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71793130-6407-4a7a-8ebf-2af1daf96dd5 COMPLETED: Understanding the psychosocial needs and trajectories of older adults (>64 years) with alcohol use disorder (AUD) from hospital back into community Lead applicant : Professor Julia Sinclair Co-applicants : Dr Rebecca Band, Professor Jackie Bridges Team Dr Steph Hughes – Research Fellow Zara Linssen – Medical Student Sophie Crouzet – Medical Student Stephen Lim – Implementation Champion Melinda King – PPI advisor Start: 01/01/2023 End: 01/07/2024 Partner organisations: University Hospital Southampton NHS Foundation Trust University of Southampton Background Over 200 physical and mental health conditions are caused by alcohol. In England, more people are being admitted to hospital with, and dying from, alcohol-related disease than ever before. In 2018/19, 44.7% of all alcohol related admissions were for people over the age of 65 compared with 14% in 2010/11. In 2021,1563 patients were assessed by the Alcohol Care Team (ACT) at University Hospital Southampton, 43% of whom were over the age of 60. We know that older adults can often feel more shame and stigma related to their alcohol use compared with younger people. This can create barriers to accessing help with existing community addiction services. Beyond this, very little is known about the reasons why older adults drink alcohol and how this may interact with other social factors like loneliness and social isolation. Further research is needed to understand the ways in which to best support older adults to seek help, and what interventions may best promote positive outcomes. Study Design This study will recruit older people with alcohol use disorder (AUD) admitted to hospital in Wessex. A longitudinal observational design will be used, meaning that people in the study will be asked by the research team to complete questionnaires over time following admission into hospital. This will help to understand the needs of the population. There will be four main research aims: What are the personal characteristics of older adults with AUD? How do participants make sense of themselves in relation to their alcohol use? What happens to participants in the six months following a hospital admission? What factors what might prevent or encourage people from seeking help for their alcohol use? Study Methods The study will identify potential participants through the ACT in Southampton in the first instance. Around 40% of people seen over the age of 65 years. Clinicians working in ACTs have the skills and experience to sensitively identify and assess patients with comorbid alcohol use disorders Discussion about the study and consent processes will be undertaken by the UHS clinical trials officer. Participants who are willing to be part of the study will complete a set of questionnaires in hospital. Well-established measures of alcohol use, quality of life, loneliness, collective efficacy and health service use will be collected. Participants will be asked to complete similar questionnaires again at 3 and 6 months. This will probably take place over the phone. Health service use data will be collected for the 6 months after discharge to explore resource use. Plain English summary of findings Recruitment to the study was difficult. Many patients who were identified as drinking at increasing or possibly dependent levels did not have mental capacity to take part. Of those who were eligible, a large percentage declined to participate. This resulted in a small sample size of 30, 16 of which completed their follow-up questionnaire, and 7 interviews. 20% of the sample died during the study window. Results indicated: Over 50% participants showed some level of cognitive impairment Participants had an average of 4 people in their social network; usually family members Interviews revealed links between social isolation, loneliness and drinking alcohol Those who were housebound reported drinking alcohol all day long Participants stated alcohol is not, and never has been a problem for them 50% participants met the threshold for depression Participants often provided conflicting information for the follow-up questions and in the interviews Participants had poor diets; of 32 nutrients measured 22 were not consumed in-line with the government recommendations 93% participants were taking 5 medications or more What's next? As a small preliminary study the new knowledge has been used to inform future research. Impact on patient care and population health will come from the future research. Recruitment was harder than expected. This learning point has informed recruitment and retention procedures in future research applications. Other findings, for example, the link described qualitatively between social isolation and increased alcohol consumption, has shaped ideas for intervention development. We are preparing an application to undertake the planning and developmental work for an intervention aimed at reducing alcohol consumption in a general population of adults aged 65 and over. We plan to test the feasibility of this intervention in a feasibility study.

ff477b29-43df-41e3-8562-aeeb2cfcbef7 COMPLETED ADOPTED: Investigating Quality of Care for People with Dementia Undergoing Cancer Treatment in Ambulatory Care (ImPaCT) Principal Investigator: Dr Naomi Farrington Team members: Dr Naomi Farrington (Advanced Nurse Practitioner and NIHR Clinical Lecturer, University Hospital Southampton and University of Southampton), Professor Jackie Bridges (Professor of Older People’s Care, School of Health Sciences, University of Southampton), Professor Alison Richardson (Clinical Professor of Cancer Nursing and End of Life Care, University of Southampton and University Hospital Southampton). Start: 01 January 2019 End: 31 May 2022 Project partners: University Hospital Southampton NHS Foundation Trust, University of Southampton. S tudy is funded as part of a HEE/NIHR Clinical Lectureship Lay summary: There is not much information about people with dementia having cancer treatment. This study aims to understand how high quality care can be provided for people with dementia undergoing outpatient cancer treatment (radiotherapy, chemotherapy or other anti-cancer treatment). The study uses a research method called ethnography, which is where a researcher conducts ‘fieldwork’ to study a group of people to better understand that group. It will look at: The environment (surroundings and conditions) of the outpatient clinics and treatment areas; How people in the outpatient clinics and treatment areas behave and interact with each other; How treatment and support is organized in the outpatient clinic and treatment areas. Fieldwork will take place in the outpatient departments of University Hospital Southampton NHS Foundation Trust. It will include observations, interviews and review of patient notes. The people who will be invited to take part in the study are: People with dementia having cancer treatment; Friends or family supporting people with dementia having cancer treatment; Staff involved in the care of people with dementia having cancer treatment (doctors, nurses, support workers, administrative staff, and others). All those who take part in the study will be asked to give consent. The study includes: Observation . this will be carried out in cancer outpatient clinics and treatment areas. This will look at the environment (surroundings and conditions); the everyday interactions that happen between patients, carers and staff; and way in which care and support take place. Observation will take place in the general clinic areas as well as during doctor appointments and when treatment is being given. The researcher will take detailed notes. Interviews . these will be carried out with patients, carers and staff. These will focus on how people in the study speak and act to understand more about how they think and feel. Interviews will be digitally recorded, and a written transcript will be made. Patient notes . Researchers will look at patient notes to add to the information from observation and interviews. They will look at the notes to find out about diagnosis, treatment and support offered to patients. These 3 methods of data collection will help the researchers put together a detailed picture of the outpatient setting including how people act ( behaviour ), the surroundings and conditions ( environment ), and the way treatment and support is organised ( processes ). This will reveal ways in which healthcare organisations might best provide cancer treatment for people with dementia that is person-centred (focused on the needs of the person themselves) and of a high quality. What did we learn? The cultural environment of the outpatient care setting reflects and supports the standardized processing of people for cancer treatment. Dementia introduces a wider set of care requirements not catered for by a standardized treatment model. The needs of patients with dementia could be addressed most effectively when individualized care, was offered. This was possible when services were responsive to patient need. What difference did this new knowledge make? Outpatient cancer services can ensure responsiveness by: having an established way of eliciting needs, preferences and expectations a belief that a person's needs and expectations are legitimate, and that effort should be made to address them ability to accommodate these needs and expectations. Why is this important for patients, health and care providers, and policy makers? Managers of outpatient cancer care services have a better understanding of how to design and organize settings so that the needs of people with dementia can be addressed. Patients with dementia and their families will be more likely to receive personalized care that meets their needs. Policy makers will be more aware of the need to incorporate principles of personalized care into policies guiding the care and treatment of people with multiple health conditions. What have we done? This work has been part of building momentum to increase the profile of how people with cancer and dementia receive care and treatment. A national symposium was carried out with clinicians and academics in 2022 showcasing work addressing cancer and dementia. Dr Naomi Farrington is presenting this work as part of a session on ‘Person-Centred Care’ at the European Oncology Nursing Society in Madrid, October 2023. 3 papers have been published on this study: Understanding the cultural environment of the outpatient care setting for patients with dementia receiving cancer treatment: a qualitative study. https://pubmed.ncbi.nlm.nih.gov/36382351/ How can I improve cancer services for people with dementia? https://journals.rcni.com/cancer-nursing-practice/evidence-and-practice/how-can-i-improve-cancer-services-for-people-with-dementia-cnp.21.5.22.s10/full 'A rea l fine balancing act’: A secondary qualitative analysis of power imbalance in comorbid cancer and dementia in an outpatient treatment setting. https://pubmed.ncbi.nlm.nih.gov/36929372/ C LEAR steps for a responsive outpatient cancer service • C larify needs, expectations, preferences and goals • L egitimise these as valid • E nable these to be met by implementing strategies • A udit to ensure this is working for patients caregivers and health service • R ecord for the future https://vimeo.com/688041079

Research Fellow < Back Skaiste Linceviciute Research Fellow Long Term Conditions Skaiste Linceviciute is a Research Fellow at the ARC Wessex Mental Health Hub at the University of Southampton appointed to work on projects related to the Long-Term Conditions and Ageing and Dementia themes. Skaiste brings expertise as a qualitative researcher in areas on uncovering the challenges and unmet needs of people living with long-term physical and mental conditions as well as pursuing research on person-centered support systems. Skaiste is also the Mental Health Hub's Researcher Representative for the ARC Public Involvement Forum Wessex, working together with other contributors ensuring research meaningfully addresses community priorities and is guided by people with lived experience. Previous Next

4d75ba35-779f-4c29-9dd6-a4bbffb8ad71 Determining the effectiveness and outcomes of innovative interventions for people who have used stalking behaviours: An extension of the exploration of the Hampshire & Isle of Wight Multi-Agency Stalking Partnership (MASP) Chief Investigator: Dr Sara Afshar Morgan, Associate Professor of Public Health, Faculty of Medicine, University of Southampton Team: Mrs Katerina Porter, Senior Research Assistant, Faculty of Medicine, University of Southampton, Lisa Allam, Commissioning Manager, Hampshire & Isle of Wight Office of the Police & Crime Commissioner Dr Kirsty Butcher, Principal Clinical Psychologist & Clinical Lead, Multi-Agency Stalking Partnership, Hampshire and Isle of Wight NHS Foundation Trust Detective Chief Inspector Abigail Leeson, Hampshire & Isle of Wight Constabulary Dr Andrew Bates, Regional Forensic Psychologist, National Probation Service Rachel Windebank, Operations Director, STOP Domestic Abuse Partners: Hampshire and Isle of Wight NHS Foundation Trust, University of Southampton, Hampshire & Isle of Wight Office of the Police & Crime Commissioner, Hampshire & Isle of Wight Constabulary, National Probation Service, STOP Domestic Abuse. Start: 1 October 2024 End: 31 March 2026 Summary People often use the word ‘stalking’ to describe using social media to learn details about someone of interest. However, in law enforcement, the word ‘stalking’ is used to describe something much more serious: ‘fixated, obsessive, unwanted and repeated behaviour that makes [the survivor] feel pestered and harassed’, alarmed, distressed, or afraid. [1] In fact, the use of stalking behaviours can lead to serious violence; in a recent review of female deaths over 3 years, stalking behaviours were found to be present in 94% of cases [2] . People who use stalking behaviours often suffer from psychological inflexibility which causes them to fixate on particular individuals. Recently, psychologists have been using various psychological therapies to attempt to treat the obsessiveness that people who stalk suffer from. The use of these therapies has been evaluated in the short-term, with small groups. Results have been positive, but there is a need for longer-term follow-up of people who have used stalking behaviours, to determine whether psychological therapies are useful in helping people to stop stalking. This research study aims to explore the experiences of individuals who have used stalking behaviours, and who have completed a psychologist-led stalking intervention (PLSI), to learn whether participating in psychological therapies is useful in preventing further stalking. We will gather information by doing interviews with people who have completed a programme of psychological therapy to stop stalking. We will do up to 6 interviews with each person, over the course of one year, to understand their experiences. We will also obtain information from the Police to learn whether any of the individuals have been reported as using stalking behaviours, after having completed the psychological therapy. We will use this information to build a picture of the reasons why the psychological therapy might or might not work, in various cases, to prevent future stalking. We will compare the experiences of the people who have used stalking behaviours, with information from victim-survivors and professionals. There is already an evaluation and research study ongoing, to learn more about the use of these psychological therapies for stalking prevention. This study will be an extension of the existing study, to follow up existing research participants over a longer period of time. Longer-term follow-up of people who have used stalking behaviours is scarce. This original research will provide an important look into the experiences of people who have used stalking behaviours and completed psychological therapies to try to treat the underlying fixation. The ultimate goal of the psychological therapy is to prevent future violence. The results of the research will be fed back to all research partners directly (Hampshire & Isle of Wight Constabulary, Hampshire & Isle of Wight Office of the Police & Crime Commissioner, Southern Health NHS Foundation Trust, National Probation Service), as well as being submitted for publication. Results will also be presented in an easy-to-read format, for use by research partners to share with their potential clients (including people who have used stalking behaviours, and their victim-survivors).

Development of a core outcome set for nurse wellbeing: a Delphi study Lead applicant: Dr Gemma Simons Co-applicants: Prof Jane Ball , Prof David Baldwin , Dr Emma Wadey, Dr Catherine Smith Participant Information Sheet: Download here Project Summary: Read project summary document (short summary) Read project summary document (long summary) Background : Little attention has been paid to the work lives and wellbeing of the nursing workforce, despite it being a priority area. Currently, there is no consensus on what wellbeing is or how it should be measured. An evidence-based, positive way of measuring wellbeing is through a Core Outcome Set. What is a Core Outcome Set? Outcomes are used to measure whether a strategy, intervention or action has had the required result. There are often multiple outcomes and ways of measuring them, which makes comparison difficult. A Core Outcome Set is an agreed, or consensus, set of outcomes and measurement tools that, when used, provide consistent and comprehensive focus as everyone is measuring and reporting the same outcomes in the same way. Aim: This project aims to develop a Core Outcome Set for Nurse Wellbeing. Objectives: Produce a list of potential wellbeing outcomes and help text to describe them in that are clear and meaningful for nurses [PPI panel] Develop a consensus between nurses and nurse wellbeing experts on a core outcome set for nurse wellbeing [Delphi Study] Identify and assess for quality measurement instruments for the core outcome set for nurse wellbeing identified by the Delphi study [Critical Literature Review] Select measurement tools for the identified core outcome set and agree on a final Core Outcome Set for Nurse Wellbeing [PPI panel and Study Advisory Group]. Implications and Impact: A Core Outcome Set for Nurse Wellbeing developed by nursing and nurse wellbeing experts will provide researchers and those undertaking governance with evidence-based and meaningful tools with which to evaluate wellbeing interventions. This study is registered on the Core Outcome Measures in Effectiveness Trials (COMET Initiative) database https://www.comet-initiative.org/Studies/Details/2433 Read all Mental Health Hub projects

c3f60ada-92b2-427a-992e-e9d18e00b011 ADOPTED: Mobility assessments in hospitalised older adults: study protocol for an e-survey of UK healthcare professionals PhD Candidate: Catherine Wharfe University of Portsmouth; Team: Maria Perissiou University of Portsmouth; Zoe Saynor University of Portsmouth; Jim Briggs University of Portsmouth; Carolina Gonçalves University of Portsmouth & University Hospitals Sussex NHS Foundation Trust Start : 1/11/2023 Ends: 1/05/2025 Abstract Hospitalisation in acute care poses a significant risk of adverse outcomes in older adults, including loss of functional independence, disability, and death. Research carried out in hospitalised older adults suggests functional mobility tools or scales can predict adverse events and care needs in this population, which facilitates prompt escalation of care and discharge planning procedures. As such, a need to develop a standardised methodology for assessing or measuring mobility has been recognised. However, the degree to which standardised mobility tools are routinely used, how data is collected, and/or which clinical assessment processes are utilised in hospitals across the UK is currently lacking. The aim of this national survey is to identify the current practice of mobility assessment in older adults admitted to NHS Trusts and Private Health Organisations, with a view to informing further research on a standardised approach or best practice guidelines to assessing or measuring mobility in hospitalised older adults.

Research Fellow < Back Stephanie Hughes Research Fellow Ageing and Dementia Steph Hughes is a Research Fellow in the ARC Wessex Mental Health Hub at The University of Southampton conducting research into alcohol use disorder in older adults. Steph has a PhD from The University of Southampton where she explored the impact of significant others on men undergoing active surveillance for prostate cancer. Steph has expertise in qualitative research, self-management of illness and intervention development. Past projects span topics such as irritable bowel syndrome, chronic pain, weight management and primary care communication. Previous Next

8d1b2f3a-906f-4fe9-8d9a-bf4679c7d6ec COMPLETED: StOP UTI project: Strategies in older people's care settings to prevent infection Background Urinary tract infection is more common in older people living in care homes but can be difficult to recognise. This can lead to overuse of antibiotics and may result in antibiotic-resistant infection and hospital admission. We wanted to find out what can work in care homes to prevent and recognise UTI and what support care home staff need to enable safe care for all residents. What we did We reviewed evidence from a range of sources, including research studies and improvement projects. We also asked care home staff, residents, family carers and healthcare professionals about their experiences. We combined these experiences and ideas with the evidence we found from published literature to develop an understanding of what needs to happen in care homes for older people to prevent and recognise UTI. What we found out What difference will this make? UTI can be prevented by embedding prevention activities in care routines: ensuring residents are hydrated ensuring residents with recurrent UTI are managed actively with preventative treatment avoiding the use of urinary catheters wherever possible Unnecessary antibiotic use can be avoided by: involving the whole care team, resident and family in recognising UTI using active monitoring when there is uncertainty about UTI supporting care staff to develop the skills to accurately recognise UTI using tools that support decision-making and communication across the wider care team Safe care for each resident can be achieved when: care staff receive education that is contextualised to their role and helps them to prioritise and deliver person-centred care care home managers are committed to supporting the delivery of best practice commissioners and regulators promote UTI prevention and recognition as a priority area for care homes Why is this important? Our findings suggest ways that care home providers and policy makers can support the prevention and recognition of UTI in the care of older people living in care homes. A system-wide approach is vital to enable care home managers and their staff to prioritise UTI prevention and recognition as part of person-centred care. At policy level, there is a need to integrate UTI prevention with diagnostic and antimicrobial stewardship and to unify the content of education and decision-support resources so that care staff can see the value of their role in prevention as well as supporting diagnosis and treatment of UTI. What next? Our research is the start of a process of understanding what works in care home settings and will identify where further research is needed. A report, summary and articles provide practical examples and recommendations relevant to care home staff, care home managers, researchers, educators, carers and relatives for use to improve the prevention and recognition of UTI in older people’s long-term care and to plan further research to investigate them. We are turning our findings into a range of different resources and digital communications, with input from experts who support the adoption and spread of innovation, for sharing via care home networks and associations. Publications Realist synthesis protocol for understanding which strategies are effective to prevent urinary tract infection in older people in care homes Preventing urinary tract infection in older people living in care homes: the ‘StOP UTI’ realist synthesis | BMJ Quality & Safety Strategies for older people living in care homes to prevent urinary tract infection: the StOP UTI realist synthesis | NIHR Journals Library Link to University of Southampton site Research team: • Dr Jacqui Prieto, Joint Chief Investigator, University of Southampton • Professor Heather Loveday, Joint Chief Investigator, University of West London • Professor Jennie Wilson, Co-investigator, University of West London • Mrs Alison Tingle, Co-investigator, University of West London • Mrs Emily Cooper, Co-investigator, UK Health Security Agency • Dr Melanie Handley, Co-investigator, University of Hertfordshire • Professor Jo Rycroft-Malone, Co-investigator, University of Lancaster • Dr Lynne Williams, Co-investigator, Bangor University • Mrs Jennifer Bostock, Co-investigator, Patient and public involvement • Lois Woods, Information Specialist, University of Southampton • Simon Briscoe, Information Specialist, University of Exeter • Jemima Kakpa, Research assistant, University of Southampton • Christine Logan, Administrative assistant, University of West London Project Advisory Group: • Jennifer Bostock (Chair) • Professor Lona Mody • Mr Mark Stott • Dr Leah Jones • Mrs Susan Bennett • Mr James McMahon • Mrs Annabelle Stigwood • Mrs Anita Astles

PPI/E Strategy 2021-2024 full report Below you will find the full report of the Patient and Public Involvement and Engagement (PPI/E) Strategy 2021-2024. NIHR Applied Research Collaboration Wessex Authored by Caroline Barker (Lead for PPI/E). Supported by our Public Champions and Katherine Baker (PPI Officer). Document overview: Background information Our vision Our aims Programme of activities Resources, partners and collaborators Reporting and monitoring The purpose of this strategy Patients and the public are at the heart of our vision to improve the health and well-being of people across Wessex . We need and value the voices of the communities our research serves. The knowledge, experiences and support of patients and the public are essential to ensure that our research goals and solutions are relevant, prevent waste, and bring the greatest possible benefits to society. This document outlines our strategy for Patient and Public Involvement and Engagement (termed PPI/E) in the work of ARC Wessex . Definitions We recognise there are different definitions to describe involvement and engagement activities within health and social care. For the purposes of this document we will adopt the following definitions: Patient and public involvement: research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. (NIHR INVOLVE 2017). Engagement: where information and knowledge about research is provided and shared. PPI/E: an abbreviation/acronym. Used to describe patient and public involvement or engagement work and projects, or activities that connect or encompass both. Public: in this strategy we use the term ‘public’ to describe people affected by our research who do not have a professional role in health and social care services. This may include patients, service users, survivors, carers, family members or members of the general population. We also use the acronym WISeRD, which stands for Wessex Inclusion in Service Research and Design Group. This is our strategic PPI/E group. It is composed of PPI Champions (public), the PPI/E team and staff links for each research theme. As you read this document, you may come across other terms, abbreviations and acronyms that are unfamiliar to you. We have provided brief descriptions in the footnotes. There is also a glossary of terms at the end of the document. Context and opportunities ARC Wessex launched in October 2019. As part of our application to become an ARC, we had to develop an outline PPI/E strategy. CLAHRC Wessex (preceded ARC Wessex) shared our commitment to PPI/E and the work done by the CLAHRC laid good foundations for ARC Wessex to build on and progress. We are proud of the work we have done to embed PPI/E in our projects and programmes over the first 18 months. This strategy, developed in wide consultation with our partners and public communities, builds on the outline PPI/E strategy from our application. It covers activities from April 2021-Oct 2024. Our locality, Wessex, has strengths in involvement and engagement. We have the Wessex Public Involvement Network (PIN) that ARC Wessex plays a leading role in. This is a network of staff and public working with NIHR and committed to improving public involvement in research. We do this by sharing our knowledge, supporting and developing each other. We also work together on projects that would not be possible if we did not share the workload between us. These include developing PPI/E training and trialling approaches to improve diversity and inclusion in PPI/E. Our partners in NHS providers , charities and higher education institutions (e.g. Universities) have their own expertise and strengths. We are willing and committed to working together on areas of shared priority. Our Vision We aim to deliver high quality public involvement and engagement for health and social care. Our activities will meet the values and principles of good public involvement as outlined in the UK Standards for Public Involvement . Our activities will occur across, and add value to, each aspect of Wessex ARC: At project-specific level (e.g. an ARC-funded or ARC-supported research project). Across each of our four research themes and the wider ARC programme. With our partners and collaborators organisations. Our overarching aims Aligned to the UK Standards for Public Involvement, are aims are to: Listen to voices relevant to our research priorities that reflect the diversity of our local population – ensuring the underserved have a voice (UK Standard Inclusive Opportunities). Build a culture that respects different perspectives, values contributions and supports mutually respectful and productive relationships (UK Standard Working Together). Provide health research communities of Wessex (including public) adequate PPI/E training, support and learning opportunities at the right time for their project/programme and/or their own development needs (UK Standard Support and Learning). Involve the public at strategic and operational levels, ensuring best practice and supporting research transparency (UK Standard Governance). Use innovative approaches and good communication to expand the reach of our activities, maximising impact by stimulating knowledge-of, and interest-in, our research (UK Standard Communications). Capture, monitor and share learnings to feedback to those involved, avoid duplication, contribute to the evidence base and build our academic PPI/E (UK Standard Impact). We will build on our local strengths and focus on areas where we believe we can have the greatest impact. [1] [2] [3] [4] [5] [6] [7] [8] [9] Aim 1: Listen to voices relevant to our research priorities that reflect the diversity of our local population – ensuring the underserved have a voice (UK Standard Inclusive Opportunities ). Aim 2: Build a culture that respects different perspectives, values contributions and supports mutually respectful and productive relationships (UK Standard Working Together ) Aim 3: Provide health research communities of Wessex (including public) adequate PPI/E training, support and learning opportunities at the right time for their project/programme and/or their own development needs (UK Standard Support and Learning ). Aim 4: Involve the public at strategic and operational levels, ensuring best practice and supporting research transparency (UK Standard Governance ). Aim 5: Use innovative approaches and good communication to expand the reach of our activities, maximising impact by stimulating knowledge-of, and interest-in, our research (UK Standard Communications ). Aim 6: Capture, monitor and share learnings to feedback to those involved, avoid duplication, contribute to the evidence base and build our academic PPI/E (UK Standard Impact ). Resources Our PPI/E team, in partnership with our research community (including public and researchers), will deliver the programme. A Lead for PPI/E will oversee delivery. A Communications & Partnerships Manager, Administrative Officer and a PPI Officer support them. A dedicated PPI/E budget will support: expense and time reimbursement for public contributing to our work; training costs required to support public in their role; consumable and facilities costs relating to PPI/E events, including training events; development and testing of new initiatives. This is in addition to PPI/E budgets set out within each research project, and academic career development awards. Partners and collaborators We will work closely with involvement, engagement and communications teams in our partner charities, health and care providers and higher education institutions. This will enable us to maximise opportunities, minimise duplication and create economies-of-scale. Our public engagement activities wil l benefit from University of Southampton’s experienced Public Engagement in Research Unit, Public Policy Unit (connects with policy advisors and central government) and LifeLab (working with young people to engage them with research). Consolidated funding for our Lead for PPI/E facilitates strong cross-organisational working. This Lead person manages a PPI/E team working across University Hospital Southampton, including the Wessex PIN and other NIHR infrastructure (Southampton BRC and CRF ). Reporting and monitoring An annual plan is written each year that covers progress to date and plans for the next year (see footnote for full detail ). The plan is developed by the Lead, with input from WISeRD, and approved by the ARC Director. Progress against our milestones are reported to: WISeRD at our meetings (every two months). The Executive Leadership Group (every two months). Rolling theme updates (including PPI/E) are a standing item. The Lead for PPI/E provides a formal update annually and given additional time on the agenda to discuss items as required. The ARC Director at meetings with the PPI/E team (twice a year). The ARC Partnership Board (twice a year) as part of the progress reports submitted to board members. CCF vi a the formal annual reporting structures (once a year). [17] [18] [19] [20] [1] Wessex includes Dorset, Hampshire, the Isle of Wight and South Wiltshire. [2] ARC stands for Applied Research Collaboration. They support applied health and care research that responds to, and meets, the needs of local populations and local health and care systems. [3] INVOLVE was a national coordinating centre for public involvement in health and care (until March 2020). A new Centre for Engagement and Dissemination aims to build on the work of INVOLVE. [4] Collaborations for Leadership in Applied Health Research and Care [5] National Institute for Health Research [6] Any organisation that provides NHS services [7] The standards are a framework for what good public involvement in research looks like. [8] ARC Wessex has four research themes: Ageing & Dementia; Long Term Conditions; Healthy Communities and Workforce and Health Systems. Found out more on our website. [9] Underserved is the term we have chosen to use to describe people who are less well included in research. It is important to recognise that underserved groups are context-specific. There is no single, simple definition to describe all underserved groups. [10] The Microsoft Accessibility Checker is a free tool available in Office 365. It finds most accessibility issues and explains why each might be a potential problem for someone with a disability. It also offers suggestions on how to resolve each issue. [11] The equality impact assessment is a systematic and evidence-based tool, which enables us to consider the likely impact of work on different groups of people. [12] Operational leadership group. [13] This project aims to test how feasible and acceptable a childhood obesity prediction tool is. [14] The Academic Career Development Group in ARC Wessex is focused on building capacity and capability within the health and care system. [15] The ARC Partnership Board is a decision-making body for ARC Wessex. [16] A theory of change is a description of why a particular way of working will be effective, showing how change happens in the short, medium and long term to achieve its intended impact. Logic models are a way to graphically represent this theory. [17] Biomedical Research Centre [18] Clinical Research Facility [19] PPI/E annual plan covers: progress against last year’s objectives and the wider strategy; objectives, plans and milestones (with timescales) for the next year; plans for engaging our stakeholders; plans for dissemination and monitoring impact; cross ARC collaborations; plans for research and capacity building; leadership and management; finances [20] CCF = NIHR Clinical Commissioning Facility. They manage and administer the ARC funding scheme [ii] Public involvement activities describe activities where research is carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. [iii] Engagement activities describe activities where information and knowledge about research is provided to and shared with the public. [iv] Underserved is the term we have chosen to use to describe people who are less well included in research. It is important to recognise that underserved groups are context-specific. There is no single, simple definition to describe all underserved groups. Want to know more? You can read our full strategy Have questions or comments? Email PublicInvolvement@uhs.nhs.uk

Knowledge Mobilisation What is Knowledge Mobilisation (KM)? "It's about getting the right information to the right people in the right format at the right time - by actively collaborating" 1/6 These web pages are here to help share the learning our Knowledge Mobilisation Fellows are accumulating through our ARC Wessex Knowledge Mobilisation (KM) Programme. We will be developing this page into a hub of resources. Please get in touch with any questions and share your thoughts about KM via this email Click to jump to the section you want on this page KM Fellows - This is us KM Resources (in development) KM Action Learning Projects As part of a £7.8 Million investment from the NIHR in October 2024, ARC Wessex appointed a Knowledge Mobilisation team including four KM Fellows. ARC Wessex worked with Hampshire & Isle of Wight (HIoW) and Dorset Integrated Care Boards, provider organisations and Health Innovation Wessex to create a programme directly relevant to needs of patients, service users, carers and health and care systems. The programme is supported by an advisory group of stakeholders, which meets regularly and monitors the delivery of the programme’s objectives: Develop the capability of the KM fellows through increased awareness of training needs and tailored capability development programmes Deliver multiple Action Learning Projects to capture insights about KM practices and learning about what works or does not work to share more widely Develop a cohort of KM Practitioners across Wessex to support capability and capacity building with our partners and systems Actively contribute to ARC Greater Manchester national meetings and Communities of Practice to work in partnership cross-ARCs. This is us Knowledge Mobilisation Fellows Phillipa Darnton is our Implementation and Knowledge Mobilisation Lead Rachel Tobin is our Knowledge Mobilisation Programme Manager Email the team at: arcwessex@soton.ac.uk Download the Knowledge Mobilisation poster Dr Jenny Roddis is a Research Fellow and is an Associate Professor in Community Health at the University of Portsmouth Dr Nicola Andrews is a Research Fellow based in Southampton and is interested in care fo older people and frailty Dr Kate Lippiet is a Senior Research Fellow based in the School of Health Sciences, University of Southampton Mirembe Woodrow is a Senior Research Felloow in Public Health based at the School of Health Sciences, University of Southampton This is our resources and tools section We are busy creating lots of useful tools and resources for you to download and they will appear here as we develop them, so keep an eye out. Please share your thoughts of KM and/or sign up to the KM mailing list using this form Download If you like our KM umbrella above you can download the image here by clicking the box to the left Download Download - 6 Ideas about KM - Steps to Good Action Learning Projects The KM Fellows are ‘learning by doing’ and documenting their findings as Action Learning Projects. Each fellow has their own projects in which they are trialling different KM activities to learn about what works in which circumstances. This learning will help them to build KM capability and capacity within the ARC Wessex health and social care research system. Current Mental health: learning from providing support to the ARC Wessex Mental Health Hub to adopt knowledge mobilisation strategies for selected projects. Skills and knowledge: identifying the skills and knowledge needed for good knowledge mobilisation and developing a national framework for KM professionals and researchers. Co-producing clinical academic pathways in Dorset. Working with knowledge and information services across Wessex to develop a knowledge mobilisation community of practice Mapping what influences decision-making and use of evidence in residential care and home care. Supporting care home staff to understand the current evidence base on dehydration risk assessment and apply this to the care home setting, with development of resources to support staff in this setting undertake robust evidence reviews. Completed Working with Hampshire and Isle of Wight Integrated Care Partnership to develop and deliver a research assembly. Understanding research priorities for care home and home care providers in Wessex.

e57a4343-00e9-4e08-9056-d084e47c8870 Reframing responsibility through public empowerment: proposing the ‘FoodEnviroScan’ app to unmask unfair environmental cues influencing poor diets Team Dr Nestor Serrano-Fuentes. Senior Research Fellow. School of Health Sciences, University of Southampton. Dr Lyn Ellett. Associate Professor of Clinical Psychology. School of Psychology. University of Southampton. Prof Mari Carmen Portillo. Professor of Long-Term Conditions. School of Health Sciences University of Southampton. Prof Janis Baird. Professor of Public Health and Epidemiology, MRC Lifecourse Epidemiology Centre, University of Southampton. Prof Christina Vogel. Deputy Director, Centre for Food Policy City, University of London. Partners Peter Rhodes (potential support). Senior Programme Manager, Industry and Innovations (AHSN). Jessica Berry (potential support). Personalised Care Programme (ICS). Dr Alexandra Mant (potential support). Institute for Life Sciences Collaboration Manager at the University of Southampton. Dr Lindsay Welch. Clinical associate professor at the University of Bournemouth. Previous Program Lead Health Inequalities (Health Innovation Wessex) Starts: 27th February 2023 Ends: 30th September 2024 Summary Our cities have changed a lot since the 1960s. One of the biggest changes is that there are now a lot more places to buy unhealthy fast food and sugary drinks, like takeaway shops. The food and drink companies have also used clever marketing strategies so we buy more of their products. Some of their strategies are hard to spot, but they have impacted people living in poorer areas the most. For example, these people might see a lot more ads and deals for fast food and junk food around where they live and work. Research shows that the best way to improve our diets is to have stronger rules for how the food industry is allowed to advertise to us. But currently there are not many policies like this. And there is not much public support for stronger rules either. That is because many people still think it's up to them alone to eat healthily. We want to talk to the public to discuss how we can get more public attention on the power big food companies have. We also want to talk about what else we as a society can do to put more pressure on the food industry to change. We are also interested in whether new technologies could help with these goals.

056e2237-0346-49fe-b123-4999c149156a Comparative Effectiveness of Methylphenidate vs. Second‑ and Third‑Line Medications for Children with Attention- Deficit/Hyperactivity Disorder and Autism Chief Investigator: Professor Samuele Cortese, NIHR Research Professor, University of Southampton Co-Investigator: Miguel Garcia Argibay, Senior Research Fellow, University of Southampton Team: Laura Nisbet, Mental Health Nurse, lead neurodevelopmental pathway, Hampshire and Isle of Wight Foundation NHS Trust Partners : Hampshire and Isle of Wight Foundation NHS Trust, University of Southampton Start: 1 10 2024 End: 31 3 2026 Aims of the study: This study wants to find out which medications work best for children who have both Attention Deficit/Hyperactivity Disorder (ADHD) and autism. We are especially interested in learning whether the most commonly used medication for ADHD (called methylphenidate) works well for children who have both ADHD and autism, or if a different medication would be better. Background: Many children with ADHD also have autism. Right now, doctors usually treat ADHD with methylphenidate, but the studies that recommended this medicine didn't include children who have both ADHD and autism. So, we need to see if this medication works as well for children with both conditions. How We Will Do the Study: We are going to look at existing information (data) from the UK and abroad (Sweden), about thousands of children who have both ADHD and autism. We will compare different groups of children: Those who started with methylphenidate (the usual ADHD medicine). Those who started with other types of medication. Those who switched between different medications. Those who did not take any medication. We'll check how often these children needed to go to the hospital or emergency room, if they had any injuries, or if they had issues with self-harm. This will help us figure out which medicines work better and are safer. We will also use special techniques to make sure the comparison between the groups is fair and considers any other factors that might affect the results. Patient, public and community involvement : We believe this study will help doctors treat children with both ADHD and autism better. That’s why we’ll work closely with people who have lived experience of these conditions, both locally and internationally. Locally, we will involve people with lived experience from the Solent Academy of Research and Improvement team and Southampton Primary Care Research Centre. Nationally, we will work with representatives of the ADHD Foundation- Neurodiversity charity, the largest association people with lived experience of ADHD and autism in the UK. Internationally, we’ll partner with representatives of ADHD Europe, which is the largest European group for people with neurodiverse conditions like ADHD and autism. Professor Cortese has ongoing collaborations with all these partners. These people will help us at every stage of the research: designing the study, choosing what results to focus on, and sharing the findings with others. Sharing the Results: Once the study is finished, we will share the results with doctors and healthcare providers to help them make better decisions for treating children with both ADHD and autism. This may lead to changes in treatment guidelines and improve care for these kids. The findings will be published in medical journals, presented at conferences, and shared on public websites and in publications, especially those aimed at families of children with ADHD and autism.