridges (Professor of Older People's Care, School of Health Sciences, University of Southampton), Dr Jo Hope (Lecturer, School of Health Sciences, University of Southampton), Dr Teresa Corbett (Lecturer, Solent University) Start: 1 January 2020 Ends: 31 December 2022 Project Partners: University Hospital Southampton NHS Foundation Trust, Solent NHS Trust, Solent University, Centre for Implementation Science, University of Southampton Lay summary We want to help nurses look after their patients in hospital. We want to help them find out how each patient likes to do things like getting clean, going to the toilet, eating and drinking. Some people have to go into hospital to get better. Sometimes, when they are in hospital, the nurses don’t ask them enough about the way they like to do things. For example, if they like a bath or a shower. Or if they need help going to the toilet. Or if they would like to walk about. Or what food or drink they like. Not being asked about these things is not helpful. It might mean that people end up getting sicker and staying in hospital longer. Or they may go home needing more help from their family. People with dementia, learning disabilities or stroke may not be asked these questions about what they like. Sometimes the nurses don’t know how to do this well. Sometimes they know how to do it but can’t do it. The reasons they can’t do it are not well understood. We are a group of people who want to make this better. Some of us work at a university finding things out. Some of us are nurses. We want to include people with dementia, learning disabilities or stroke in our group. This will help us think about how to make things better. We think we can help nurses by using ideas that have worked in other places. When people like us have an idea about how something can be made better, we try the idea out and see if it works. An example of an idea we might try is a training day for nurses. A teacher in a classroom shows the nurses how to do something new. Then the nurses see if they can do the new thing when they go to work. We will write down the story of what happens. The story gets printed in a magazine or a book. Or the story might get shared in meetings with other people or on the internet. This is our plan to make an idea that will help nurses to help patients: Find and read the stories of ideas tried in other places that might be useful. Talk to patients, nurses and others to make an idea that we think will work. Talk to patients, nurses and others to see what they think about the idea. When we’ve done this work, we will be ready to try this idea out. If it works, when people go into hospital, they will be asked about what they like. And the nurses will be helpful. And the care will be a little more like being at home.

Research areas Key research themes Ageing and Dementia Read More Long Term Conditions Read More Healthy Communities Read More Workforce & Health Systems Read More Cross-cutting research projects Mental Health Hub Read More Social Care Read More

For professionals & researchers Access reports, toolkits and support Read more Meet our interns, PhD, and Post-Docs Read more Case Studies Read more ARC qualitative network Read more

Wessex NHS Insights Prioritisation Programme Project (NIPP) Wessex NHS Insights Prioritisation Programme Project (NIPP) National Institute of Health and Care Research (NIHR) Applied Research Collaboration (ARC) Wessex and Wessex Academic Health Science Network (AHSN) Digital innovations for people living with frailty Read the Health Innovation Network report Project team Nicola Andrews (NIHR ARC Wessex), Cindy Brooks (NIHR ARC Wessex), Cheryl Davies (Wessex AHSN), Linda Du Preez (Wessex AHSN), Richard Finley (Wessex AHSN), David Kryl (NIHR ARC Wessex and Wessex AHSN), Susi Lund (NIHR ARC Wessex), Michelle Myall (NIHR ARC Wessex), Rebecca Player (Wessex AHSN) and Phoebe Woodhead (Wessex AHSN). Background to the project NIPP was funded by NHS England’s Accelerated Access Collaborative to enable ARCs and AHSNs to work together to accelerate the evaluation and implementation of innovations that support post-pandemic ways of working, build service resilience and deliver benefits to patients. The Wessex NIPP project focused on the use of digital interventions to support the care of people with frailty. We worked collaboratively with stakeholders from across the Integrated Care Systems in Dorset and Hampshire and Isle of Wight to identify system priorities in this area. The project had several components: 1 – Evaluation of uptake and use of the myCOPD app by older people We undertook a mixed methods evaluation of the myCOPD app , a digital monitoring and self-management tool, in relation to its use by older people. The findings showed a higher prevalence of COPD in the myCOPD eligible population than the general population, highlighting the importance of understanding the impact of frailty on uptake and use of the app. Those aged 75 and over, or living with moderate or severe frailty, were less likely to register with and more likely to decline the app. There was also evidence that follow-up support to promote use of the app could increase activation and help overcome technical barriers. Evaluation of myCOPD app - Summary of findings (ARC Wessex) .pdf Download PDF • 180KB Evaluation of myCOPD app - Full Report .pdf Download PDF • 368KB 2 – Development of a Theory of Change on use of data to enhance care of people with frailty Theory of Change is a method to develop understanding of how an initiative can achieve impact. This is displayed in a Theory of Change map. The development and refinement of the Theory of Change map drew on a review of the evidence and individual discussions with a wide range of stakeholders. Participants were from primary care, community services and acute care working in digital health or care, frailty, commissioning and population health management. Stakeholders identified that a lack of availability of routinely collected data from across organisations to inform decision-making impacted the care provided to people with frailty. Theory of Change map - Use of data to enhance frailty care .pdf Download PDF • 176KB Theory of Change Report - Use of data to enhance frailty care .pdf Download PDF • 461KB 3 - Investigation of the use, applicability and acceptability of digital remote monitoring for older people a) Listening activities with older people’s community groups to understand perceptions of digital remote monitoring We held face-to-face events at six older people’s community group meetings, including a carers’ group, an exercise class and a community group serving a majority black ethnic population. At these events we discussed benefits, concerns and barriers to the use of digital remote monitoring (the ability to monitor aspects of an individual’s health remotely using technology). We also asked group members how they thought their views might change as their health or abilities declined. b) Research study investigating use and acceptability of digital remote monitoring for older people with frailty in the community This mixed methods research study investigated digital monitoring at home approaches among older people with frailty, using Artificial Intelligence (AI)-facilitated sensors to monitor daily activities and routines. c) Evaluation of digitally enabled care within frailty virtual wards The evaluation used qualitative data from two frailty virtual wards ( NHS England » Virtual wards ) to explore the use, decision-making and impact of digital remote monitoring. We combined the qualitative data from the above three work packages (a, b and c) for thematic analysis. We found that a personalised approach is important, with a need to consider practicalities (such as cost and sensor positioning) and design of the technology. Face-to-face care is highly valued and should not be replaced by digital remote monitoring. Users and carers need to know what to expect, how the technology works, who is monitoring and when; this would aid trust. NIPP 2022-23 summary report .pdf Download PDF • 624KB NIPP 2022-23 Full report .pdf Download PDF • 838KB 4 - Co-production, piloting and evaluation of an online Implementation Toolkit Implementation is a complex process. For those tasked with introducing an innovation or a change to practice, service provision or delivery, there are a range of models, frameworks and tools to choose from to support the implementation journey. However, these can be inaccessible, specific to particular user groups, or fail to take implementation considerations into account at the outset. The Web-based Implementation Toolkit (WIT) was co-produced with a range of stakeholders by NIHR ARC Wessex. It is a user-friendly and accessible guide on what needs to be considered when implementing and how to achieve this. WIT can be accessed at: Helpful resources | NIHR ARC Wessex More details can be found at: Implementation | NIHR ARC Wessex Rapid Insights Guide for 2022/23 work A Rapid Insights Guide (with project highlights) was produced for NHS England at the end of the 2022/23 projects (work packages 3 and 4 above). Rapid insights report NHS E_for submission .pdf Download PDF • 322KB

ADOPTED: Development, evaluation and provision of an intervention for primary and community NHS staff to help carers and homecare workers supporting people living at home with dementia with their continence. Principal Investigator: Dr Catherine Murphy, Senior Research Fellow, School of Health Sciences, University of Southampton. Team: Jane Ward: former carer, Alzheimer’s Society Research Network Member, co-founder of Dementia Friendly Hampshire, Patient Research Ambassador: Prof Miriam Santer: Professor of Primary Care Research, Faculty of Medicine, University of Southampton: Prof Jill Manthorpe: Professor of Social Work, Director of NIHR Policy Research Unit in Health & Social Care Workforce, King’s College London – Associate Director of NIHR School for Social Care Research: Prof Mandy Fader: Professor of Continence Technology, School of Health Sciences, University of Southampton: Dr Leanne Morrison: Lecturer in Health Psychology, School of Psychology & Primary Care Research Centre, University of Southampton. Partners: Health Innovation Wessex, Alzheimer’s Society, Homecare Association, Carers UK, Queen’s Nursing Institute, Dementia UK. Start: 1/06/2022 End: 1/4/2024 Summary Most of the 850,000 people living with dementia in the UK live in their own homes with support from family or friend carers. Dementia puts people at much greater risk of developing continence problems (with urine/wee or faeces/poo) than people without dementia of the same age. Continence and toilet-use difficulties cause many problems for both people living with dementia and carers, for example, sore skin, infections, embarrassment, anxiety, fear of going out, relationship breakdown, and expenses such as cleaning carpets or laundry. Dementia can mean that using pads or reminders do not work well for people as time goes by. Many carers find dealing with incontinence hugely distressing. They describe feeling poorly prepared and alone. Many find it difficult to talk about and want better support from health and care professionals. Recently we asked people living with dementia, carers and nurses to tell us what information and support they would find useful. From that, we developed a detailed, practical handbook specifically for carers, covering: · understanding why someone with dementia might become incontinent · helping people keep ‘dry’ · managing incontinence · talking about incontinence · continuing with daily activities and socialising. The handbook contains many ‘real-world’ quotes from carers and will be made freely available on www.continenceproductadvisor.org (an NHS endorsed website). This is a good start but requires carers to find and use the handbook by themselves. Most carers want proactive support from the professionals they see (either healthcare or homecare workers), but healthcare professionals often feel ill-equipped to help carers or advise homecare workers. Therefore, in this study, we will develop a new resource that will build on the handbook and equip healthcare professionals to: · start conversations with carers and homecare workers · discuss continence problems and help people choose goals · deliver practical advice to carers and homecare workers. To do this, first we will review research on similar resources and speak to up to 45 primary and community healthcare professionals and homecare workers to fully understand their needs and how a new resource could be used and useful. We know that many people living with dementia and carers have regular contact with homecare workers who often help with washing and going to the toilet. Then, we will work with carers, people living with dementia, healthcare professionals, homecare workers, care commissioners or funders, voluntary groups and professional bodies to develop the resource. We will ask up to 60 people living with dementia, carers, homecare workers and healthcare professionals to use the resource and tell us what they think. We will then make changes to improve the resource. We want this resource to be used by as many primary and community healthcare professionals as possible so that they can support homecare workers and family carers. So, throughout this project, we will ask people about the best way to make it both useful and accessible. It will be freely available via www.continenceproductadvisor.org and we expect adopted and recommended by a range of organisations such as the Alzheimer’s Society, Skills for Care, Homecare Association and professional groups.