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National priority research projects Learn more about national priority research projects that we got involved. Healthy Ageing, Dementia and Frailty The research is focused on the health challenges facing our growing older population. The projects are as much about staying well and supporting people as finding better ways to care for and treat people with the many multi-morbidities that can develop in later life. Read more Health inequality More information coming soon... Read more

Public and Community Involvement, Engagement and Participation Resources Why involve patients and the public? PPI in research is expected for many funding streams (including the NIHR) and is a consideration made by the National Research Ethics Service when assessing applications. If PPI is not incorporated into your work, you will have to give a clear explanation of why not. It could benefit your research through: Additional expertise – this could come from having experience of the illness or simply relate to their age or demographic Ensuring the research questions are relevant and the priorities reflect the needs of those affected Improving patient experience and influencing trial recruitment and retention Assessing ethics/acceptability – helping ensure your research is conducted in a way that is sensitive to the needs and preferences of your participants Assisting with writing in lay language How could PPI help my research? Patients and the public involved in your research could: Help write and design patient literature for your participants, so they are more suitable for the reader. Comment on ethical issues associated with studies, and how they can be addressed Ensure your study is appropriately designed Get advice on how to share your findings to a wide audience, in a way the public can understand Guide the design of questionnaires to get reliable, honest data from trial participants, particularly when questions are about sensitive topics Sit on your steering committee, to provide input based on their direct experience of the topic being investigated Please see our Standard documents, templates and procedures to download the guidelines for researchers accessing any of the PPI groups and feedback form for PPI activities (for completion at the end of your PPI activity). NIHR resource links below and other helpful organisations Tips on writing a PLAIN ENGLISH SUMMARY Briefing notes for researchers - public involvement in NHS, health and social care research Payment guidance for researchers and professionals UK Standards for Public Involvement Connect with expertise Raising Voices in Research RViR (Hampshire and Isle of Wight) Public Involvement front Door You can also search for advice and tips using the NIHR Learning for Involvement search page The NIHR has a series of PPI in Action Webinars which you can watch below Aimed at researchers and public members alike, each section gives a short introduction to all elements needed to be considered for good quality PCIEP, with additional resources available for those needing more detailed information. UK Standards for Public Involvement Produced by the NIHR, this is a framework for what good public involvement in research looks like and designed to help researchers and organisations improve the quality and consistency of public involvement in health and care research. Reaching Out: Building relationships to increase research impact A report written about an online event where community groups, researchers and NIHR organisations from Kent, Surrey and Sussex came together to explore the barriers to ethnic minority group involvement in research and to consider what could be done to address these through partnership working. Learning for Involvement NIHR web pages offering Training and Resources for Public Involvement in Research. If you have any queries please email the PCIEP Team ppiesupport@uhs.nhs.uk

3a7ef7ca-de0e-49f1-be5c-8349df40131c ADOPTED: Community Alternatives to aCute Hospitalisation for Older People who have Fallen (CAtCH-Falls) Principal Investigator: Dr Sara McKelvie, GP & NIHR Clinical Lecturer at the Primary Care Research Centre, University of Southampton. Team members: Lois Woods, Southampton Health Technology Asessments Centre, University of Southampton. Dr Rachel Dewar-Haggart, Primary Care Research Centre, University of Southampton. Professor Peter Griffiths, Health Sciences, University of Southampton Associate Clinical Professor Jacqui Prieto, Health Sciences, University of Southampton Dr Dan Baylis, Chief Medical Officer, NHS Solent Foundation Trust Dr Syed Hasan, Clinical Lead for Virtual Wards, NHS England Dr Elizabeth Angier, PhD student Main funding: NIHR School For Primary Care Research Starts: 1 April 2024 Ends: 31 March 2026 Summary Each year 30% of older people living in the community fall and are often taken to hospital for assessment. National guidelines recommend that after a fall, older people have a thorough check up and help to prevent further falls. We currently don’t know what the best assessment is for older people who fall and are assessed at home. There are several health services which can assess people in the community without a hospital visit. These can be described as “Community Alternatives to aCute Hospitalisation” (CAtCH) services. In different areas in the country these services have different team members, resources and ways of working. Research is needed who and what is needed to work in CAtCH services, particularly to support older people who have fallen. This study plans to look at previous work in this area by looking at published articles, service reports, government documents and internet resources to find out what is essential for these services. We also plan to survey and interview people who work in CAtCH services in the UK to understand what is available for older people who have fallen. The research findings will be used to develop resources for patients, the public and healthcare workers to showcase CAtCH services. The team also plan to produce a report for healthcare commissioners and support policy-makers. It will also allow the team to apply for further research funding in this area including further projects to look at public awareness of CAtCH.

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894e3c82-d20e-4fbc-a56a-7d96277ba61e COMPLETED: PARTNERS Project: Development and implementation of a digital tool for multisectoral support and management of long-term condition PARTNERS Project: Development and implementation of a digital tool for multisectoralsupport and management of long-term condition Principal Investigator: Professor Mari-Carmen Portillo Co Applicants : Line Bragstad, Dr Dorit Kunkel, Dr Kat Bradbury, Dr Lindsay Welch, Hayden Kirk, Dr Caroline Barker, Sandra Bartolomeu Pires, Christopher Edwards, Lindsay Cherry, Francesca White, Caroline Aylott, Cathal Doyle. Partners: University of Southampton, University of Oslo, Solent NHS Trust, University Hospital Southampton NHS Foundation Trust, Hampshire and Isle of Wight ICS, Versus Arthritis, and Parkinson’s UK. Lay Summary Background to the research : Self-management is an approach to help people with long term conditions manage their health daily. Existing NHS self-management tools focus on healthcare (medication management, appointments) and fail to capture aspects of how people live with and adjust to long-term conditions. This includes social support (family/friends) and other resources and networks available like the voluntary sector, industry and community groups.We have created an intervention (an action to improve a situation or prevent it getting worse) to support self-management for people with Parkinson’s Disease and their family/carers. This intervention recognises the role of social support, voluntary sector, industry, and community groups in adjusting to living with a condition. Our next step is toadapt this intervention to the needs of people living with other conditions like Arthritis and for those living with more than one condition and create a digital tool. Aim of the research : To develop, implement and evaluate a digital tool that supports the management of people with Parkinson’s Disease and/or Arthritis. The tool will support professionals and other organisations to connect, share resources and optimise communication and referrals, leading to more personalised and cost-effective use of resources (beyond healthcare) in the community. Design and methods: The research will take place in community settings in Wessex. We will prioritise disadvantaged groups (those less comfortable using technology and less able toaccess available resources and support). We will : 1. Work with our patient and public involvement (PPI) representatives, relevant voluntary organisations, health and social care providers, and key people involved in policy making and NHS strategy. They will have a voice ineach decision to ensure our tool is relevant and acceptable to those using it. 2. Host discussion groups with people with Parkinson’s Disease and/or Arthritis and theirfamily/carers to understand the positive and negative aspects of existing digital tools, from a patient perspective. 3. Design our self-management tool. 4. Test the tool through two primary care surgeries (GP) and voluntary organisations (Parkinson’s UK and Versus Arthritis).Testing will help understand how the tool is used and what helps or hinders its success. Deliverables : The research will generate: a digital tool to support more effective self-management of Parkinson’s Disease and/or Arthritis, recommendations for policy development, evidence for how to improve NHS services. Public Patient Involvement: We willwork with people with Parkinson’s Disease and/or Arthritis and their families/carers. We will work together as equal partners to define their level of involvement, roles, methods to input and training needs. We will also explore what works best or what we should do differently intheir involvement. Dissemination : We will share our learning across the different groups involved. This will include presentations, policy briefings, newsletters, and public events. What did we find out? We found that people with Parkinson’s and/or arthritis, their carers and professionals involved in their care wanted a digital app that was: • Simple • Easy to navigate • Hybrid – in person contact also signposted Included: • Community resources from voluntary/charity sector • Free or inexpensive resources • Links to peers/buddy for support What next? PARTNERS 2 has evolved, as a continuation project. This allowed time for: • A suitable digital company to be found with previous experience of working with people with health condition • Full briefing of the digital company about what was required of the digital web app. • Development of a prototype app The PARTNERS 2 project will now: Develop the prototype app with User involvement through a series of online workshops, feedback sessions and interviews. Aim to gain full exposure of the app by having it adopted onto the My Medical Record platform at the University Hospital Southampton NHS Foundation Trust.

Meet our academy - Interns, PhDs and Post-Docs We all grow throughout our lives, and the our Academy is here to help expand the number of people in Wessex conducting high quality applied health research. It's part of our legacy to the health and social care community across Hampshire, Dorset and the Isle of Wight. This page lists those people who have joined us in their journey to enrich our research community. There are internships for people starting their research journey, PhD awards for those wanting to develop their experience and research career, and Post-Doctoral Awards to help drive the research agenda in Wessex. Internships Mr Mark Green Justin Strain Anna Wells Dr Cheska Ball Dr Sofia Michopoulou Naomi Purdie Megan Pound Cherish Boxall Emma Stennett Jan Cavolina Dr Camilla Holmes Mrs Cathy Pogson Ms Deborah Butler Samuel Page Dr Theo Akudjedu Mrs Victoria Tweedy Ms Jo Murfin Ms Lauren Green Ms Lucy Bakewell Ms Danni Swaithe Dr Eloise Radcliffe Ms Lisa Osborn- Jenkins Ms Rachel Middle Ms Rayan Taher Mrs Stefanie Gibb Mrs Krisi Downton Mrs Eirini Manali Ms Kim Yun Jung Emily Leach Madison Geeves Nicola Legg Nour Odeh Paul New Raquel Lima Rebecca Verling Catarina Fandinga Daniella Matteccui Andrea Brimson Clare Phillips Kirtsy Ballinger Clare Pinder Jennifer Malpass Wellington Tshabangu Niall Berry Christina Leadley Sara Ribeiro Blue Pike Harriet Wilding Joshua Bailey Katherine McGinn Katie Brown Sarah Curtis Kate Gillet Ellenor (Elle) Gray Bhavin Dedhia Sharon Court Matthew Wood Dr Carolina Machuca-Vargas Sawsen Sabbah Dr Donna Austin Jia Pei Ong Bessie Brumble Jennifer Thomson Ross Diaper JJ Hudson-Colby Karen Irons Ellie Maynard Lee Titmus Gail Mann Keira White Laura Smith Carol Lo Konstantina Panopoulou Luke Sammut Rebecca Edwards Jo Laud Beth Lyon Sophie Robertson Amber Hancock Samia Turkinstani Rebecca Weeks Daniel Seow Krzysztof Cepa Peter Cope Michelle Trevett Karina Green Olufolake Ayeyemi Stuart Vail Tracey Carus Sam Jakeway Hayley Skinner Sophie Enright Joanne Palmer Kate Herriotts Olivia Epps Angus Kent From: Portsmouth Hospitals University NHS Trust Ambulatory care: exploring an alternative care pathway to support patients with a diagnosis of Heart Failure Long Term Conditions theme From: Hampshire Hospitals NHS Foundation Trust Project Title: Effects of previous traumatic pain memories on the current pain experience for people with haemophilia Brief summary of project: Haemophilia is a life-long condition which can cause repeated bleeding into muscles and joints, leading to synovial hypertrophy, destruction of the articular cartilage and haemophilic arthropathy. Due to a lack of treatment in their youth, many adults with severe haemophilia will have experienced multiple painful bleeding episodes, and research suggests that 50% of people with haemophilia (PWH) report experiencing chronic pain. Currently, the factors that drive and influence the chronic pain cycle in this patient group are poorly understood. Many PWH display physical and psychological symptoms which could be linked to post-traumatic stress but there is very little mention of this concept in the literature. This six month internship project consists of a scoping review of the literature and some initial patient and public involvement (PPI) work, to help inform further patient-centred co-designed research. The overarching aim is to gain a deeper understanding of the interaction between psychological and physical influences on chronic pain, to help improve the care we provide and to improve the health, wellbeing and health outcomes for PWH. Long Term Conditions theme Supervisors and organisations involved: Academic Supervisor: Dr Debra Gray, University of Winchester Mentor: Dr David Stephensen, Clinical Academic, Deputy Director of East Kent Hospitals University NHS Foundation Trust Supervisor: Dr Kelly Hislop Lennie, University of Southampton; Long Term Conditions Research Group Hear what Anna has to say about her internship journey From: Southern Health NHS Foundation Trust Project Title: A qualitative evaluation of the experiences of individuals with persistent pain participating in online pain management interventions. Brief Summary of Project: This study aims to explore the experiences of individuals with persistent pain participating in online pain management interventions. It involves a systematic review and narrative synthesis of literature regarding individuals' experiences of online pain management interventions. The study will also conduct up to 10 semi-structured interviews with individuals who have recently undertaken an online group pain management programme within Southern Health NHS Foundation Trust's South West Hampshire Pain Management Service. Long Term Conditions and Ageing and Dementia themes Supervisors and Organisations involved: Supervisor - Dr Euan Sadler. School of Health Sciences, University of Southampton. Southern Health NHS Foundation Trust. Ageing and Dementia Theme. Supervisor - Dr Lindsay Welch. School of Health Sciences, University of Southampton. Long Term Conditions Theme. Organisations – NIHR ARC Wessex, University of Southampton, Southern Health NHS Foundation Trust. Search strategy document See what Justin thought about his internship and what it means for the future From: Dorset County Hospital NHS Foundation Trust Project title: A systematic review of the effects of medical and allied health professional staffing focussed on junior doctors shift patterns and it effects wellbeing and burn-out Brief summary of project: I am writing a systematic review and am gathering data on Junior Doctors from Dorset County Hospital via a survey on the topic of shift-work, and how this may, or may not, impact upon burnout amongst this cohort. I will be focusing on burnout, fatigue and well-being. The overall aim is to identify features of shift-work and the rostering process that may contribute to burnout, so as to encourage the implementation of change where possible and improve the working-lives of Junior Doctors. I am also involved in the on-going Pan-Dorset rostering and job-planning project which has a focus on the rostering system for Junior Doctors. I hope to bring my research findings to this project so as to positively contribute to the improvement of rostering for Junior Doctors across Dorset. Workforce and Health Systems theme Supervisors: Alastair Hutchison, Medical Director and Consultant, Dorset County Hospitals NHS Foundation Trust Peter Griffiths, Chair of Health Services Research, NIHR Senior Investigator, University of Southampton Zoe Sheppard, Head of Research, Dorset County Hospitals NHS Foundation Trust See what Cheska has to say about the internship Project title: Biomarker Research Assessing Inflammation in Neurodegeneration (BRAIN) Brief summary of project: This project aims to improve the diagnosis of dementia and enable early identification of patients who are likely to experience rapid progression of their symptoms. There are over 850,000 people living with dementia in the UK, and it takes on average over 2 years from symptom onset to diagnosis. Systemic inflammation is a driving force that accelerates dementia progression. Markers of inflammation from body fluids may help evaluate dementia progression. This project will measure targeted biomarkers of inflammation in patient samples and assess their value in early diagnosis of dementia. Supervisors and organisations involved: Academic Supervisor: Prof Jessica Teeling, Experimental Neuroimmmunology, University of Southampton Clinical Supervisor: Prof Chris Kipps, Consultant Neurologist, University Hospital Southampton NHS Foundation Trust Ageing and Dementia Theme From: Southern Health NHS Foundation Trust Project title: How are the physical health needs of older people addressed in older peoples mental health (OPMH)? - A systematic review of literature Brief summary of project: My aim is to develop my research skills by completing a systematic literature review looking at how the physical health needs of older people are addressed in those with mental health diagnosis. This systematic review will enable me to search for relevant literature, and extract and discuss the findings. This will enable me to gain evidence to inform clinical practice within the trust. Supervisors and organisations involved: Supervisor - Michele Board - Academic supervisor Bournemouth university Abby Barkham – Clinical Supervisor Southern Health NHS Foundation Trust Liz Taylor supporting manager, Southern Health NHS Foundation Trust Ageing and Dementia Theme Naomi's Internship journey From : University of Portsmouth Project title: Co-production with and for vulnerable young people Brief summary of project: This was a 3-month part time internship resulting in 3 key outputs; a podcast discussing the 'Tracking Vulnerable Children in Schools' project introduced due to the Covid-19 lockdowns, a blog post exploring how co-production could benefit Portsmouth as a 'restorative city' and a report following from my interviews with young care leavers, discussing their experiences of service provision in care, which also fed into the larger PSCP Neglect Deep Dive report and findings. Healthy Communities theme Supervisors and organisations involved: Supervisor: Wendy Sims-Schouten (University of Portsmouth) Organisations: Portsmouth Safeguarding Children Partnership and Portsmouth City Council Read her blog here Cherish Boxall is a Clinical Trials Manager in Southampton and her internship project looked at SWAT priorities to improve the evidence to inform recruitment and retention practice in clinical trials. Here's what she thought of the internship From :University Hospital Southampton NHS Foundation Trust How nutritional status is assessed and monitored in patients with liver cirrhosis in routine Hepatology outpatient clinics Long Term Conditions theme From: University Hospital Southampton NHS Foundation Trust Urine output: how and why it is monitored in acute medical environments? Ageing and Dementia theme Jan is a paediatric Occupational Therapist in Poole. Project: Are school motor skill programmes that are designed by occupational therapists, physiotherapists and/or educational psychologists but delivered by school staff effective in improving the motor skills of typically developing children aged between 4-11years with motor skill difficulties and therefore improving functional tasks? From : University Hospitals Dorset NHS Foundation Trust What are older people’s experiences of frailty prevention interventions in acute hospitals? A scoping review Ageing and Dementia theme From: Portsmouth Hospitals University NHS Trust Comprehensive medication review using the validated STOPP-START toolkit in haemodialysis patients identified to have a frailty score of 5 or more using the validated widely used clinical frailty scale (CFS) Ageing and Dementia theme From : Dorset County Hospital NHS Foundation Trust Establish current practice and challenges in the treatment of pubic rami fractures Ageing and Dementia theme From: Bournemouth University Dementia, Ageing, Radiography, Neuroimaging/ Clinical Neuroscience Ageing and Dementia theme From : Dorset County Hospital NHS Foundation Trust Is there a link between Covid 19 and developing Dementia? Ageing and Dementia theme From : University Hospital Southampton NHS Foundation Trust Optimisation of nutrition and frailty prior to cardiac surgery Ageing and Dementia theme From : University Hospital Southampton NHS Foundation Trust Identifying hidden vulnerabilities in patients who present with Major Trauma: a retrospective case note review to inform service development Healthy Communities theme From : University of Winchester To be able to provide standard IF nutritional guidelines - missing at present Healthy Communities theme From: University Hospitals Dorset NHS Foundation Trust To formulate a research question around the Attentional Deficits on Stroke Recovery Long Term Conditions theme From : University of Southampton People living with cancer that is treatable but not curable and their partners: changes in roles, relationships and social networks over time Long Term Conditions theme From : University Hospital Southampton NHS Foundation Trust Self-management of back pain and musculoskeletal long-term conditions Long Term Conditions theme From : Isle of Wight NHS Trust Severe Mental Illness and digital literacy Long Term Conditions theme From : Hampshire Hospitals NHS Foundation Trust The Quality of Life of Pseudomyxoma Peritonei Patients: A Systematic Review Long Term Conditions theme Researcher Initiation Award From : Dorset County Hospital NHS Foundation Trust Long Term Conditions theme From : University Hospitals Dorset NHS Foundation Trust, Bournemouth University What is the evidence for the use of Cognitive Rehabilitation Therapy for stroke interventions in Early Supported Discharge? Long Term Conditions & Ageing and Dementia themes From : University Hospital Southampton NHS Foundation Trust Workforce and Health Systems, Critical Care Workforce and Health Systems theme Project title: Social network facilitated engagement in people who are Homeless to address InEqualities in alcohol-related Liver Disease (SHIELD): A pilot study Plain English summary People who are homeless (PWAH) are known to have low rates of engagement with community health services. Poor engagement with liver care services has consequences for PWAH and is likely to contribute to the worse outcomes. Barriers and facilitators to the alcohol related liver disease care pathway for PWAH have not been explored and the level of engagement by this population is poorly quantified. During the internship I will work on a small pilot study (The SHIELD study) that is investigating the potential to use social networks to identify early-stage liver disease in this group. The research outcomes achieved from this award will greatly impact on the determining success of feasibility of the SHIELD study. My project entails interviews with PWAH in community. This is a unique opportunity for me to meet them as healthy individuals with potential disease progression in community as my current care predominantly focuses on patients who are engaged with the healthcare team in secondary care. I will gain a better understanding of our patient group by networking with them through research. Interacting with this group and listening to their thoughts on alcohol and alcohol related liver disease will enhance my patient-centred care. I will also get an opportunity to learn delivering Patient and Public Involvement and Engagement (PPIE) activity in research. Academic Supervisor: Dr Ryan Buchanan, Associate Professor of Hepatology, Honorary Consultant Hepatologist, University of Southampton Mentor : Dr Kinda Ibrahim, Academic Geriatric Medicine, University of Southampton Dr Andy Fox, Consultant pharmacist in Medicines Safety, University Hospital Southampton NHS Foundation Trust Project Title: Understanding the thoughts and experiences of potential users of 3D-printed foot orthoses from vulnerable patient groups. I am a Podiatrist working clinically within Solent NHS Trust. I have research experience in Musculoskeletal and Rheumatic diseases, chronic pain and foot orthoses. In this project I aim to undertake scoping of the literature and gather feedback and advice from potential vulnerable ‘users’ of foot orthoses to collect group-constructed views on barriers and drivers to foot orthoses prescription. Respiratory Physiologist, Hampshire Hospitals NHS Foundation Trust Project title: Accessing the efficacy of the Forced Oscillation Technique (FOT) in routine clinical practice at HHFT for diagnosis and management of asthma and COPD Dental Nurse, University of Portsmouth Dental Academy Project title: Brush UP-SEN: Improving the oral health of children with special educational needs. A feasibility study Research lead, Oaks Healthcare NHS GP Practice Project title: Service evaluation of the barriers and facilitator of research delivery in Primary Care Physiotherapist, HMP Winchester Project title: The Prison Pain Project - Chronic Pain management in Secure Settings I graduated from physio school in 2006 at the University of Southampton and gained a clinical masters’ degree in sports physiotherapy from the University of Bath. I currently provide physiotherapy care to 3 prisons in the south central region. My special interest is chronic pain management and my internship project aims to investigate how chronic pain programmes can support the safer prescribing of pain medication in the prison system. I live in Stubbington, Fareham with my wife and we have to children who are students too. Neonatal Sister, University Hospital Southampton NHS Foundation Trust Project title: Rapid, standardised neurodevelopment surveillance at age 2 years in neonatal follow-up clinics on the INTERGROWTH-21st Neurodevelopment Physiotherapist, Isle of Wight NHS Trust PARTNERS project : Development and implementation of a digital tool for multisectoral support and management of long term condition. Data Science Internship Paediatric Dietitian, University Hospital Southampton NHS Foundation Trust Project title: To evaluate the implementation of a nutrition pathway in infants with congenital heart disease (CHD) and the relationship to growth. Improving access to and the quality of care for persons living with Fibromyalgia Syndrome (FMS) From: Hampshire Hospitals NHS Trust, Basingstoke and North Hampshire Hospital Project: Patient reported outcome measures (PROMs) and experience measures (PREMs) further within MSK physiotherapy out-patients Workforce & Health Systems Theme From: University Hospital Southampton NHS Foundation Trust Project Title: Alcohol Use Disorder (AUD) Ageing & Dementia theme From: Southampton University Hospital Foundation Trust Project: Transformational development in the management of adults with Cystic Fibrosis (AwCF): investigating the nutritional consequences of CFTR modulator therapy, Elexacaftor Tezacaftor-Ivacafor (Kaftrio) Workforce and Health Systems theme From: Hampshire Hospitals NHS Trust Project: Understanding the perspective of those with T1DE on the dietary information and approaches that would best meet their needs during their treatment with the ComPASSION team Long Term Conditions theme From: Solent NHS Trust Project: Oral health research for vulnerable community groups Healthy Communities theme From: Portsmouth Hospitals University NHS Trust Project: Literature review of tools used to determine staffing requirements for Allied Health Professionals Workforce and Health Systems theme From: Portsmouth Hospitals University NHS Trust Project: Systematic review of current literature supporting the use of staffing tools for physiotherapist Workforce and Health Systems theme From: Dorset County Hospital NHS Foundation Trust Project: Pelvic Floor Dysfunction Long Term Condtions theme Summary of Project: A community collaboration and evaluation of sustained digital adoption in people with long term respiratory disease who are digitally excluded: a mix methods study. Long Term Conditions theme Supervisors: Dr. Lindsay Welsh and Dr. Kate Lippiett. Project title: The use of psychological formulation to support person-centred assessment and care planning for people living with mental health long term conditions in the community: a systematic review Involved supervisors and organisations: Dr Leire Ambrosio, University of Southampton Dr Lyn Ellett, University of Southampton Isle of Wight NHS Trust About: Blue currently works across Community Mental Health Rehabilitation and Early Intervention in Psychosis Teams on the Isle of Wight delivering CBT/CBTp and supporting various aspects of service development. Blue is am aiming to utilise the internship to undertake a project exploring the existing literature base for the impact of using psychological formulation at assessment in community mental health services on person-centred care and care planning. Long term conditions theme. Brief summary of project: A literature review and PPIE project to explore the impact of long-term sickness absence on the mental health of the Armed Forces population. Place of work: Occupational Therapist working in Solent NHS, community adult mental health service. Supervisors involved: Dr Leisle Ezekiel, University of Southampton Dr Kate King, Royal Navy. From: Solent Mind Project Title: A service evaluation for a peer-led crisis support service Long Term Conditions / Ageing & Dementia theme From: Southern Health NHS Trust Project: Selective and non-reporting in clinical psychopharmacology trials: A systematic review and meta-analysis of publicly registered phase 2, 3 or 4 randomised controlled trials of pharmacologic agents without regulatory approval for unapproved indications in adults. Long Term Conditions theme From: Dorset Healthcare NHS Project: Exploring the Role of Social Support and Resilience in Perinatal Mental Health. Healthy Communities theme Project Title: The impact of storytelling on the mental health and wellbeing of the mental health workforce: a literature review. From: Hampshire and Isle of Wight Integrated Care Board About I am the Lived Experience Lead for the No Wrong Door Community Mental Health Transformation Programme at the Hampshire and Isle of Wight Integrated Care Board. Storytelling, and the impact it can have on one’s mental health, is a passion of mine and I am keen to explore the topic further. I am particularly keen to explore the impact storytelling can have on the mental health of professionals working in mental health services. I plan to do this via a review of the current literature. This aligns with the Health and Social Care Workforce theme. From: Living Well Partnership, Primary Care Network, Southampton Project: How can specialist nurse services in primary care support patients with long term conditions? Long Term Conditions theme Elle Gray is a Clinical Associate Psychologist with Solent NHS Project Title: Radical Self Compassion for Healthcare staff Brief Summary of the project: A scoping study on how to deliver a short version of the evidence based Mindful Self Compassion (MSC) intervention – Self Compassion for Healthcare Workers (SCHW) in range of Adult Mental Health Teams in the Solent Region. Mental Health teams face myriad stressors when holding complex patient risks alongside repeatedly hearing details of significant traumatic incidents, leading to the highest staff stress, sickness and burnout across the NHS workforce. This study will examine the factors relevant to all stakeholders when accessing this unique training – what conditions need to be present to deliver the right “dose” to an already overstretched workforce. Supervisors: Naomi Klepacz |PhD|CPsychol|NIHR Health Services Researcher (Workforce Wellbeing) Mila de Koning - Di Mindfulness Academie, Amsterdam, Self Compassion Trainer and Health Workforce specialist Workforce and Health Systems theme From: University of Portsmouth Dental Academy Project Title: A literature review of Dental care experiences of the underserved communities Bhavin is a dentist and academic with experience of 15 years of NHS Clinical Dentistry and academic experience of 4 years. Bhavin graduated in India and requalified in the United Kingdom through the International Qualifying Examination (IQE). Bhavin’s educational experience is of PG Certificate in Dental Law and Ethics and PG Diploma in Medical Law and Ethics and they are passionate about inclusive healthcare delivery and practices. Healthy Communities theme From: Portsmouth Hospitals University NHS Trust Sharon is a qualified teacher and youth worker with over thirty years experience of working with children and young people. She worked for ten years as a freelancer, developing and managing community engagement programmes including projects funded by the Heritage Lottery Fund and the Armed Forces Community Covenant. Prior to joining the NHS, Sharon worked with a number of local organisations including Portsmouth Cathedral where she devised and led their community engagement programme. This four year partnership included work funded by Awards for All and Arts Council England. Sharon brings a wealth of community experience and networks to her role as the Patient and Public Involvement Facilitator, where she now works supporting a successful PPIE group, including a young people’s PPIE group and creating new opportunities to engage the public with healthcare research. Sharon’s research internship with ARC Wessex is exploring whether Social Pedagogy is a good fit for PPIE practice, with a view to undertaking further, more in-depth research in the future. Long Term Conditions theme From: Dorset County Hospital Project: Development of a measure to support the WASP Service Evaluation tool. Long Term Conditions / Workforce and Health Systems theme From: University of Portsmouth Dental Academy / NIHR CRN Wessex Associate Head (Research & Innovation) / Senior Lecturer in Dental Public Health/ CRN Wessex-Oral and Dental Specialty Lead Project summary: Carolina’s research interest is currently in health data analysis and geo-mapping to understand of spatial relationships between health, the environment, and socio-economic determinants, leading to more targeted and effective interventions to improve population health and well-being. Long Term Conditions theme From: North Hampshire Hospitals NHS Foundation Trust Project: Are proactive deprescribing interventions, alongside a comprehensive geriatric assessment, associated with improved outcomes in the older and/or frail population Ageing & Dementia / Long Term Conditions theme From: University Hospital Southampton Foundation Trust Project: What are the informational needs of parents regarding their child’s critical illness in the acute period of a PICU admission Long Term Conditions theme From: University Hospital Southampton Foundation Trust Project: Systematic review of effects of opioid use in adult patients with ventilation in Intensive Care Unit Ageing & Dementia theme From: University Hospitals Dorset Project: To explore if hybrid closed loop systems have influenced eating behaviors in adults From: University Hospitals Southampton Project: Early careers pharmacists experience of progressive posts and career development, a qualitative investigation From: Hampshire and Isle of Wight NHS Trust Project: A scoping review of point of care ultrasound (POCUS) practice in musculoskeletal (MSK) foot and ankle clinics From: University Hospitals Southampton Project: Developing and evaluating a breathing pattern retraining and exercise class for people living with chronic respiratory conditions - A class above the rest Project: Pelvic Health Training: Can Musculoskeletal Practitioners be upskilled to help meet NICE guideline recommendations? Karen is a passionate physiotherapist specialising in the fields of musculoskeletal care and pelvic health. Alongside these clinical interests, Karen has also taken a keen interest in quality improvement and research. She is now excited to be able to combine these interests within her research internship. Brief Summary of Project: Karen’s study aims to investigate MSK practitioners’ perceptions regarding the potential benefits of pelvic health training; the current gaps in their training; & their current confidence levels. An exploration of current training packages will also be conducted to identify how such training might need to be adapted to meet the MSK practitioners’ scope of practice. Academic Supervisor: Katherine Cook PhD BSc(Hons) HCPC MCSP SFHEA, Physiotherapy Programme and Faculty Ethics Lead & Senior Lecturer, University of Winchester Clinical Supervisor: Anna Gudgeon, MSK Physiotherapist and Education Lead for the Gosport Central PCN Additional mentor: Professor Sarah Dean, Professor of Psychology Applied to Rehabilitation and Health, Co-Director Postgraduate Research (Department of Health & Community Sciences), University of Exeter Medical School Organisation: Hampshire & Isle of Wight Healthcare NHS Foundation Trust From: Hampshire and IoW NHS Trust Project: Assessing the psychological wellbeing of people with moderate and severe aphasia: a patient and public involvement and engagement project exploring the views of people with severe and moderate aphasia, Psychologists and Speech and Language Therapists. From: University Hospitals Southampton Project: Evaluating the need for level 3 care post thrombectomy: A focus on the the factors that may predict the need of level 3 vs level 2 care From: Portsmouth City Council/ Health Determinants Research Collaboration Portsmouth Project title: Building research partnerships from theoretical foundations: a knowledge mobilisation project. Brief Summary of Project: This project aims to apply ideas from realist social theory to the practical challenge of supporting effective cross-sector collaborations that involve research and learning. I will be learning through observations of collaborative practice in UK health and care systems, experiences of involvement from public representatives and practitioners, and through applying/discussing the application of the theory to practical contexts via national/ international conference attendance and presentations. Ageing and Dementia theme Supervisor: Professor Ruth Bartlett, University of Southampton: ARC Wessex Ageing and Dementia Theme. Supervisor: Innes Richens, Health and Care Lead, HIVE Portsmouth From: University of Portsmouth Project: Co-production of research process for exploring the impact of blue space on young people with disabilities From: University Hospitals Southampton Project: Task Coordination and Allocation System (TCAS) - aims to research a digital change initiative for the RT Physics workforce Team award working with Konstantina Panopoulou and Luke Sammut From: Portsmouth Hospital University NHS Trust Project: Walking football and axial spondyloarthritis: Assessing feasibility, safety and patient reported Team award working with Carol Lo and Luke Sammut From: Portsmouth Hospital University NHS Trust Project: Walking football and axial spondyloarthritis: Assessing feasibility, safety and patient reported Team award working with Konstantina Carol Lo and Konstantina Panopoulou From: Portsmouth Hospital University NHS Trust Project: Walking football and axial spondyloarthritis: Assessing feasibility, safety and patient reported Theme: Long term conditions I am a Consultant rheumatologist in Portsmouth Hospitals University NHS Trust with an interest in sports and exercise medicine. Our current project “Walking football and axial spondyloarthritis: Assessing feasibility, safety and patient reported outcomes” explores the potential of walking football as an emerging and exciting mode of physical activity for individuals with axial spondyloarthritis. Team award working with Jo Laud and Beth Lyon From: Southern Health NHS Foundation Trust Project: Potentially preventable transfers of adults with a learning disability to urgent and emergency hospital care: A collaboration to identify research issues and priorities and to inform future research. Team award working with Rebecca Edwards and Beth Lyon From: Southern Health NHS Foundation Trust Project: Potentially preventable transfers of adults with a learning disability to urgent and emergency hospital care: A collaboration to identify research issues and priorities and to inform future research. Team award working with Rebecca Edwards and Jo Laud From: Southern Health NHS Foundation Trust Project: Potentially preventable transfers of adults with a learning disability to urgent and emergency hospital care: A collaboration to identify research issues and priorities and to inform future research. Team award working with Amber Hancock, Samia Turkinstani and Rebecca Weeks From: Portsmouth Hospital University NHS Trust Project: TOOTH FAIRY- Tackling childhood Obesity and improving Oral health THrough a multidisciplinary approach Team award working with Sophie Robertson, Samia Turkinstani and Rebecca Weeks From: Portsmouth Hospital University NHS Trust Project: TOOTH FAIRY- Tackling childhood Obesity and improving Oral health THrough a multidisciplinary approach Team award working with Sophie Robertson, Amber Hancock and Rebecca Weeks From: Portsmouth Hospital University NHS Trust Project: TOOTH FAIRY- Tackling childhood Obesity and improving Oral health THrough a multidisciplinary approach Team award working with Sophie Robertson, Amber Hancock and Samia Turkinstani From: Portsmouth Hospital University NHS Trust Project: TOOTH FAIRY- Tackling childhood Obesity and improving Oral health THrough a multidisciplinary approach Team award working with Krzysztof Cepa, Peter Cope and Michelle Trevett From: Dorset County Hospital Project: To what extent does polypharmacy, particularly the use of fall-risk increasing drugs (FRIDs), influence the frequency of falls in the over-65 demographic in Dorset and how can we use the data available to identify the most vulnerable patients and decrease hospital admissions in this population? Team award working with Daniel Seow, Peter Cope and Michelle Trevett From: Dorset County Hospital Project: To what extent does polypharmacy, particularly the use of fall-risk increasing drugs (FRIDs), influence the frequency of falls in the over-65 demographic in Dorset and how can we use the data available to identify the most vulnerable patients and decrease hospital admissions in this population? Team award working with Daniel Seow, Krzysztof Cepa and Michelle Trevett From: Dorset County Hospital Project: To what extent does polypharmacy, particularly the use of fall-risk increasing drugs (FRIDs), influence the frequency of falls in the over-65 demographic in Dorset and how can we use the data available to identify the most vulnerable patients and decrease hospital admissions in this population? Team award working with Daniel Seow, Krzysztof Cepa and Peter Cope From: Dorset County Hospital Project: To what extent does polypharmacy, particularly the use of fall-risk increasing drugs (FRIDs), influence the frequency of falls in the over-65 demographic in Dorset and how can we use the data available to identify the most vulnerable patients and decrease hospital admissions in this population? From: Dorset County Hospital Project: Inclusive Healthy Communities: Ensuring Equality of Access for Neurodiverse Individuals From: Home-Start Portsmouth Project: The Experiences of Parent Carers Seeking Out-of-Education Activities for Children and Young People with SEND. As the Neurodiversity Coordinator at Portsmouth Parent Voice, she works with parents to develop Parent Hubs and liaises closely with schools and service providers to improve outcomes for children and young people with neurodiverse needs. With a strong background in co-production, she gathers and presents family feedback to help shape the delivery of local services. As the founder of Moriah Family Support Group, she provides culturally sensitive support to parent carers, promoting empowerment through regular coffee mornings and collaboration with professionals. Olufolake has also contributed as a Community Peer Researcher with Solent NHS Trust, investigating barriers faced by families accessing out-of-education activities and services for their children and young people. Her experience includes roles as a parent governor in a secondary school and a parent representative in the community, advocating for inclusive practices in education and children’s services. With a bachelor’s degree in Computer Science and a foundation in IT support, she brings both analytical and empathetic skills to her work. She is passionate about equity, collaboration, and meaningful community engagement. Team award working with Tracey Carus, Sam Jakeway and Hayley Skinner From: Hampshire County Council Project: Implementing an Outcome Framework to Measure the Impact of Hampshire County Council (HCC) Day Services for Adults with Learning Disabilities (LD). Team award working with Stuart Vail, Sam Jakeway and Hayley Skinner From: Hampshire County Council Project: Implementing an Outcome Framework to Measure the Impact of Hampshire County Council (HCC) Day Services for Adults with Learning Disabilities (LD). Team award working with Stuart Vail, Tracey Carus and Hayley Skinner From: Hampshire County Council Project: Implementing an Outcome Framework to Measure the Impact of Hampshire County Council (HCC) Day Services for Adults with Learning Disabilities (LD). Team award working with Stuart Vail, Tracey Carus and Sam Jakeway From: Hampshire County Council Project: Implementing an Outcome Framework to Measure the Impact of Hampshire County Council (HCC) Day Services for Adults with Learning Disabilities (LD). From: Minstead Trust Project: What are the barriers for social care staff at Minstead Trust in implementing Total Communication training, as a route to enable greater inclusion and engagement with someone with a learning disability? From: University Hospitals Southampton NHS Foundation Trust Project: Factors Affecting Retention of Experienced Paediatric Advanced Critical Care Practitioners From: University Hospitals Southampton NHS Foundation Trust Project: Research to understand the impact of PCCOT through my research question. Paediatric Outreach Advanced Practitioner (AP) at University Hospital Southampton. Kate trained at Southampton University, based in Portsmouth and worked on the paediatric assessment unit in Portsmouth before heading to the Evelina Paediatric Intensive Care Unit (PICU) where she developed cardiac and general intensive care experience. In 2015, Kate was successfully appointed as the practice educator for a children’s hospice. She started at Southampton Children’s Hospital in 2018 with the Paediatric Outreach team. Since then she has undertook the Advanced Practice MSc, completing her dissertation implementing a service improvement project for hot debriefs following unplanned PICU admissions. She is passionate about high quality patient care and empowering nursing staff. She is the chair of the Paediatric Critical Care Society, Special Interest Group for Paediatric Critical Care Outreach Teams. She loves the variety of being an outreach Advanced Practitioner focusing on patient care through clinical excellence, supporting continued clinical education within the team by facilitating monthly educational team days and regular teaching within the hospital. She has completed the Associate Principal Investigator for the multi-centre, Bach B study. This passion for research, integrating evidence into practice and inspiring other, is why Kate has taken on this internship opportunity with the vision of becoming a clinical academic practitioner, with special research interest in the impact of a PCCOT on the workforce within a Childrens Hospital. From: University Hospitals Southampton NHS Foundation Trust Project: Does age and/or frailty impact on dysphagia severity and outcomes following critical illness? Olivia is the Lead Speech & Language Therapist for General Intensive Care and Surgery at University Hospital Southampton. Her specialist interests are around dysphagia (swallowing difficulties) and laryngeal function during and after critical illness, particularly in the ageing and frail populations. She also have long-standing interests in quality of life, mental capacity, and informed-decision making across the critical care pathway. This internship is Olivia’s first step in to dedicated research time, exploring the current literature relating to dysphagia resulting from critical illness, and whether age and/or frailty are predictive factors for severity and recovery. Olivia also look forward to championing AHP involvement in research. From: University Hospitals Southampton NHS Foundation Trust Project: Emergency care clozapine omission - a literature review Pre-application support fund holders Phil Morgan Qian Yue Tan Rosalynn Austin Konstantinos Ioannidis Stephanie Hughes From: Dorset Healthcare University NHS Foundation Trust Project Title: What works when supporting people to live well in their communities? A realist evaluation of the process and impact of interventions delivered in partnership between the VCS and NHS as part of the transformed community mental health model (NHSE 2019). Dr Phil Morgan is the Head of Nursing, Therapies and Quality for Mental Health for Dorset HealthCare University NHS Trust. He completed his PhD titled Towards co-production: An exploration of the impact on technology on future citizenship alongside people with mental health challenges in 2024. An occupational therapist by background Phil has worked in range of mental health, substance misuse and learning disabilities services. He is passionate about collborating with people with lived/living experience and played a key role in establishing the Dorset Wellbeing and Recovery Partnership, a partnership between Dorset HealthCare and peer-led mental health charity the Dorset Mental Health Forum. From: Portsmouth Hospital University NHS Trust Project: Anti-HI-Falls study From: Portsmouth Hospitals University NHS Trust & University of Stavanger, Norway Project: Research within digital technologies focused on the development of technologies and their effectiveness to decrease hospitalisations and improve patient outcomes From: Southern Health NHS Trust Project: Geospatial associations between gambling disorder incidence and socio-economic determinants Dr Konstantinos MD MSc AFHEA MRCPsych PhD is a Consultant Psychiatrist and Clinical Lead of the Southern Gambling Service and an Honorary Senior Clinical Lecturer of the University of Southampton. In the current project he is investigating how socio-economic determinants are influencing gambling disorder incidence. From: University of Southampton Project: Self-management of long-term conditions, with a particular interest in alcohol use disorder Dr Hughes is a Research Fellow at The University of Southampton. She expertise in qualitative research methods, self-management of illness and long term conditions. I am currently working in the field of alcohol, specifically conducting research with older adults with alcohol use disorder. Dr Hughes is applying for funding to combine alcohol research with their other research passions; women’s health and midlife age groups. PhD Fellowship Samantha Belfrage Qian Yue Tan Alex Smith Sandra Bartolomeu Pires Anna Badley Sam Porter Rosie Harper Samuel Alugsi Jenny Barker Suzanne Shepperd Linda Amungwa Developing and evaluating the feasibility of a community-based health literacy intervention to empower socially disadvantaged parents/carers of children aged 0-4 years to m anage minor childhood illness and confidently navigate health services Project Team Members: Professor James Faulkner – University of Winchester, Dr Margaret Husted – University of Winchester, Dr Simon Fraser– University of Southampton, Dr Sanjay Patel – University Hospital Southampton NHS Foundation Trust Organisations Involved: University of Southampton, University of Winchester, University Hospital Southampton NHS Foundation Trust Brief summary of project: This research project aims to make community- based intervention recommendations to increase the health literacy of parents/ caregivers of children aged 0 to 4 years. This project will use a systematic review and sequential descriptive mixed method designs to meet the following research aims: • Research Aim 1: establish the effectiveness of community-based health literacy interventions aimed at parents • Research Aim 2: generate evidence of the validity of the Parent Health Literacy Questionnaire (pHLQ) • Research Aim 3: profile the health literacy of parents living in areas of high deprivation • Research Aim 4: identify interventions which could meet the health literacy needs of parents living in areas of high deprivation Patient and public involvement will be sought throughout this research project. Listen to her latest Podcast - Finding the Power in Empowerment - Episode One - Long Term Conditions- Sam and Lynn are joined by guests Holly and Mick. Project title : The PD Life Study – Exploring the treatment burden and capacity of people with Parkinson’s and their caregivers Brief summary of project: Treatment burden is the effort of looking after your health and its impact on you. High treatment burden can lead to poor quality of life and difficulties adhering to treatments. Treatment burden is balanced by capacity, which is the ability to manage treatment burden. This study will explore the experiences of treatment burden and capacity in people with Parkinson’s (PwP) and their caregivers. We will initially conduct interviews with PwP and caregivers in Hampshire to explore their views and experiences of the factors that influence treatment burden and capacity. This will be explored further in a national survey for PwP and caregivers with support from Parkinson’s UK. We will then form focus groups with key stakeholders to discuss the findings and prioritise recommendations for change. This study will enable us to develop recommendations of ways to reduce treatment burden or enhance capacity in PwP and their caregivers. Supervisors and organisations involved: Supervisor: Professor Helen Roberts, University of Southampton, University Hospital Southampton NHS Foundation Trust, Lead Ageing and Dementia Theme Supervisor: Dr Kinda Ibrahim, University of Southampton, Ageing and Dementia Theme Supervisor: Dr Simon Fraser, University of Southampton, Long-term Conditions Theme Project Title: A COMmunity Pharmacy-based intervention to identify people with undiagnosed Alcohol related liver Cirrhosis (The COMPAC Study) Supervisors: Primary – Julie Parkes, University of Southampton Secondary - Ryan Buchanan, University of Southampton Janisha Patel, University Hospital Southampton NHS Foundation Trust Kinda Ibrahim, University of Southampton Healthy Communities ARC theme Development of an integrated care model for patients and families living with long term neurological conditions Project Team Members: Professor Mari Carmen Portillo – University of Southampton, NIHR ARC Wessex lead for Long Term Conditions Theme, Dr Dorit Kunkel – University of Southampton, Research Design Service South Central, Professor Christopher Kipps – University Hospital Southampton NHS Foundation Trust, Professor Nick Goodwin – Central Coast Research Institute, The University of Newcastle, Australia Organisations Involved: University Hospital Southampton NHS Foundation Trust, Hampshire Hospitals NHS Foundation Trusts, University of Southampton, Southampton Academy of Research, Wessex Academic Health Science Network, Parkinson’s UK, Huntington’s Disease Association, MS Society Background: People living with long term neurological conditions have complex needs, which are not being fully met at present. This reduces their quality of life and increases costs to society. According to a survey in 2019, 90% of patients had not been offered a care plan. Problems with services not matching people’s needs have been identified, particularly in mental health, finance, and social care. These patients have the lowest health-related quality of life of any long term condition, according to NHS England. To address the needs of patients, the World Health Organization advises better coordination between different care services - This is called “integrated care”. Integrated care has shown benefits in other conditions but there is a lack ofevidence in long term neurological conditions. It is not clear what integrated care means, and how it can be delivered for those with long term neurological conditions. This study will focus on the needs and preferences of people living with Parkinson’s disease, Huntington’s disease, and Multiple Sclerosis, by: 1. Reviewing the evidence on how integrated care is provided internationally 2. Undertaking a UK wide survey to identify exemplar systems of integrated care followed by in-depth interviews to explore how care is currently delivered and experienced 3. Reaching consensus between different stakeholders on a model of integrated care and core outcomes for people living with these conditions This research project will explore the similarities and differences across long term neurological conditions and strategies for implementation of an integrated care model in practice. This project will characterise current care delivery and the experience of service users, showing the gaps in care and the changes needed in the system to meet the needs of people living with long term neurological conditions. It will inform the implementation and evaluation of the care model at post-doctoral level. This will result in a cost-effectiveness evaluation of the model and impact on service users’ outcomes. The anticipated long term impact of this study is that better system integration will result in improved outcomes for service users at no or reduced costs for health and social care systems. This knowledge is potentially transferable to other rare and prevalent long term neurological conditions – the biggest cause of disability worldwide. Read Sandra's blog Working under pressure – The UK community nursing workforce Project Team Members: Professor Jane Ball – University of Southampton, Dr Joanne Turnbull – University of Southampton, Dr Sarah Williams – Solent NHS Trust Professor Jill Maben – University of Surrey Organisations Involved: University of Southampton, Solent NHS Trust, University of Surrey. Background: Community nurses are an essential part of the nursing workforce in the UK. Providing care in peoples’ homes, community nurses play a vital role managing long term conditions, end of life care, acute management in a home setting and preventing avoidable hospital admission. UK healthcare policy continues to recognise the key role of community provision by setting ambitions to increase community-based care. This community focus is also reflected within research nationally, with clear strategic ambition to increase community-based research. Despite their importance, community nursing numbers are declining. There is a distinct lack of community nursing workforce research and therefore little empirical understanding of community nursing workforce outcomes such as staffing levels, retention, and burnout. Pressure is a term that is frequently used in nursing discourse and policy to describe nursing workforce contexts, but there is no recognised definition. This project will seek to understand and define pressure in a community nursing context and explore the viability of pressure as a community nursing workforce outcome. We hope that this project will provide understanding on current workforce outcomes in UK community nursing, provide a theoretical and empirical understanding of ‘pressure’ in UK community nursing contexts and begin to explore the use of pressure as a potential outcome measure for the UK community nursing workforce. Caring for the Sexual Health of Cancer Survivors and their Partners Project Team Members : Mrs Suzanne Sheppard – Bournemouth University, Dr Sally Lee – Bournemouth University Dr Zoe Sheppard – Dorset County Hospital NHS Foundation Trust, Ms Tracy Glen – Dorset County Hospital NHS Foundation Trust Organisation Involved: Dorset County Hospital NHS Foundation Trust. Background: Sexual difficulties are reported to be one of the most frequent, distressing, and persistent consequences of cancer and its treatment. However, despite the availability of both numerous interventions to treat sexual difficulties and models to help healthcare professionals communicate about sexuality, many patients continue to report that they do not receive supportive care from the hospital cancer team for these issues. Furthermore, if sexual concerns are discussed then the focus is often only on physical concerns. This mixed methods project is aiming to further illuminate the barriers to and facilitators for care for the sexual health of cancer survivors and their intimate partners. The initial quantitative phase will be a national, online survey of cancer survivors and their intimate partners. This survey will provide broad information about experiences of care and will explore perceptions of potential barriers and facilitators. The subsequent qualitative phase will take place at Dorset County Hospital NHS Foundation Trust and will involve semi-structured interviews exploring the lived experiences of the receipt and provision of care for sexual health in an oncology setting. At the end of the project, we will have a deeper understanding of the barriers to and facilitators for care for sexual health in oncology. It is anticipated that the use of the critical realist paradigm will help to achieve this deepening of understanding. These findings may be used to create an intervention to help improve the provision and receipt of care for sexual health for cancer survivors and their intimate partners. Sexual wellbeing is thought to be an important component of overall wellbeing and it is hoped that the findings may lead to improvements in both areas. Project title: Nudging; a theoretical concept for a very practical approach to pelvic floor muscle training Project team members: Professor Carol Clark- Bournemouth University. Dr Carly Stewart- Bournemouth University. Mrs Sally Sheppard- Dorset Lead Pelvic Health Physiotherapist Organisation involved: University Hospitals Dorset Background: The aim of this study is to explore whether nudge theory, in the form of digital nudges, influence pelvic floor muscle training adherence in perinatal women. The mixed methods study is divided into three phases. The first phase involves a systematic literature review around the effect of pelvic floor muscle training mobile apps on pelvic floor muscle training adherence in women. Phase two of the study involves qualitative research around discourse and behavioural communication behind a social media campaign. Patient and public involvement work alongside phases one and two will be used to inform the co-design of digital pelvic floor muscle training nudges. The third phase of the study will a feasibility study integrating digital nudges in new NHS perinatal pathways. Study findings will determine whether a randomised control trial is feasible for post-doctoral research. Project title: Exploring the relationship between health system responsiveness and the implementation of person centred integrated care for older people with frailty Post Doctoral Dr Kate Glyn-Owen - Healthy Communities Theme Dr Leire Ambrosio - Long Term Conditions theme Dr Miriam Avery - Workforce & Health Systems Dr Jo Hope Project: Early detection of chronic liver disease in community settings More details here Understanding, addressing, and meeting the complex needs of people living with long term physical and mental health conditions: a qualitative study Rea d more The career aspirations of nurses working in the research delivery workforce: a cross-sectional survey Read more

6dc4c269-ddb7-41c3-afd8-8173c69a4651 ADOPTED ActMed-VW - Healthcare professional's experiences of Access to Medication for people on Virtual Wards who are in their last year of life Virtual wards provide acute, hospital-level care in an individual’s own home, rather than in a hospital or hospice. They are also known as Hospital at Home services. We know that virtual wards can care for people who are in their last year of life. For individuals approaching the end of life, control of symptoms requires prompt access to medication. We know access to palliative care medication can be challenging in the community. There have also been reports of difficulty accessing medication on virtual wards; however, it is not known if there are specific issues accessing palliative care medications on virtual wards. This study aims to investigate access to medication for adults on virtual wards who are in their last year of life. We aim to understand the experiences of healthcare professionals so that we can make recommendations on how to improve access to medication in the future. We will ask healthcare professionals working in virtual wards to answer questions in an online survey. We will ask doctors, nurses, pharmacists, and allied health professionals such as physiotherapists to complete the survey. We will ask them about what works well and what does not. We will ask them about the challenges they have faced, and what would help them to minimise or eradicate these. We will also interview 20 healthcare staff. This will include both professionals who completed the survey and individuals who oversee the management of virtual ward services. We will explore in more detail examples of good practice and the processes that need to be in place to ensure straightforward, fast access to medication. We will consult with clinical and policy experts on potential solutions to the challenges identified in the study findings. We will also work with these experts to develop recommendations for policy and practice. Project team includes: Co-PI - Dr Nicola Andrews Co-PI - Prof Sue Latter Co-I Dr Natasha Campling Co-I Dr Sara McKelvie Research Fellow Dr Dan Aze

bd368e62-bd41-4d7a-a7ea-673ea3582964 ADOPTED PROJECT: High Harm Domestic Violence Perpetrator Pilot Evaluation Chief Investigator: Dr Sara Morgan – University of Southampton Project Team Members: Mrs Katerina Porter – University of Southampton, Mrs Fiona Maxwell – University of Southampton, Professor Julie Parkes – University of Southampton Organisations Involved: Hampshire County Council, Hampshire Constabulary, Office of the Police and Crime Commissioner, Hampshire, The Home Office, Hampton Trust Background data Domestic violence & abuse remains a pressing public health concern In the UK, 18% of adults aged 16+ have experienced domestic abuse from an intimate partner 1 In Southampton, domestic abuse accounts for 33% of violent crime Methods Analysis of routinely-collected anonymised quantitative data on all individuals meeting the Operation’s inclusion criteria (n=321) Interviews with key professionals (n=12) 11,751 individuals identified as perpetrators of domestic abuse in 2 policing districts over 14 months 131 individuals included in the Operation Foundation cohort, for allocation to High-Harm Teams, who attempt to engage perpetrators into a specialist behaviour change programme, ADAPT Results Operation Foundation identifies the domestic abuse perpetrators who pose the highest risk of the highest harm to their victims, and most require Police attention 10% of the Operation Foundation cohort were referred to ADAPT 2% of the cohort completed the ADAPT programme over 24 weeks High-Harm Team officers used new working practices to attempt to engage perpetrators and provide support to make healthy behaviour changes Where perpetrators were unwilling or unable to engage with the behaviour change intervention, High-Harm Team officers relentlessly pursued those perpetrators to disrupt their potential to pose a risk to their victims Qualitative data from High-Harm Team officers suggests that the Operation Foundation method had had positive and worthwhile effects regarding reoffending rates and reduction in risk to victims Further research is needed to determine the effectiveness of the Operation Foundation method CONTACT: k.a.porter@soton.ac.uk s.a.morgan@soton.ac.uk REFERENCES: 1. Robinson, A. L. and Clancy, A. (2017). New initiatives to tackle domestic violence using the Priority Perpetrator Identification Tool (PPIT). Cardiff: Cardiff University. 2. Crime Survey for England & Wales, 2022 3. Southampton Data Observatory, 2022 4. ADAPT programme, run by Hampton Trust

9ae71e9b-aaf2-477f-a174-17b115a2513a COMPLETED ADOPTED PROJECT: Neuro LTC: Assessing Baseline Factors, Critical Events and Fatigue in Long Term Neurological Conditions Principal Investigator: Dr Chris Kipps, Neurologist and Hon Senior Lecturer, University of Southampton Team Members: Dr Helen Roberts Veena Agarwal Dr John Spreadbury Dr Emma Stack Dr Sarah Fearn Prof. Ann Ashburn Start Date: 23/08/17 End Date: 31/12/22 Project Funder: University Hospital Southampton NHS Foundation Trust Lay Summary Many neurological conditions have a long-term impact on quality of life with varying requirements for intervention and care over time. This has the potential to create a mismatch between the needs of patients at particular stages in their illness, and the skill levels of clinicians and available resources required to assist them appropriately. This project aims to identify the factors that influence everyday care requirements (baseline factors) and to identify the critical events that have the potential to lead to an increase in care requirements. In many neurological conditions, there may also be ‘hidden’, less evident or more subjectively perceived factors that influence care requirements, of which fatigue may be amongst the most common. Thus, this project also includes research into the prevalence and effects of fatigue in neurological conditions. By identifying and better understanding baseline factors, critical events and the features of fatigue in long term neurological conditions, this project will help to enable future research to stratify long-term neurological conditions by the degree of complexity and individual burden and match service users more effectively to appropriate clinical and social care resources. Method The research will focus on the following five neurological conditions: epilepsy, Huntington's disease, motor neurone disease, multiple sclerosis, and Parkinson's disease. The study will involve the use of mixed methods. We will use surveys and focus groups with service users (patients and caregivers) to identify the factors that help to maintain an individual’s optimal level of living with the neurological condition (baseline factors), the critical events that can cause a change in care requirements in each of the five neurological conditions, and the impact of fatigue. What did we learn? 1. What factors affect the care that people living with a neurological condition require? We found that mobility was the most important factor for assessing care needs from the patient perspective. This was followed by dexterity, eating and drinking, speech and communication, cognitive impairment and mental health. This order of relative importance was found to be constant by age, disease progression, gender, living alone, or presence of co-morbidities. However, younger patients, more progressed patients, females, those living alone and those with co-morbidities tended to produce higher average scores of importance, meaning they felt their symptoms in these areas had a higher impact on their care needs. We asked participants what helped them to manage their condition and live well. The most important factors were: Social support, exercise, lifestyle factors and supportive equipment. Less recognised factors such as access to healthcare professionals, the patient’s mentality and diet were also noted. We found that recently diagnosed patients cited ‘employment’ and ‘feeling informed’ more frequently, whilst less recently diagnosed patients mentioned ‘having a carer’ and ‘getting out of the house’ more frequently. 2. What events lead to an unplanned GP or hospital visit for people living with a neurological condition? We found that there are specific events that are likely to lead to an unplanned GP or hospital visit for people with neurological conditions. In addition to well-recognised causes of crisis such as falls, trigger events less widely associated with crisis were identified, including difficulties with activities of daily living and carer absence. The less-recognised trigger events tended to be managed more frequently in the community. Many of these community-based crises had a greater impact on care needs than the better-known causes of crisis that more frequently required hospital care. Patient and carer responses indicated a good general knowledge of potential crisis triggers. Patients were more aware of mental health issues, and carers were more aware of cognitive impairment and issues with medications. 3. What is the frequency and impact of fatigue for people living with neurological conditions? We found that the prevalence of clinically significant fatigue across five neurological conditions (Parkinson’s, MS, epilepsy, MND and Huntington’s disease) was 51%. The highest prevalence of fatigue was amongst people with MS and MND, and lowest was amongst people with epilepsy. More than a third of participants reported that fatigue frequently impacted their social life and ability to concentrate. Factors associated with clinically significant fatigue were male gender, age, frequency of fatigue greater than twice a week and fatigue often having a detrimental effect on social life. What difference can this new knowledge make? Understanding the factors that affect the care needs of people living with neurological conditions can help to ensure care resources are targeted at those most at risk of high care needs. Understanding that younger patients, more progressed patients, females, those living alone and those with co-morbidities generally considered their symptoms to have a higher impact on their care needs, can allow us to target these patients with relevant support and interventions. Identifying the most important factors for people with neurological conditions to self-manage their conditions and live well can enable us to share this information more widely and promote self-management tools and techniques amongst this population. By increasing understanding of events that lead to a GP or hospital visit, we can better inform strategies to prevent them. Similarly, by identifying under-recognised crisis triggers we can build a better understanding of ‘risk factors’ for an unplanned GP visit or hospital admission. Identifying that Patients were more aware of mental health issues, and carers were more aware of cognitive impairment and issues with medications means that we can ensure healthcare professionals are asking the right questions to the right person. We also noted some differences in how patients and clinicians describe the events that precede a GP or hospital visit. This can help to ensure healthcare professionals are using the right language when assessing the risk of individual patients. By increasing understanding of events that lead to a GP or hospital visit, we can better inform strategies to prevent them. Similarly, by identifying under-recognised crisis triggers we can build a better understanding of ‘risk factors’ for an unplanned GP visit or hospital admission. Identifying that patients were more aware of mental health issues, and carers were more aware of cognitive impairment and issues with medications means that we can ensure healthcare professionals are asking the right questions to the right person. We also noted some differences in how patients and clinicians describe the events that precede a GP or hospital visit. This can help to ensure healthcare professionals are using the right language when assessing the risk of individual patients. Why is this important? The number of people with a neurological condition is rising, with around 17 million cases in the UK. Approximately 4% of NHS funding goes to neurology care. People with a neurological condition are more at risk of unplanned hospital visits and admissions than many other groups. Identifying factors that promote self-management and well-being could improve patient diagnosis and quality of life, reducing care requirements from the NHS. Reducing unplanned GP and hospital visits could improve patient quality of life and reduce resources spent by the NHS. Identifying the frequency and impact of fatigue and ways to manage it could improve patient and reduce resources spent by the NHS. What Next? We have already taken some of the findings from this study to: -Publish academic publications -Present at medical conferences -Present to groups of people with neurological conditions -Present to national support organisations -Create an impact inventory for neurological pathways -Create questionnaires that aim to identify those most at risk of an unplanned GP or hospital visit (implemented through My Medical Record) We are continuing to analyse the data and disseminate findings to a wide audience. Publications The Causes and Impact of Crisis for People with Parkinson’s Disease: A Patient and Carer Perspective - Sarah Fearn, Sandra Bartolomeu Pires, Veena Agarwal, Helen C. Roberts, John Spreadbury, Christopher Kipps, 2021

5464c879-04a7-47dc-8751-6ab5a9ad6d1c ADOPTED: Incidental Interaction: Novel Technology to Support Elders-as-Athletes through Augmenting Everyday Interactions Lead: Professor M.C Schraefel Team: Professor C T Freeman, Dr M B Warner Start date: October 2022 End date: January 2024 Partner organisations: Abri Different Strokes Southampton Solent NHS Trust Z-Health Performance Solutions Background Elders classically are framed as people who are inevitably getting weaker, losing muscle and bone mass, cognitive capacity, and inevitably requiring care to manage simple "activities of daily living" such as walking, feeding, toileting and bathing. These effects limit their capacity to live independently and healthily in their own homes.To address this decline, research in even just the past five years has been looking for new molecules and therapies to slow or reverse aging, to provide if not longer life, then better quality of life throughout the life course. While these advances in science and technology promise wonders (for those who will be able to afford them), there is already established science that demonstrates how we can all improve our life quality over our lifespan. This same science can, today, improve the life quality of our elders - starting these interventions at any age. It's building strength:a well understood, human practice. No technology is required to build and maintain strength; only to move against gravity. Repeatedly. Research has repeatedly shown that resistance training for elders can improve quality of life while mitigating if not eliminating age associated co-morbidities. And yet, for all its proven effective, cheap - even free - benefits for healthful longevity, many elders are simply too weak to take care of themselves. According to a 2019 report from AgeUk on the State of Elder health, 15% of those aged 65-69, rising to 1 in 3 citizens over 85 in the UK require care.Some of the well-documented challenges to strength building are that, unlike a pill or garment or augmentation, to achieve the benefits of strength, one has to do the work oneself, actively. That takes time, effort, as well as the knowledge, skills and practices to support it. Mustering the effort can be even harder to achieve when one is already feeling weak, recuperating from an injury, a hospital stay, or from loneliness of isolation.The research in this project is specifically designed to address the challenges that keep elders from actively engaging in strength work. Our approach is to co-create interactions to help build the knowledge skills and opportunities to practice to build and preserve the strength needed to maintain healthful independence at home. Our approach is simple: design interactive technology and gestures to leverage what we - including elders - do every day that is already strength work: stand, sit, grip, pull, push, reach, balance - and translate these into activities for building strength. We call it this novel protocol "do it twice." Stand from sitting? That's strength. Do it twice. That's strength building - and that supports the knowledge skills and practice of "elder athletes" building capabilities rather than requiring assistance.Our approach is interdisciplinary: experts in Human Computer Interaction, Sensors and Physiotherapy, developing novel, affordable interactive technologies to make strength practice accessible effective and enjoyable with support to guide these activities, reflect progress, and share with friends. We call the approach "incidental interaction for everyday strength."So far, we have tested the approach for feasibility. In this small project, with our partners in sustainable, assisted living housing, NHS Trusts, professional therapy and coaching, and with participating elders as co-designers, we will be refining the interaction, the sensors and the exercise protocols. We will be able to tune our work at each stage to ensure best engagement. In three phases from design, to testing, to in-home evaluations we will together be validating the accessibility and efficacy of our approach.By realizing with this project the potential our preliminary work indicates and that our partners anticipate, we will contribute a new affordable breakthrough approach to help transform elder health and care, to enable longer, stronger elder independence@home.

54d3d6a4-2f97-4fa8-8c83-e41613f3b35d COMPLETED: Co-POWeR - Consortium on Practices of Wellbeing and Resilience in BAME Families and Communities Principal Investigator: Professor Iyiola Solanke, University of Leeds Team: Professor Maria Stokes, School of Health Sciences, University of Southampton; Professor Sabu Padmadas, School of Economic, Social & Political Sciences, University of Southampton; Professor Monica Lakhanpaul, Institute of Child Health, University College London; Professor Claudia Bernard, Professor of Social Work. Department Social, Therapeutic and Community Studies, Goldsmiths College; Professor Shirin Rai, Politics and International Studies, University of Warwick; Professor Raminder Kaur, School of Global Studies, University of Sussex; Professor Gargi Bhattacharyya, Law and Social Sciences, University of East London; Professor Florence Ayisi, Faculty of Creative Industries, University of South Wales; Professor Anna Gupta, Department of Social Work, Royal Holloway, University of London. Duration: 18 months Summary Two viruses - COVID-19 and discrimination - are currently killing in the UK (Solanke 2020), especially within BAMEFC who are hardest hit. Survivors face ongoing damage to wellbeing and resilience, in terms of physical and mental health as well as social, cultural and economic (non-medical) consequences. Psychosocial (ADCS 2020; The Children's Society 2020)/ physical trauma of those diseased and deceased, disproportionate job-loss (Hu 2020) multigenerational housing, disrupted care chains (Rai 2016) lack of access to culture, education and exercise, poor nutrition, 'over-policing' (BigBrotherWatch 2020) hit BAMEFC severely. Local 'lockdowns' illustrate how easily BAMEFC become subject to stigmatization and discrimination through 'mis-infodemics' (IOM 2020). The impact of these viruses cause long-term poor outcomes. While systemic deficiencies have stimulated BAMEFC agency, producing solidarity under emergency, BAMEFC vulnerability remains, requiring official support. The issues are complex thus we focus on the interlinked and 'intersectional nature of forms of exclusion and disadvantage', operationalised through the idea of a 'cycle of wellbeing and resilience' (CWAR) which recognises how COVID-19 places significant stress upon BAMEFC structures and the impact of COVID-19 and discrimination on different BAMEFC cohorts across the UK, in whose lives existing health inequalities are compounded by a myriad of structural inequalities. Given the prevalence of multi-generational households, BAMEFC are likely to experience these as a complex of jostling over-lapping stressors: over-policed unemployed young adults are more likely to live with keyworkers using public transport to attend jobs in the front line, serving elders as formal/informal carers, neglecting their health thus exacerbating co-morbidities and struggling to feed children who are unable to attend school, resulting in nutritional and digital deprivation. Historical research shows race/class dimensions to national emergencies (e.g. Hurricane Katrina) but most research focuses on the COVID-19 experience of white families/communities. Co-POWeR recommendations will emerge from culturally and racially sensitive social science research on wellbeing and resilience providing context as an essential strand for the success of biomedical and policy interventions (e.g. vaccines, mass testing). We will enhance official decision making through strengthening cultural competence in ongoing responses to COVID-19 thereby maximizing success of national strategy. Evidenced recommendations will enable official mitigation of disproportionate damage to wellbeing and resilience in BAMEFC. Empowerment is a core consortium value. Supporting UKRI goals for an inclusive research culture, we promote co-design and co-production to create a multi-disciplinary BAME research community spanning multi-cultural UK to inform policy. CO-POWeR investigates the synergistic effect on different age groups of challenges including policing, child welfare, caring and physical activity and nutrition. WP1 Emergency Powers investigates these vague powers to understand their impact on practices of wellbeing and resilience across BAMEFC. WP2 Children, Young People and their Families investigates implications for children/young people in BAMEFC who experience COVID-19 negatively due to disproportionate socio-economic and psychosocial impacts on their families and communities. WP3 Care, Caring and Carers investigates the interaction of care, caring and carers within BAMEFC to identify how to increase the wellbeing and resilience of older people, and paid and unpaid carers. WP4 Physical Activity and Nutrition investigates improving resilience and wellbeing by tackling vulnerability to underlying health conditions in BAMEFC. WP5 Empowering BAMEFC through Positive Narratives channels research from WP1-4 to coproduce fiction and non-fiction materials tackling the vulnerability of BAMEFC to 'misinfodemics'.

c585330f-e35f-4618-bc81-287d81f85239 The PD Life Study: Exploring the treatment burden and capacity of people with Parkinson’s and their caregivers Principal Investigator: Professor Helen Roberts Research team: Dr Qian Yue Tan (Research Fellow, Academic Geriatric Medicine, Faculty of Medicine, University of Southampton), Professor Helen Roberts (Professor of Medicine for Older People, Academic Geriatric Medicine, Faculty of Medicine, University of Southampton), Dr Kinda Ibrahim (Senior Research Fellow, Academic Geriatric Medicine, Faculty of Medicine, University of Southampton), Dr Simon Fraser (Associate Professor of Public Health. School of Primary Care and Population Sciences, Faculty of Medicine, Southampton General Hospital), Dr Khaled Amar (Consultant Geriatrician and Honorary Senior Lecturer at Bournemouth University, Royal Bournemouth and Christchurch Hospitals NHS Foundation Trust) Start: October 2020 Ends: October 2022 Project Partners: University of Southampton, Bournemouth University, University Hospital Southampton NHS Foundation Trust, Royal Bournemouth and Christchurch Hospitals NHS Foundation . Lay Summary People with Parkinson’s (PwP) have many symptoms including tremor, stiffness, slow movements, constipation, urinary incontinence and mental health issues. They are often older and have other long-term health conditions. PwP need to do many things to look after their health including manage multiple medications, attend healthcare appointments and lifestyle changes such as improving diet and exercise. The effort of looking after their health and its impact on them is termed ‘treatment burden’. Some PwP need help from their family or friends (caregiver) to complete these tasks. Caregivers may also experience treatment burden themselves when caring for someone with Parkinson’s. People’s ability to manage treatment burden is termed ‘capacity’ and is influenced by physical, mental, social and economic factors. People are overburdened when the workload of looking after their health exceeds their capacity. This can lead to poor adherence with treatment, poor quality of life and worse health outcomes. Aim We aim to understand the factors that influence treatment burden and capacity in PwP and their caregivers. Methods Interviews with 15 PwP and 15 caregivers will identify factors that influence treatment burden and capacity. These factors will be explored further in a national survey for PwP and caregivers with support from Parkinson’s UK. We will then form focus groups with PwP, caregivers, voluntary sector representatives, healthcare professionals, policymakers and managers through Parkinson’s Excellence Networks to discuss the findings and prioritise recommendations for change. This study will enable to us develop recommendations of ways to reduce treatment burden and improve future experiences of PwP and their caregivers. This research is also supported by a legacy in memory of Carolyn and Tore-Jan Myhre